trents
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trents's post in Does anyone know the correct way to prepare for Celiac blood test? was marked as the answer
Welcome to the forum, rmcozart22!
The Mayo Clinic guidelines are the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of the blood draw for celiac antibody testing.... -
trents's post in Gluten ataxia symptoms was marked as the answer
Welcome to the forum, Coranne!
It will vary significantly from person to person and depends in large part on how much damage has been done to you neurologically. And some people never get complete resolution because the damage... -
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trents's post in 2.5 year old son diagnosed with DH and celiacs . . . . was marked as the answer
Welcome to the forum, Carianne!
Quite a few of our forum members report that reducing iodine intake helps significantly with DH.
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trents's post in Questions after blood test results was marked as the answer
What was confusing, however, was that "a note from the lab to say IgA TTg results to follow came after the result for the anti-tissue transglutaminase had already been given.
Rachy265, I expect the physician will want ... -
trents's post in Question in regards to antibodies was marked as the answer
Normal range of serum vitamin D is between 30 and 100 ng/mL
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trents's post in Glucose syrup, friend or foe? was marked as the answer
Now, I am assuming you have been diagnosed with celiac disease or at least NCGS. Given that assumption, you would seem to be in that subset of people with a gluten disorder who are quite sensitive such that even traces of gluten cause... -
trents's post in My Son’s celiac test result was marked as the answer
Welcome to the forum, Irishgirl5@
First and foremost, you should not put your son on a gluten free diet until all testing is complete. Doing so beforehand will sabotage any tests for celiac disease. If you trial a gluten free... -
trents's post in Possible celiac? Please help! was marked as the answer
Since you had already cut back on gluten you cannot trust the blood work that was done to check for it. Mayo Clinic guidelines are two slices of wheat bread or the gluten equivalent daily for 6-8 weeks leading up to the blood draw. You... -
trents's post in Coeliac screen - did I eat enough gluten? was marked as the answer
Welcome to the forum, whaleroad!
It's not clear to me if you ate the two crumpets every morning leading up to the blood draw or just once during that time.
The Mayo Clinic guidelines for a pretest "gluten challenge" is... -
trents's post in monosaccharides, oligosaccharides, polyols was marked as the answer
Being certified organic has nothing to do with containing monosaccharides, oligosaccharides or polyols. These things are natural compounds found in grains, vegetables and fruits. The first two are sugars and polyols are sugar alcohols. ... -
trents's post in Not sure I want to get tested...Can I just not? was marked as the answer
Welcome to the forum, Kasini! The only thing I would suggest would be to consider getting a genetic test done to see if you carry one or more of the genes associated with celiac disease. About 40% of the general population will carry... -
trents's post in Would really appreciate help interpreting with Test Results was marked as the answer
Welcome to the forum, Hen!
Your physician ran two tests designed to detect celiac disease:
FEndomysial Antibody IgA Negative Negative BN Ft-Transglutaminase (tTG) IgA <2 0-3 (U/mL)BN Both these tests w... -
trents's post in Newly diagnosed was marked as the answer
You are not the first person on this forum to report negative serum antibody levels but a positive biopsy. Having said that, it's too bad that a more complete celiac panel was not run. There are other tests that could have been done and... -
trents's post in Elevated ALT enzymes was marked as the answer
Welcome to the forum, Parish!
Elevated liver enzymes for at least 13 years was what finally led to my celiac diagnosis back around 2000. My GP had no clue that celiac disease could cause elevated liver enzymes. I finally booked... -
trents's post in Small Fiber Neuropathy?? was marked as the answer
"Other causes of this condition include a metabolic disorder called Fabry disease, immune disorders such as celiac disease or Sjogren syndrome, an inflammatory condition called sarcoidosis, and human immunodeficiency virus (HIV) infection... -
trents's post in Mast Cell Activation Syndrome (MCAS) was marked as the answer
Histamine intolerance and MCAS go hand in hand. If you have histamine intolerance, you will have MCAS and vice versa. I'm not saying they are exactly the same thing but I'm saying you really can't separate the two. Another way putting... -
trents's post in Newbie! Pre Intestinal Biopsy was marked as the answer
So, is you question about whether or not you should have the biopsy or whether or not you should follow the doc's recommendation of no Guinness?
Two things:
1. Don't equate no discernible reaction to a gluten-containing... -
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trents's post in How do you clean Keurig Machine to remove any potential cross contamination from prior use was marked as the answer
Here is a gluten free k cup coffee: https://www.amazon.com/Donut-Café-Single-Brewers-Classic/dp/B095F8GRL9/ref=sr_1_18?crid=W09BUTUU243X&keywords=gluten+free+k+cups&qid=1690036220&sprefix=gluten+free+k+cups%2Caps%2C151&... -
trents's post in Accidentally eating gluten was marked as the answer
Thank you for the extra information. I remember when Ezekiel bread was a fad. I was diagnosed at about age 51 and I'm 72 now. From what I've read there isn't much difference in the mortality rate for celiacs than for the general population... -
trents's post in Confused about my Celiac Test Results was marked as the answer
"Tissue Transglutaminase (tTG) has been identified as the endomysial antigen."
This not a test result. I believe it is just stating what kind of marker the antibody testing is targeting. Your actual test numbers are all negative... -
trents's post in I might have celiacs was marked as the answer
Rheumatoid arthritis for one. But I was wrong in my earlier statement. Actually GDP-IGA has a 97% specificity for celiac disease. What it lacks is sensitivity at only 85%. I looked it up. So, if it rings up a positive, the chances are... -
trents's post in Extreme constipation was marked as the answer
Yes, could be just an adjustment period. Withdrawal symptoms are experienced by many people when the remove gluten from their diet. Gluten has addictive properties much like opiates. It is also likely that your total fiber intake has... -
trents's post in Worth it to push for an endoscopy after negative blood test? was marked as the answer
Another gluten-related possibility for what is causing your symptoms is NCGS (Non Celiac Gluten Sensitivity). 10x more common than celiac disease and the two share many of the same symptoms. However, there are no definitive tests for...
