trents

The onset of celiac disease can happen at any stage of life. Before onset you will possess the genetic potential but all other tests will be negative.

Just make sure all your vitamin and mineral supplements are gluten free. Costco is a great place to get many of them. Their Nature Made and Kirkland Signature brands are generally gluten free and will say so on the bottle/package if they...

Your platelet count is higher than normal but not way higher. I would keep an eye on it and see if it continues to climb.

Welcome to the forum, rmcozart22!
The Mayo Clinic guidelines are the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of the blood draw for celiac antibody testing....

Welcome to the forum, Coranne!
It will vary significantly from person to person and depends in large part on how much damage has been done to you neurologically. And some people never get complete resolution because the damage...

A very common experience, Treza. I was essentially a silent celiac and only diagnosed because of persistently elevated liver enzymes for 13 years leading up to diagnosis. There is much ignorance and outdated knowledge in the medical community...

Welcome to the forum, Carianne!
Quite a few of our forum members report that reducing iodine intake helps significantly with DH.

What was confusing, however, was that "a note from the lab to say IgA TTg results to follow came after the result for the anti-tissue transglutaminase had already been given.
 
Rachy265, I expect the physician will want ...

Normal range of serum vitamin D is between 30 and 100 ng/mL

Now, I am assuming you have been diagnosed with celiac disease or at least NCGS. Given that assumption, you would seem to be in that subset of people with a gluten disorder who are quite sensitive such that even traces of gluten cause...

Welcome to the forum, Irishgirl5@
First and foremost, you should not put your son on a gluten free diet until all testing is complete. Doing so beforehand will sabotage any tests for celiac disease. If you trial a gluten free...

Since you had already cut back on gluten you cannot trust the blood work that was done to check for it. Mayo Clinic guidelines are two slices of wheat bread or the gluten equivalent daily for 6-8 weeks leading up to the blood draw. You...

Welcome to the forum, whaleroad!
It's not clear to me if you ate the two crumpets every morning leading up to the blood draw or just once during that time.
The Mayo Clinic guidelines for a pretest "gluten challenge" is...

Being certified organic has nothing to do with containing  monosaccharides, oligosaccharides or polyols. These things are natural compounds found in grains, vegetables and fruits. The first two are sugars and polyols are sugar alcohols. ...

Welcome to the forum, Kasini! The only thing I would suggest would be to consider getting a genetic test done to see if you carry one or more of the genes associated with celiac disease. About 40% of the general population will carry...

Welcome to the forum, Hen!
Your physician ran two tests designed to detect celiac disease:
FEndomysial Antibody IgA Negative Negative BN Ft-Transglutaminase (tTG) IgA <2  0-3 (U/mL)BN Both these tests w...

You are not the first person on this forum to report negative serum antibody levels but a positive biopsy. Having said that, it's too bad that a more complete celiac panel was not run. There are other tests that could have been done and...

Welcome to the forum, Parish!
Elevated liver enzymes for at least 13 years was what finally led to my celiac diagnosis back around 2000. My GP had no clue that celiac disease could cause elevated liver enzymes. I finally booked...

"Other causes of this condition include a metabolic disorder called Fabry disease, immune disorders such as celiac disease or Sjogren syndrome, an inflammatory condition called sarcoidosis, and human immunodeficiency virus (HIV) infection...

Histamine intolerance and MCAS go hand in hand. If you have histamine intolerance, you will have MCAS and vice versa. I'm not saying they are exactly the same thing but I'm saying you really can't separate the two. Another way putting...

So, is you question about whether or not you should have the biopsy or whether or not you should follow the doc's recommendation of no Guinness?
Two things:
1. Don't equate no discernible reaction to a gluten-containing...

Ellen, it might be wise to go back to your dermatologist armed with new information and request another biopsy done correctly. Or, seek out another dermatologist who is competent to perform a biopsy correctly.

Here is a gluten free k cup coffee: https://www.amazon.com/Donut-Café-Single-Brewers-Classic/dp/B095F8GRL9/ref=sr_1_18?crid=W09BUTUU243X&keywords=gluten+free+k+cups&qid=1690036220&sprefix=gluten+free+k+cups%2Caps%2C151&...

Thank you for the extra information. I remember when Ezekiel bread was a fad. I was diagnosed at about age 51 and I'm 72 now. From what I've read there isn't much difference in the mortality rate for celiacs than for the general population...

"Tissue Transglutaminase (tTG) has been identified as the endomysial antigen."
This not a test result. I believe it is just stating what kind of marker the antibody testing is targeting. Your actual test numbers are all negative...