amymm
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by amymm
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I have ITP too. I'm 36 but was diagnosed at age 20 by bone marrow biopsy. I spent years on and off prednisone-crappy stuff, but it does the job. In 1999, I had my worst crash-I went down to 14,000. My hematologist at the time just said, "Let's take that spleen out". I went for it, as I really couldn't stand the thought of being on prednisone again. ...
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ARCHIVED Platelets
amymm replied to loraleena's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi again. I'm glad you replied. I had my spleen removed in 1999 and this has pretty much taken care of my platelet counts, so I can't say if going gluten free would have helped the platelets. I have read of such an experience. I wanted to caution you about the chinese herbs. I'm actually very open to alternative treatments myself, especially since... -
ARCHIVED Platelets
amymm replied to loraleena's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi there. I have ITP (idiopathic thrombocytopenia purpura). I was diagnosed in 1989 at the age of 20. It is an autoimmune disease in which you have chronically low platelet counts with no explaination (hence-"idiopathic"). I spent lots of years on and off prednisone and eventually had my spleen removed. This helped, except when I had my third child... -
Donna-thanks so much for in the name. I will keep him in mind when I'm ready to see another doctor Amy
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I would love the name of the doctor. Thanks
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ARCHIVED Test Results-help
amymm replied to amymm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have symptoms galore, including GI symptoms. Have had them since the birth of my 2nd child in 2000. I know I can gluten-free on my own. I want to be taken seriously-as far as I can expect the medical establishment to do so, before I take matters into my own hands. I'm also just looking for people who have experience with the gene testing and how... -
I got my test results from Prometheus labs. They are at the fore-front of Celiac testing. At least Celiac testing that is viewed as credible by doctors. I tested negative on every test. However, they automatically test for the HLA DQ genes if you test negative. I tested positive for the DQ2 gene, but negative for the DQ8 gene. What do you think...
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Thanks so much. Do you have Celiac? I have already been tested, over 5 years ago and nothing was found. I want to find a doctor to take me seriously-as I don't look malnuorished! Was it easy to get an appointment with her? Thanks again Amy, San Jose
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Hello everyone. I'm looking for a doctor in San Jose, California who's well-versed in Celiac. I need one who won't take one look at me, looking very well-nurished and show me the door! I've read mixed reviews on this board regarding Dr. Gary Gray at Stanford. Anyone care to give me their advice? I'm willing to drive a ways-but not too far. I don...
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ARCHIVED Should I Try Again?
amymm replied to amymm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks to everyone for the responses. I'm really just so burnt out on doctors. Some have been really great-others not! I know something is going on to cause my other autoimmune issues. I have had a lot of doctors just look at me and scratch their heads. I did remember some more wording on my biopsy report. It said something to the effect of "infiltrate... -
ARCHIVED Should I Try Again?
amymm posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello everyone. I will try and give a brief background. I am a 36 yo woman with three kids. I have had autoimmune thrombocytopenia (low platelet count) for the last 17 years. I also suffer from hypothyroidism. After the birth of my 2nd child in 2000, I started having lots of weird symptoms. I ended up in the ER 3 different times with severe stomach...