ljgs

Thank you, all who responded. @trents, I certainly will be asking numerous detailed questions of people who have celiac disease and other conditions; I avoided doing so in my introductory post because I first wanted to connect with those who are willing to talk to me. Once we speak by phone or email, I always get much more information. I appreciate your suggestions...

Hello, all. I'm the mother of a celiac sufferer as well as a journalist. I'm doing a story for Gluten Free & More magazine about the link between celiac disease and other autoimmune conditions. I'd love to hear your story, if you're interested in being quoted. Were you diagnosed with celiac and then another condition? How do you manage both or all? Thanks...

Hi, all. I'm a longtime member of this group as the mother of a celiac patient. I'm also a professional writer doing a story for a national magazine about DH. I'm speaking to physicians, but I'd also love to talk to a couple of DH sufferers about their experiences. Unfortunately, there's not a lot of info out there about DH. So I'd like to know: What has...

Thank you all for replying. Yes, posterboy, I got tested as soon as my daughter was diagnosed, and have been tested occasionally since.

Hi, all. I'm a professional writer (and mother of a young adult with celiac) who is working on a magazine story about the special considerations of celiac disease in pregnancy. Would anyone on this board be willing to be interviewed about their experience? I'd love to know what advice your doctor and/or nutritionist gave you, what you ate, if you supplemented...

Hi, I'm the original poster here. Thank you SO MUCH, everyone, for your responses, whether to commiserate or ask me to clarify things. I truly appreciate it! Just to clear a few things up...my teen is really pretty chill about her celiac. She has been taking her own food everywhere for awhile. To be honest, this issue is my own irritation with my mother-in...

Grrrr.....I just need to vent. My 16-year-old was diagnosed 3 1/2 years ago, so all the grandparents have had plenty of time to get educated and used to this. My mother is an excellent cook, and my parents always go out of their way to be careful during holiday dinners so my daughter has safe choices. If my kids are staying at their house, they will have...

It certainly is good to know I'm not alone!!! While I do my best not to worry about things that are unlikely or largely out of my control, when I hear about someone being diagnosed, I do worry about my daughter. She has the DQ2.5 gene, but then again almost all celiacs do. And her father has both DQ2.5 AND DQ8 and is neither celiac or diabetic. So the odds...

My 15-year-old daughter was diagnosed with celiac disease two years ago this week. She has been extremely compliant with the diet and her antibody levels quickly normalized. But I remain terrified that she will develop Type 1 diabetes. Every time I hear about someone developing this disease, I worry all over again. There is a lot of talk about diabetic children...

Maximoo, if your daughter has only been gluten-free for six months, there's a good chance that eating gluten all those years affected her nutritional absorption and is the reason she is still petite. Now that her body is absorbing nutrients, she may catch up in height. On the other hand, her father is quite short and so she may very well top out just over...

I understand that some celiacs don't have any outward reaction to gluten--my teenage daughter does not get any of the obvious symptoms that hit some celiacs so hard, but her diagnostic biopsy last year showed enormous damage to her intestines. My concern is for people who believe they are okay with a little contamination because they don't "feel" it, when...

Thanks, all, for agreeing with me. When I met the father last year and he told me that she eats soy sauce, I immediately wondered what the deal was with this family. Also, the mom told me that after being diagnosed at age two they never bothered getting the kid any further bloodwork or follow-up testing. My daughter was diagnosed a year ago and we have been...

A friend of a friend has a college-age daughter with celiac disease, and she says that the girl was tested for something called "contamination celiac," which is when you are sensitive to the remnants of gluten. Apparently this girl is able to eat cold cuts lifted directly off bread or pick croutons out of the salad and then consume the salad without any ill...

My 14-year-old is visiting London for the first time with her grandparents this coming April. She is 7 months gluten free and normally does very well. She knows how to read labels and how to ask for things in restaurants, and her grandparents have been well prepped. They're staying in a flat with a kitchen, so breakfast will not be a problem, and I have scouted...

Thanks, all. He was tested for celiac antibodies and was definitely negative. And you're right--he is not that short. In fact, we took him to an endocrinologist last year who said there was absolutely no cause for concern. So I do feel a little like I'm overreacting by taking him off gluten. But it turns out, now that I've really scrutinized my pantry, that...