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Alaskaguy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Alaskaguy

  1. Alaskaguy
    AppEng, that is good to know about your experience with oats, although I will be absolutely crestfallen if it turns out that I cannot handle even the purity protocol oats (which, in my initial enthusiasm, I ordered more than 100 lbs of directly from the grower in Wyoming last year!). I LOVE the flavor of oats, and all through last spring and summer, oats...
  2. Alaskaguy
    Thank you for all that information and links, Posterboy --- that is a lot to plow through! I do still try to read up as I can and find out more about celiac disease and DH, particularly inasmuch as I was never officially diagnosed with either --- a fact which I have not tried to hide here. But everything, and I mean EVERYTHING, about the skin condition...
  3. Alaskaguy
    OK, that is something that I would not have expected, so thanks for warning me and letting me know that in advance. So far, my only initial symptoms (of the DH) is when a patch of skin starts to itch. But I'll keep in mind that that could very well change. Well, I do use sugar, but only modestly, and mostly just for my morning (plain) green tea...
  4. Alaskaguy
    Thank for all those suggestions, Ennis! Although I think that as of now my problems lie entirely with my skin and the DH (the gut healed within one month after going gluten-free last year, at least by the resolution of my relatively mild but life-long symptoms --- see the recent "Dapsone" thread here), I am exceedingly reluctant to use any kind of flavorings...
  5. Alaskaguy
    That is mirrored in my own experience, after I went gluten-free early last year, and for maybe the first time in my life, I had NORMAL bowel movements --- without all the straining, and cramping and discomfort, and having to routinely spend 30 minutes or more on the toilet. For my whole life, I didn't even really question it (I mean, how many people really...
  6. Alaskaguy
    PS: One thing that I am unclear on regarding the Fasano Diet is the use of spices. Since they do mention that fresh herbs are OK but dried herbs are not, and that freshly ground black pepper is OK but no other spices are mentioned, then I assume that that means that NO other spices are allowed. Which kind of makes sense (even if it stinks), because most...
  7. Alaskaguy
    Fourchickens and Squirmingitch, once again, thank you for all that information! FC, I have heard a bit about OAS, but did not know a great deal about it. I don't believe that I have suffered from that, but I think I have heard of some people here in SC Alaska who do, probably triggered by the vast amounts of birch pollen that we are inundated with in...
  8. Alaskaguy
    That's a good point, Cyclinglady, and one that I had in fact noted already, although I had not stopped to consider the full ramifications of the fact that members seem to come and go here, rather than remaining as posters long-term --- because many or most of them heal, and then move on.
  9. Alaskaguy
    Thanks, everyone, for all the information posted so far in this thread --- I really appreciate it! I do still have some fundamental questions about how to go forward with this Fasano Gluten Contamination Elimination Diet with DH that I'm hoping one or more of you might be able to help me with: 1) Given that I am 'only' 13 months into the (conventional...
  10. Alaskaguy
    Indeed. I feel sorry for those people who have never had pets, and who look down their noses at the very idea of having one.
  11. Alaskaguy
    Laurel, I did/do have DH like you, but I was never on Dapsone, so I cannot speak to your particular case. However, after going "conventional" gluten-free (which proved to be not quite rigorous enough for me), my initially red and purple areas from the DH did slowly and then eventually completely fade away. In the previously worst spots, I would say that...
  12. Alaskaguy
    CyclingLady, Thank you for those comments and information. You and Squirmingitch have been so graciously patient and helpful with me here, I am very humbled and grateful. I'm very sorry to hear that you have Autoimmune Gastritis ON TOP OF Celiac Disease! Damn, trying to sort all that out must have been a chore (and then some). I've felt almost...
  13. Alaskaguy
    It can be so amazing to have a good dog in your life! My heart still aches for my old dog Jack. I now much more understand that line in the old song "Mr. Bojangles": His dog up and died, he up and died after 15 years he still grieves ....
  14. Alaskaguy
    Regarding the lentils, they have always been a favorite of mine, but recognizing the gluten grain contamination in them (mostly just from having seen it myself over the years, not so much from reading about it), I guess I have shied away from them since going gluten-free. But I have some very good Ethiopian recipes for various lentil dishes. Not that I...
  15. Alaskaguy
    Yes, I think you are correct about Jack and me. It might sound horribly maudlin to write this, or to admit it, but sometimes I still almost tear up when I think about him (as I am doing right now). I couldn't even think about getting another dog in the first year after he died, the pain (and memories) was just too strong. But the funny thing was...
  16. Alaskaguy
    So, Squirmingirch, you do not ever use lentils, even if you give them a very thorough sorting and washing? I was going to give them up as a matter of course with this Fasano Diet test, but I'd like to hope that I could use them some day after that is over with, following the procedures that I outlined. But do you feel that they should be permanently avoided...
  17. Alaskaguy
    Wow, Squirmingitch, talk about a coincidence! I have ALWAYS loved macaroons, but never made them until, ironically, last month. For the flour in them, I used oat flour one time, and potato starch in the other batch. I can't say specifically that I reacted to them, but again, I've been having more problems with the DH over the past couple of months, and...
  18. Alaskaguy
    Yes, Fourchicks, that is a good point, and I had indeed been sporadically using purity-protocol oats (purchased directly from Gluten-Free Harvest in Wyoming) over the past six months, and much more regularly in the six or seven months before that. But going on the Fasano diet as of today, I am giving up ALL oats, and all grains in general, for at least three...
  19. Alaskaguy
    Thanks for that information ch88! I will check out that thread that you referred to. Interestingly, one thing that I did make a batch of within the past couple of months, during which my Dh problems have started getting worse again, was posole, a Mexican soup that contains a lot of hominy, which is a special kind of treated corn. I'll be keeping my...
  20. Alaskaguy
    Squirmingitch, thanks for the condolences regarding my dog. Jack died two years ago next week, and he was a remarkable, one-of-a-kind Malamute/Siberian Husky mix that I will never be able to replace. My friends and acquaintances still talk about him, and I still miss him every single day. No, I've never been a crazy egg-eater, and at least half of...
  21. Alaskaguy
    Squirmingitch, Yes, I have made one batch of lentils within the past six months, maybe two months ago. I have always been aware of grain contamination with lentils, having seen it in the past, so I did carefully sort through the lentils to find any stray grains (which I did not see). However, I did not try to wash them before cooking them, which I...
  22. Alaskaguy
    Squirmingitch, in answer to some of your questions above, 1) Regarding the dog food, I was speaking only metaphorically there --- my last dog died two years ago, and I am not really around any other dogs, so there is no chance of contamination from that end; 2) I have totally stayed away from the sea vegetables since going gluten-free 13 months...
  23. Alaskaguy
    Thanks for your response and suggestions, Ravenwoodglass. You know, the ONLY thing that is giving me any hope at this point is the fact that my former GI symptoms, which I had had for most of my life, or let's say 45 years at least, did indeed heal rapidly after going (apparently semi-)gluten-free (I have had the DH for maybe 'only' seven years or so...
  24. Alaskaguy
    Hello All, After looking into trying the Fasano Gluten Contamination Elimination Diet in order to try to get my recurring outbreaks of Dermatitis Herpetiformis under control despite having been gluten-free for just over one year, I am terribly discouraged by the seeming futility of the endeavor. Firstly, having read the entire medical paper in which...
  25. Alaskaguy
    Thanks again Squirmingitch, for all your input and suggestions. That was very gracious of you to offer. Please note that I will continue this discussion, focusing on the Fasano Diet and the ramifications of it, in another thread.
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