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EmilyP2004

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  1. ******************************************************* Coeliac disease - allergy, intolerance, or what? Excerpt from Gluten-free Friends Fall 1996 (Vol. 2, No. 3) R. Jean Powell, editor Montana Celiac Society 1019 So. Bozeman Ave. #3 Bozeman, MT 59715. celiac disease, also known as gluten enteropathy, is neither an allergy nor an intolerance....
  2. You say: .....a monthlong Gluten abstainance in April and it was horrid. Before that, my test results were borderline in all cases. I had borderline blood tests which "just maybe" indicated I should have the biopsy just to "rule out" celiac disease. The biopsy came back inconclusive. They detected the presence of antibodies that "might" be indicative...
  3. Dietary cards are available from this site: Open Original Shared Link When I went to Prague I took gluten-free basics like rice cakes etc. Please see: Open Original Shared Link Hope you have a great time.
  4. From November 2004 a new law in England and laws in other European Union countries will mean allergens present in foods will have to be listed on the packaging. On the list of allergens is gluten so obviously this will help coeliacs . More on the Food Standards Agency site: Open Original Shared Link
  5. Was not sure where to post this but a lot of coeliacs will want to know there is now a gluten free and wheat free beer available by mail order in UK. It is Green's Discovery and is excellent, tastes like a real ale, not a lager. Open Original Shared Link I know there are other gluten-free beers (Rampo Valley & Bard's Tale in USA, Nigerian Guinness...
  6. I suppose when celiac disease is better known about more people (and therefore more famous people) will become diagnosed. Please see : Open Original Shared Link
  7. It is difficult to think about going back on to a normal (gluten-containing) diet if you feel better gluten-free. However, the only real way to find out if you have celiac disease & not another condition is to eat a normal diet and be tested then for celiac disease. As you had been gluten-free before you had a test before this may mean you had...
  8. Yes, it's in the genes! Please see; Open Original Shared Link I was diagnosed only 3 years ago aged 57 but I had been ill for over 30 years. It was thought recently (after research in Bristol UK on 7 year old children) that, because about 1 in 100 of their sample had blood tests which indicate celiac disease- the same as for adults, the condition...
  9. The medical advice is not to adopt a gluten free diet (GFD) until & unless you have been diagnosed (usually by biopsy/gastroscopy) with Coeliac (celiac) disease (celiac disease). There may be other reasons why a person has symptoms which are associated with celiac disease so it is best to be quite sure celiac disease is the correct diagnosis. ...
  10. You should be tested for lactose intolerance before giving up milk & milk products. If you have damaged villi due to celiac disease the microvilli (on the tips of those villi) which normally deal with lactose may be temporarily damaged, too. When you cut out or cut down on lactose the microvilli re-grow & can work again. The condition can...
  11. It is possible you may have Dermatitis Herpetiformis Dermatitis Herpetiformis is a rare condition with a very itchy rash. DH associated with Coeliac Disease. It is, however, difficult to diagnose and not many skin specialists understand about it. You can see examples & descriptions of DH & ask for advice on this website. Open Original Shared...
  12. It can take up to two years completely gluten free for the damage due to celiac disease to be healed, 3 months is quite a short time to expect recovery but obviously your son is getting better. One can be tested for lactose intolerance. This problem can be quite often found amongst coeliacs as the microvilli dealing with lactose (milk sugar) may be damaged...
  13. Yes, in UK we say 'See lee ack' (or 'silly yak') and it is spelt coeliac here & in some other countries. There is a Tropical Sprue as well as Non-tropical Sprue but the Tropical type is temporary and not for life as is Non-Tropical Sprue (Coeliac/Celiac Disease). I think it is confusing to call it Sprue as it is not clear if you do that which type...
  14. The gluten which damages coeliacs actually has to reach the smalll intestine so you are safe just handling food and carefully washing your hands afterwards. Inhaling wheat dust should not be a problem to a coeliac either- you have to actually eat gluten & get it in your digestive system to damage your villi.
  15. If you prepare your own food from raw gluten-free ingredients you should start to recover well . It actually can take up to about 2 years to completely heal the villi that have been damaged by celiac disease. Be sure not to get accidental gluten contamination. Have your own gluten-free area in the kitchen, do not share eg butter, spreads, chopping...
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