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sydneysmommy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by sydneysmommy

  1. sydneysmommy
    I am so frustrated. Frustrated with doctors and society in general that take this diagnosis SO lightly. Isn't it true that if you have a sibling, parent or child with celiac disease then you SHOULD be tested for it?????? I was diagnosed via endoscope 10 years ago, and I was only 21. At that point my GI said it was pretty "advanced", and even back then...
  2. sydneysmommy
    I haven't read everyone's replies and I bet they all have a lot of different and good things to offer you. So I hope I'm not being redundant. I think, like you said, you know what to do. I wont say "told you so" bc I think you're kicking yourself a little too hard. You know what that kind of negative self talk and stress will do to you on TOP of...
  3. sydneysmommy
    Open Original Shared Link I saw his facebook page before it was removed. he boasted about serving customers regular pasta after they requested gluten free and laughed about it calling them "experimental projects" bc he thought gluten intolerance was a joke. One of his 'friends' did pipe in and post "have you ever heard of celiac disease. it will make...
  4. sydneysmommy
    I generally cannot eat prior to running anyway because it gives me cramps/side stitches... so I don't think that's the problem. I usually wait about 2 hours after I've eaten to run. And don't eat much in the day anyway. I'm a grazer during the day. But have larger meals after my workouts. I feel like it's the adrenaline that causes the problems. It...
  5. sydneysmommy
    I am a runner, and run many races from 5ks to marathons. It has been a constant uphill battle since I cannot train with your average running 'groups' (ideal) bc of my health problems and schedule conflicts. For one, I am a fulltime student, mother, wife and stay busy so my schedule is constantly changing. I run when I CAN! That said, my body and my gut...
  6. sydneysmommy
    Lately I have been VERY sensitive to any kind of contamination or cross contamination. Meaning, I am showing immediate and obvious/strong ill reactions after the slightest ingestion of gluten. Just the tiniest flake of wheat germ or slight dusting of it on the table-to-my-food-in-my-mouth kind of a thing. It NEVER used to be like that. I have 2 kids and...
  7. sydneysmommy
    I don't have a lot of advice, as I'm dealing with some difficult school as well. Your son was diagnosed. I'd love to have my girls' school cooperate with me on their diets and lactose free issues but I have to fight red tape and jump through hoops to get them to deal. Yet everyone seems SO UNDERSTANDING and cautious if a kid has a nut allergy. All I wanted...
  8. sydneysmommy
    So I put my foot down like so many of you suggested and went to the children's hospital full steam ahead to get my 22mo tested for celiac (distended belly, fussy, chronically ill, small arms and legs, 10th percentile weight and height, always fussy following eating, seemingly lactose intolerant etc. ps. I have celiac disease... obvious red flag). GI specialist...
  9. sydneysmommy
    I've seen that a lot of people get very harsh reactions to being glutened (throwing up, sick for weeks etc). That's awful. Luckily, I havent had such a bad reaction as that since I was first diagnosed. But I am wondering if it is normal, or if anyone else is like me? Whereas, if I get contaminated or ingest gluten I feel immediate pain in my lower...
  10. sydneysmommy
    In the past 2 months now I have been contaminated by foolishly believing a restaurant's statement that they serve gluten free items. We even carefully ask if they are made on seperate cooking pans/ovens etc and are reassured! At one point I was literally served the wrong bread and it was too late. The waitress felt SO bad and I could tell she was panicked...
  11. sydneysmommy
    Your child's symptoms sound so similar to my youngest. thin arms and legs, very large belly. we switched to lactaid and that made a big difference but when we feed her gluten free meals we see an even BIGGER difference than when she eats regular meals with gluten (her stomach swells almost immediately, to the point she cannot fit into her highchair/tray anymore...
  12. sydneysmommy
    Thank you all. I am calling in 30 minutes to leave a message with the GI department at our children's hospital. According to our local magazine, it has the best pediatric gi there. I'll have them both tested next week if it kills me. My question is if they are negative (though I strongly suspect the little one has celiac disease), how do I have...
  13. sydneysmommy
    I am 30 and was diagnosed with celiac disease 9 years ago after suffering my entire life (since I was around 5) with chronic illnesses. I was a sick child my whole life, and it made things so difficult for me. (ear infections, joint problems, asthma, anxiety, insomnia and migraines starting when I was 7 & 10, and I caught everything going around and...
  14. sydneysmommy
    I am 34 weeks pregnant and so far, have had a successful pregnancy staying away from gluten. No major cravings up until NOW. I am SO close to the end, why did it get me now??? the thought of certain foods makes me literally ILL. i've had to resort to just eating brown rice and vegetables bc I cannot stand touching raw meat or cooking it. kinnikinnick...
  15. sydneysmommy
    it is entirely possible to be celiac or gluten intolerant, but you wont know for sure without being tested. (and you wont get true results if you test while on a gluten-free diet). your symptoms are linked to celiac disease, but keep in mind, there are SO many symptoms and the one biggest indicator is gut problems. (but i also have had insomnia since...
  16. sydneysmommy
    I have known for 8 years that I have Celiac Disease. It has been very difficult adjusting to this lifestyle (as i call it) after getting the diagnosis as an adult (who looooooooooved italian food!). Now that I am a mom (I have a 3yo girl and another girl due June 2), and know that Celiac is genetic, I do want to test my children. My 3yo daughter hasnt...
  17. sydneysmommy
  18. sydneysmommy
    i found several of my shampoos and lotions had wheat protien in them. my fault for not paying close attention to the fact that its not just food i should watch out for. well now ive eliminated those products but now i found one of my shampoos has "wheat amino acid". i have no idea what that is. anyone know what it is. safe? not safe? ...
  19. sydneysmommy
    i HATE the upkeep with my teeth. its an ongoing battle despite flossing and brushing 2-3x a day. and a HEALTHY diet to booth! but your dentist can actually prescribe a toothpaste for you, which is gluten free, and it has TONS of extra flouride in it. it reeeeeeeeeeeeeeeeeeeeally helps.
  20. sydneysmommy
    I have had horrible insomnia since i was a child. age 7 or 8. im now 27 [diagnosed with celiac when i was 21]. the insomnia got better during pregnancy but that is the ONLY time i remember being able to sleep. but i think its just because pregnancy mAKES you tired. even as a kid, i recall that the slightest noises kept me up or awakened me. when i was...
  21. sydneysmommy
    thats interesting. thank you! i got the magnesium... to help with my fibro pain and heard about the melatonin as well. ill try this!
  22. sydneysmommy
    im planning to get pregnant and need to get off of Lunesta, which worries me...and im nervous. as i have SEVERE insomnia. this has been a problem since I was around 7-8 yrs old. [i am now 27]. i have been researching herbal remedies and vitamins to help [also with my migraines]. and am wondering if anyone here takes anything they swear by. b2 riboflavin...
  23. sydneysmommy
    I was diagnosed in 2001 with Celiac Disease and then [lucky me] Fibromyalgia in 2005. We are planning to try and concieve our 2nd child soon, so I'm prepping myself to GET pregnant. I know, with my issues, its a process to a process. so. My concern... is that. I'm on some LIFESAVING prescriptions lol! and I recall that 2.5 years ago it was such a painful...
  24. sydneysmommy
    no no no.... eating gluten will NOT increase chance of miscarraige! rest assured your baby will be okay! but you should call your dr who is doing the endoscopy and let him know about your pregnancy so you can do a blood test to confirm celiac instead of endoscopy! congratulations!!!!!!! pregnancy & celiac can work! and eating gluten will not hurt...
  25. sydneysmommy
    I was diagnosed in 2001. And I am really frustrated as I had been having some more problems [getting full very fast etc] so my doc did an endoscope AND colonoscopy [had some other stupid issues as well] and come to find out... i have TONS of sprue active in the upper intestine!!!! HOW!!????? i am soooooooooooooooo gluten free it isnt even funny...
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