Mabc
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Latest Celiac Disease News & Research:
Everything posted by Mabc
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ARCHIVED Numbness And Tingling In Legs, Fingers, Tongue
Mabc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone. I went gluten free for several months and then tried adding gluten to test myself. I didn't really have any GI symptoms, so I continued eating gluten. I have developed numbness and tingling in my legs, fingers, tongue and lip. It didn't hit me til just now that maybe that is from the gluten. I remember reading that after going gluten free... -
ARCHIVED Please Tell Me What You Think
Mabc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
After suffering for many years with various health problems, I finally found out a lot of my symptoms matched possibly celiac. So in May I went gluten free and for 6 weeks I had lots of improvement. Then I decided to go back on gluten to see what happened. Within one day all my symptoms came back, especially brain fog and an achey feeling in my brain ... -
Are tortilla chips or corn tortillas at mexican restaurants safe? Is cheese dip safe generally? Thanks!
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ARCHIVED What, Oh What, Am I Doing Wrong?
Mabc posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi all, After being gluten-free for about a month, I think I may have been glutened a week ago because I had to go out of town and eat at a restaurant. I tried really hard to pick non-G food. I developed really bad hemorrhoids, what seemed to me to be mild C, and having a hard time getting over those. It is taking so long that I'm wondering if I'm... -
ARCHIVED Are Hemorrhoids A Sign I've Been Glutened?
Mabc posted a topic in Coping with Celiac Disease
I am working really hard to make sure I stay gluten free, but for some reason I got the bad H's last weekend. Sorry for the gross topic. Is this a symptom of being glutened? -
Thankyou very much. I really appreciate the link and the other comment. I'll check it out.
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ARCHIVED Brain Fog?
Mabc replied to Super Bellybutton's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not definitely diagnosed celiac yet, but I DO know without reservation that going gluten free has lifted my fog. It is the most amazing thing to not dread eating. Everytime I used to eat, I braced myself for that awful fogging over and unwell feeling in my brain. I am hypoglycemic and had tried going sugar free but always got much sicker trying that... -
I'm wondering what other people's experience with ataxia has been because I've never found anyone else who has it. I am improving in some wonderful ways gluten free, but as of yet my ataxia has not improved. Of course, I would expect it to take much longer. I'd like to know how this symptom is for others and how long it took to improve after you went...
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ARCHIVED Please Give Me Your Advice
Mabc replied to Mabc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Monica, Robbin and Leah, Thanks! I really know what you mean about sort of pretending I'm okay to the world even though I'm suffering a lot! I don't want to be a complaining wimp either, and I often feel I'm living a lie in a way. When I think about how the real me feels compared to how I try to make it look it is a huge difference. I want to... -
ARCHIVED Please Give Me Your Advice
Mabc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In my early 20's I got severe C and diagnosed with IBS. I got no real treatment and no further tests and was sent home to suffer through it. Then late 20's hypoglycemia - "drink a coke" said the doctor. 30's got very very sick and could barely walk with severe fatigue, brainfog etc. I became disabled and still verrry fatigued. Diagnosed with CFS, the... -
Hi Rachelle, I became very ill with symptoms like you describe and had the same trouble with doctors. They are good at what they know, but nutrition issues and body chemistry, they just dont' seem to be able to help. I can't get any doctor to help either. I have hypoglycemia and I have learned that if your blood sugar drops too rapidly, even if it...
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ARCHIVED Is Dr. Pepper Gluten Free?
Mabc posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I just realized it says "Artificial flavors and colors." Has anyone already researched this one? This might be a dumb question...I'm still learning! Thanks so much for any info. I'm still so new to this and thought all soda pop was okay. Melodi -
Oh, that's really beautiful! Thanks for sharing it. It does help to think of it that way! I know I am learning a lot from my struggles and am becoming more understanding of other's weaknesses. Melodi
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ARCHIVED Ibs Leads To Other Diseases....
Mabc replied to danikali's topic in Coping with Celiac Disease
I don't know how to quote yet, but I agree, "(yeah, you would be anxious too if you were sick and your doctors didn't care)" I think IBS is a lot like a CFS diagnosis (I've been dx with both). If I have chronic fatigue, help me find out WHY? It's sort of like if you break your leg and they call it "leg hurting syndrome" and do nothing to make it better... -
ARCHIVED Almost Had To Go To The Hospital
Mabc replied to Celia the Celiac's topic in Coping with Celiac Disease
I just wanted to throw in another possibility. If I drink anything with Nutrasweet in it my brain goes haywire and dizzy. I wonder if the Sprite was sugarfree. I also have hypoglycemia and that definitely sounds like a possibility to me. Maybe it was more than one thing that zapped you. I'm glad you're doing better. I know how frightening that... -
I looked this up on google, "Dutch process chocolate is chocolate that has been treated with an alkalizing agent to modify its color and give it a more mild flavor. It forms the basis for much of modern chocolate candy. It is used in ice cream, beverages, and baking. The development of the Dutch process by Dutch chocolate maker Conrad J. van Houten,...
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ARCHIVED Is There A Safe Drive-thru Food I Can Eat?
Mabc replied to Mabc's topic in Gluten-Free Restaurants
Thankyou thankyou thankyou! -
Help! Is there a safe drive-thru food anyone knows of? Are taco chips at Taco Bell okay - like Nachos? Melodi
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ARCHIVED How Many Of Us Are Df, gluten-free, Sf, Ef, Cf, Etc. ?
Mabc replied to marciab's topic in Coping with Celiac Disease
Hi Marcia, I'm currently only gluten-free but I'm pretty sure there are other offenders out there. I can't afford tests with alternative labs so I have to do it the elimination way I guess. I don't know if regular doctors can test for intolerances or not - can they? I know they can do allergies but I figure that's different. My sister was able... -
ARCHIVED After Being gluten-free For 8 Months, I Am Pretty Sure That I Am A Celiac.
Mabc replied to marciab's topic in Coping with Celiac Disease
How frustrating for you! I'm sorry I have no answers. I'm so new to this. I have so many weird symptoms and it's frustrating to not know who the enemies are. Hang in there. Maybe someone will have some answers for you. Melodi -
Hi Clover, I know what you mean about feeling like it was because you aren't "being good to yourself." What this translates to is "It's all your fault." I can really relate! I think that all the pain I have experienced physically is matched emotionally by being made to feel that I am the problem. Somehow I don't think right or eat right or feel right...
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ARCHIVED After Being gluten-free For 8 Months, I Am Pretty Sure That I Am A Celiac.
Mabc replied to marciab's topic in Coping with Celiac Disease
Marcia, I've been gluten free for about 8 days, but I slipped up somewhere in the middle...so. Yes, I have that exact same tape playing in my head!! However, I'm starting to try to reprogram myself that even though I may not have power over the big picture cause I don't even know for sure what is broken in my body, I do have power to do what I CAN do... -
Hi! I'm new here too. I am not diagnosed yet, but my symptoms seem to match celiac, and I'm trying the diet to see if my symptoms improve. Sore throat is one of my symptoms. My illness became much more severe 8 years ago when my sinuses started acting funny. I've had a sore throat (and other icky stuff) ever since 24/7/366 Anyway, I'm hoping my...
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ARCHIVED After Being gluten-free For 8 Months, I Am Pretty Sure That I Am A Celiac.
Mabc replied to marciab's topic in Coping with Celiac Disease
Hi Marcia, Your story is a lot like mine. I too have had seizures though lately all I have is the feeling that I'm about to have one - my muscles/nerves (?) feel like they are at their threshold. I have been disabled by CFIDS since 1998 and I've learned I can't get help from docs - though mine is nice, he just has no ideas. He never recommends anything... -
ARCHIVED Can Sore Throat Happen After Gluten?
Mabc replied to Mabc's topic in Coping with Celiac Disease
Oh, thanks so much. I'm hoping that this will finally be a way I can have some control over my symptoms. I haven't noticed a great improvement yet, but if the sore throat could be caused by it, then maybe some of my other symptoms will go away over time. I appreciate the help thanks so much.