kenyonsmommy

I had to have another blood test, where he checked for other antibodies. I'm not sure what exactly, but he told me it was negative for celiac. He did alot of research to figure out what to do, as I was the first patient he has had with Selective IgA deficiency, and my son was his first pediatric celiac patient, he had some adults, but no children. He was...

It concerns me that part of a test could come back positive yet they would still say negative results. I was tested last year, as was my father, after my son was diagnosed. Both came back as "negative". I have the same dr as my son, and since he was so proactive in diagnosing my son, I have to trust him on the bloodwork. He did find that I have selective...

I already know he is gluten intolerant, he was diagnosed last year by blood and biopsy. I think he will have to have a biopsy of the DH. The rash has now gotten worse, the blisters are larger and are cover his groin, mostly on his testicles. He has not been itching them and does not complian about them, but they look awful. I asked for a referral to the...

My son just had his three year old check up, where they retested his blood for IgA. Its been 7 months since his diagnosis. The post card came back that his level was 1.0, which they marked with a big red smiley face and circled "were within normal limits". Does anyone know what normal limits are? I was surprised that they came back low, because recently...

My son is almost three and has been gluten-free for almost 5 months. It took almost a month for them to look normal. He still goes back and forth between really bad smelly mushy poop to solid normal poop. This is probably because mistakes are made every once in a while, we just had an issue with sherbet, which he loves, but it seems Perry's has malt flavoring...

I forgot to mention that they also have gluten-free pasta dinners during those hours too. For anyone familiar with the area, it is on route 96 going east about a mile past eastview mall on the right. I'm hoping they get enough business to continue, It has been a big deal for us to be able to order pizza again!

For anyone near Rochester, Ny, there is a pizza place in Victor called Leonardo's that is now making gluten-free pizza . The owners have a child who is on a gluten-free diet so they created a pizza that is pretty good, I've tried it and its amost like regular pizza. It comes as a small for about 10 bucks. They only sell it on Fri and Sat nights from 4...

I recently learned that our insurance company, preferred care, will reimburse us up to 2,500.00 a year for my sons gluten free foods. i confirmed this with preferred care and now my doctor is calling them to verify that he does have celiac. Has anyone used this before? I'm wondering what guidelines they will have for the food, if anyone has had problems...

Glad to hear you both made it through, I know it was difficult. Hope you get good news with your results!

Thats great, thanks!!

anybody know anything about Friendly's ice cream?

I was told that the new boxes of Trix are gluten free, what ever that means. I saw some different looking boxes big lots one day, these boxes did not look like the one I bought, they were not as coloful I guess. We dont eat cocoa puffs, but I did find the Dora the explorer cinnamon stars today that are gluten-free as well. they were pretty good. I'd get...

I can tell you that my son, who started having symptoms in December 05 and was finally diagnosed in May, was MISERABLE. He had been a very happy kid, easy going and turned inot a very unhappy child. he cried all the time over everything. When he turned two this January, I thought maybe it had something to do with just being two, but I have a 5 year old...

It is absolutely not wrong for you to want to know what is wrong with your son and how much damage has been done to his body. In the long term, the more knowledge you have, the better you can help him. The whole procedure did not take that long, and I swear he had no knowledge of it, other than he got a toy afterwards. Bring some very chilled juice, or...