BeckyW
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Latest Celiac Disease News & Research:
Everything posted by BeckyW
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My daughter recently tested positive for Celiacs on bloodwork, neg biopsy and has 2 genes for Celiacs. She has been gluten-free for over 2 weeks and has made some progress some days and then some days she seems worse. I believe there are other foods causing problems as I have read many people have problems with. She has been dairy free now for about 1...
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ARCHIVED Are These Symptoms Possibly From Gluten?
BeckyW replied to Lymetoo's topic in Coping with Celiac Disease
I get hand and feet numbness and tingling when my calcium levels are low. I had my thyroid removed in February and I am not producing calcium and have to take mega doses of calcium daily. Not sure about the kidney pain though. Have you had a blood calcium level checked? Hope this helps! -
ARCHIVED Appetite Stimulant
BeckyW posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, my daughter was recently given a RX for Periaetin to help stimulate her appetite. She has lost alot of weight since Christmas and is having a hard time eating. She has only been gluten-free for about 2.5 weeks and showing a small improvement. The doctor is worried about her low weight and wants her to gain so he gave her this medicine. We haven't started... -
ARCHIVED Aol Instant Messenger
BeckyW replied to guitarplayer4God's topic in Introduce Yourself / Share Stuff
Thank you for letting me know -
ARCHIVED Positive Blood Work And Negative Endo. Biopsy
BeckyW replied to BeckyW's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your responses. I know she does not have an eating disorder. I'm not sure what the Doctor wants to ultrasound, I will find out more tomorrow when they call to schedule. I was just too schocked that she tested negative. The blood work was Tissue Transglutaminase Ab.IgA of 17.9 with above 7 a positive and Endomysial IgA screen of 16.7 and... -
ARCHIVED Positive Blood Work And Negative Endo. Biopsy
BeckyW posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My daughter tested positive on 2 blood tests for celiac disease. They scoped her and got a negative biopsy so they will not say she has celiac disease. She has dehydration, losing weight, bloating, gas and nauseous feeling. The doctor says she does not have all the classic celiac disease signs (the low anemic, calcium levels, etc). Her blood work came... -
ARCHIVED Do You Have To Be Anemic To Have celiac disease?
BeckyW replied to BeckyW's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you all for your replies, help and support! This message board is just wonderful. I have learned more from everyone than the doctor! This is the second doctor I took my daugther to and he was much better than the first. The first said she was anorexic and I told him he was wrong! Hopefully we will find out the biopsy results the beginning of... -
ARCHIVED Do You Have To Be Anemic To Have celiac disease?
BeckyW posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, we are new to celiac disease. They think my teenage daughter may have it. She tested positive on the Ttg and had a biopsy today. She has lost so much weight and is malnourished and dehydrated. Everything at this point that she eats is making her sick. We are waiting for the biopsy results next week for the "real" diagnosis. The doctor keeps saying... -
ARCHIVED Tissue Transglutaminase Ab.iga Results
BeckyW posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, we are new to celiac disease. I was wondering if anyone can tell me if 17.9 is considered a high result for the Tissue Transglutaminase AB.Iga test if 7.0 and greater is positive? This message board has been so helpful!