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GlutenWrangler

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Everything posted by GlutenWrangler

  1. GlutenWrangler

    Thank you! It's been a while since I've logged in, so I'm just seeing it now. I hope all is well!

  2. GlutenWrangler

    Happy Birthday Sweetie!!!

  3. GlutenWrangler

    Happy birthday and may God bless you today!

  4. GlutenWrangler
    I've never heard of this. It doesn't seem too likely to me. I definitely wouldn't worry about it. -Brian
  5. GlutenWrangler
    I'm from Western Massachusetts too. Westfield, actually. Choice Health in Westfield has some gluten-free products, along with the local Big-Y and Stop & Shop. But the best place in the area is definitely Whole Foods in Hadley.
  6. GlutenWrangler
    How long have you been on the gluten-free diet? Is it possible that you're accidentally consuming gluten? If not, you may have other food sensitivities. -Brian
  7. GlutenWrangler
    Ok, well thanks again. I'm going to write in and see what they have to say. I'll have to report back when I get a response. -Brian
  8. GlutenWrangler
    WW340, My vitamin and mineral levels have been low too. I also have a lot of problems with my electrolyte levels. I have to have mega doses of sodium and potassium in my IV Nutrition to keep my levels up, and they still dip below normal. My symptoms include abdominal pain, bloating, gastroparesis, malabsorption, diarrhea, fatigue, and skin manifestations...
  9. GlutenWrangler
    I'm glad to hear that the gluten-free diet has helped you out so much! It definitely sounds like it would be a good idea for you to commit to the gluten free diet for life. It's great how the gluten-free diet ends up forcing you to cook healthier and tastier things for yourself. Unfortunately, I don't know anything about Thai food, but I'm sure someone will...
  10. GlutenWrangler
    Gabby, Thank you for your reply. I appreciate it very much. I try to keep a positive attitude. After all, as bad as it seems, it could be much worse. I just try to be grateful for all of the positive things in my life, so it doesn't really get to me too much. I don't know if I'd be a good motivational speaker! But I would like to help people who find themselves...
  11. GlutenWrangler
    Thank you so much, C! You're the best! (But you already knew that)
  12. GlutenWrangler
    Thanks for the links. I've done a lot of research on Eosinophilic Disorders, but I've never really heard anyone's experiences with it. I think that my case is pretty severe, because I'm unable to eat anything at all. The kid from the article was still able to eat, although he definitely had a lot of problems with food. I saw my doctor today, and she actually...
  13. GlutenWrangler
    Greg, I'm so sorry to hear that. I think I can speak for us all here when I say that we wish you the very best through this very difficult time, and if you need anything at all, we are here for you. And thank you very much for sharing that valuable information with us. Good luck with everything. My thoughts are with you. -Brian
  14. GlutenWrangler
    Blood tests are notoriously inaccurate for allergy testing. If you're feeling that tired after eating certain foods, you're most likely either allergic or intolerant. I have had the same exact reaction to foods that I'm allergic to. Skin prick testing is much more accurate for food allergies. If you haven't already, you might want to see an allergist. If...
  15. GlutenWrangler
    I was thinking about how crazy it is that in two months from today, it will be two years since I've had anything to eat. That's 730 days with no food, and still no diagnosis. I'm not complaining about it though, because I'm much happier and healthier than I was when I was still able to eat. Although I did think that I would have a diagnosis by now. It's just...
  16. GlutenWrangler
    Many people go through a period of worsening symptoms when they start the gluten-free diet. Now that your body is no longer being assaulted by gluten on a daily basis, it has the opportunity to purge itself of all of the toxins that have built up over time. On top of that, many people also experience gluten "withdrawal". This process can make symptoms much...
  17. GlutenWrangler
    Enterolab cannot diagnose Celiac Disease...only gluten sensitivity. For $99 you will be tested for gluten sensitivity. It is up to you to decide whether or not you believe that Enterolab testing is credible. Blood testing and biopsy are the standard testing methods for Celiac Disease. Stool testing is a new, and unproven method. Dr. Fine from Enterolab has...
  18. GlutenWrangler
    I definitely understand what you're going through. I went through the same thing. I initially improved on the gluten-free diet, but then multiple food allergies began to surface. I dropped weight rapidly. Eventually I dropped down to 105 pounds. I was literally starving to death. I was finally hospitalized, and put on IV nutrition. That was almost 2 years...
  19. GlutenWrangler
    Definitely a cash grab...and it is completely unnecessary. Like Lisa said, if you got sick from gluten, it will run its course. There's no use in wasting your money. I can't stand these health care "professionals" who prey on sick people just to make a buck. It is so sleazy. -Brian
  20. GlutenWrangler
    Alison, In my opinion, you shouldn't bother going through Enterolab. Their testing methods aren't proven. Dr. Fine still hasn't gotten around to publishing his research, after years of saying he's "about to publish". There's a reason for that. You already know that your son has issues with gluten. Putting him back on gluten will just cause him to suffer...
  21. GlutenWrangler
    If you don't follow the diet, you are setting yourself up for some major issues in the future. Celiacs have a higher risk for cancer than non-Celiacs. The only way to reduce that risk is to faithfully follow the diet. Even if you do not have symptoms, you are damaging your intestine each and every time you choose to eat something with gluten. In time, you...
  22. GlutenWrangler
    No, not really. An evolutionary biologist can't really help us at all with this. The only person who CAN help us with this is Dr. Fine, who refuses to publish. So in this instance, like most other instances, 'peer reviewed' would be worth a hell of a lot, especially to us. Peer review is essential to the advancement of medine. It is an essential communication...
  23. GlutenWrangler
    I went to U-Mass. There's definitely so much for us gluten-free people out there. It's a great area. I live in Westfield, but someday I'd like to move up there. -Brian
  24. GlutenWrangler
    Many people go through what you're dealing with. It takes a while to make the adjustment and accept what your life is going to be from now on. Becoming gluten-free is a lifestyle, but it's not a death sentence. There are plenty of restaurants with gluten-free menus out there. Some of the major chains that have gluten-free menus include: Outback Steakhouse...
  25. GlutenWrangler
    By the way...I'll make a post about it in the Moderators Only forum to see whether or not Scott is on board. I'll let you know as soon as I find out. -Brian
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