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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- RMJ replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease18
Refractory Celiac disease - what to do
Antibodies to Deamidated gliadin peptides. It is another celiac antibody test. The main test is the one you had, TTG, But a full panel will also include DGP IgA and IgG. I was positive on all of them! -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease18
Refractory Celiac disease - what to do
@RMJ what is the DPG test? I think my doctor never had me do that -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease18
Refractory Celiac disease - what to do
Thank you @Scott Adams and @trents this is very helpful, and I think I have some solid ideas to bring to my doctor (corticosteroids, testing for chron’s, increasingly strict gluten-free diet) @RMJ thank you this is definitely reassuring as well, I’m feeling frustrated and hopeless because I have gone through a similar progression of increasing strictness, an... -
- knitty kitty replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms22
High IGA antigliadin, everything else normal, what does this mean?
Welcome to the Tribe! Take the Celiac diagnosis and run with it! P.S. Yes, adopting a gluten free diet is a big mental adjustment. Many go through the five stages of grief. Many are relieved to have a definitive diagnosis instead of being a walking medical mystery. The forum here can help with lots of articles and years of experience to get you... -
- SMK7 replied to SMK7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms22
High IGA antigliadin, everything else normal, what does this mean?
This was the advice from the GI physician: "We discussed that your work-up is equivocal for celiac disease due to discordant serologies and biopsy results. As we discussed the gliadin DGP Ab IgA has a lower sensitivity (87%) and specificity (80-95%) for celiac disease compared to tissue transglutaminase Ag IgA (sensitivity of 95%, specificity of >...
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