No popular authors found.

Categories

No categories found.


Join Celiac.com's forum / message board and get your questions answered! Our forum has nearly 1 MILLION POSTS, and over 62,000 MEMBERS just waiting to help you with any questions about celiac disease and the gluten-free diet. We'll see you there!






Follow / Share


  FOLLOW US:
Twitter Facebook Google Plus RSS Podcast Email  Get Email Alerts

SHARE:

Popular Articles

No popular articles found.
Celiac.com Sponsors:

Gluten Causes Brain Disease! By Prof. Rodney Ford M.B., B.S., M.D., F.R.A.C.P.

This article appeared in the Autumn 2006 edition of Celiac.coms Scott-Free Newsletter.

Celiac.com 12/11/2006 - Yes, thats what I think. Gluten-sensitivity is a disease of your brain and nerves.

The gluten puzzle
I have come to this conclusion after studying the effects of gluten on my patients for over a decade. I am a pediatric gastroenterologist and allergist. I run a busy clinic for children and their parents. I have been increasingly concerned by the large numbers of my patients who are affected by gluten. I was perplexed by their wide-ranging symptoms. The puzzle was to explain how gluten could cause so much ill health to so many people in so many different ways, including celiac disease.

Faulty brain control
Eureka! The solution came when deep in discussion with my friend and colleague, Ron Harper, Professor of Neurobiology, UCLA. We were both struggling with the concept of multiple symptoms that needed to be explained. The answer appeared absurdly simple: disturbed "brain control". It suddenly seemed obvious—gluten could disturb the neural pathways of the body. Gluten was gradually damaging the brain and the nerves of susceptible people. It was the brain that was the common pathway for the manifestations of all of the gluten symptoms. So I set out to research what the world medical literature had to say.

Is gluten a neurotoxin?
I felt excited. I reviewed my patients in this new light—I began looking for a brain-grain connection. I began to see gluten as a neurotoxin—this could provide a universal model of gluten-sensitivity. This toxicity might act through inflammatory mechanisms or cross-reactivity with neurons. I began accumulating the evidence for my proposal that gluten-sensitivity is a brain and nerve disease.

"Full Of It!"
The concept of "Full of it" developed from the stories from my patients. I wrote my hypothesis down in a book now called Full of it! It refers to our diets being full of gluten; to the world being full of gluten-sensitive people; to the medical practitioners who are so skeptical of adverse reactions to gluten; to the enthusiasm of people who are feeling vibrant again on a gluten-free diet; and to those who are brimming with hope that the problem of gluten has now been recognized.

Food allergy skeptics
As a junior doctor I decided to formally research the food allergy phenomenon. I was awarded a research post and carried out the first comprehensive food allergy studies in New Zealand. I triumphantly demonstrated that food allergy was both a real entity and that it was common. But, to my disappointment, my colleagues were reluctant to believe me or my data. They professed a "disbelief" in food allergy. This surprised me as I had the research data.

My next step was to conduct four more years of investigation of food allergy in Australia (at the Royal Childrens Hospital, Melbourne). This was a bigger and more elaborate study. My Doctoral Thesis (1982) based on this work is called: Food hypersensitivity in children: diagnostic approaches to milk and egg hypersensitivity. Since then I have continued my investigations into food allergy—but still today (25 years later) medical skepticism abounds. This "disbelief" is held despite the vast body of research describing food allergy. There seems to be an underlying unwillingness for doctors to consider food allergy as a possibility. Unfortunately, this also applies to gluten reactions.

The shocking truth
The shocking truth about gluten is that gluten foods are causing tremendous damage—but currently this is going mostly unrecognized. Unfortunately, gluten grains have become our staple diet. The quantity of gluten in our food supply has been steadily increasing. Yet worse, official Health Policies endorse gluten grains as the foundation of our food pyramid.

Medics turn a blind eye
Gluten is sapping the energy and wellbeing of countless millions. To date, the medical profession has turned a blind eye to glutens wider problems whilst focusing all of their attention on the narrow problem of celiac disease.

A typical story
I received emails like this every day:

"Dr Ford, I have emailed you a number of times regarding our two children.

I thought I should let you know that since going gluten free for the last three months, at last our son and daughter have put on some weight.

If I had kept them on a normal gluten diet (which they recommended at the hospital) we would be still be having the headaches and sore tummies as well as the bad moods which our son would have. People just thought he was a naughty child, but now he is so different - we can talk to him without getting into any fights.

I congratulate you for all your efforts on bringing gluten intolerance to the media and medical profession. More children and their families may find long awaited help. We have had to put up with this for seven years! At long last there is light at the end of the tunnel. Kind regards, Sue and Garry."

Can gluten damage your brain?
I believe that gluten was actually causing these two children to be sick. That is the explanation for their "naughty" behavior, their moods and their headaches.

I postulate that gluten can damage your brain. I have come to this conclusion by the abundant circumstantial evidence from my observations of my patients who are gluten-sensitive. I have pondered the next questions: "Why do they have such an array of symptoms from gluten?" "Why do they recover so quickly when gluten is removed?" And "Why do they deteriorate so rapidly when only tiny amounts of gluten are eaten?" The concept of a brain/nerve disease can explain everything.

The brain/nerve hypothesis
"The symptoms from gluten occur through its action on the nervous system".

I propose that gluten-sensitivity is a brain condition. Each and every organ in your body has some form of brain/nerve control. I propose that gluten can injure the delicate nervous networks that control your guts functions. A malfunction will subsequently lead to all of the gut symptoms that have so well been described. In addition, gluten can also directly affect brain function, which leads to the primary neurological symptoms that are so commonly seen with gluten-sensitivity.

What is new?
There are a number of new ideas that I put forward. These are based on circumstantial evidence. They produce a unifying theory of the symptoms that are attributed to gluten toxicity.

  • A brain disease
    I consider that gluten-sensitivity is mostly a neurological problem. A major contribution to this debate is the realization that the brain has a central role in the expression of the symptoms that have, until now, been attributed to the local toxicity of gluten in the gut.
  • A nerve disease
    I propose that gluten-sensitivity is a nerve disease. There is a gigantic network of nerves that controls every function that your gut is programmed to do. There are as many nerve cells in your gut as there are in your head! (about 25 billion nerve cells). I call it your tummy brain (or gut brain). Your tummy brain can be directly damaged by gluten reactions. This is the cause of so many sore tummies and bowel troubles.
  • A wide spectrum of neurological manifestations
    For decades, there have been reports of unexplained brain and nerve symptoms which are associated with celiac disease. Although these associations have been described, there has been no universal mechanism proposed. However, if gluten is seen as a neurotoxin, then the explanation has been found.
  • A very common disease
    Reactions to gluten have recently been documented to be extremely common. About one-in-ten people (as ascertained by blood donor studies) have high levels of gluten antibodies in their blood. My clinical studies have arrived at this same high number of gluten-sensitive people. Others have data to show that it is even more prevalent.

Am I full if it?
You might ask, "Is he full of it?" Yes, I am full of excitement and hope for the future. So many people can now be helped, if only this information can be widely distributed. I am full of ideas and full of enthusiasm. I hope that you are full of hope for your healthy and vibrant future.

Tariq's story:

"Dear Rodney,

Thank you for your care and support of my family in regard to our allergies, gluten sensitivity and celiac disease that exists within that framework.

My son Tariq, who is nearly 12 years old, has been a patient of yours over a number of years for his multiple food allergies. Tariq also suffers from dyslexia. Over the last several years Tariq has been becoming increasingly tired, lacking in energy and motivation, struggling with school work and constantly scratching due to his eczema and rashes covering all of his body.

During this time, even though he has attended soccer training up to four times a week he somehow gained a lot of weight. Tariq was constantly grumpy and had low mood levels.

Two months ago you diagnosed Tariq with gluten-sensitivity (his tTG 4; IgG-gliadin 86; IgA-gliadin 9).

Tariq was extremely reluctant to go on a gluten free diet. But as the rest of the family had gone gluten-free—so he was forced also to become gluten-free.

The changes that a gluten-free diet has evoked in Tariq have been astounding. His energy levels have increased, his skin has vastly improved, he has lost a lot of his excess weight (even though his appetite has increased) and he has shown improvement in his dyslexia.

Tariq is not as grumpy as he was and his mood levels have improved. Tariq is now vigilant about gluten and can see the differences it has made to his life and the quality of it.

Also, the other soccer parents have noticed a vast improvement in Tariqs energy levels and speed. His teacher has also noticed a big difference.

Thanks again.
Regards, Rosemary"

Are you affected?
The shocking truth is that gluten can damage your brain and that so many people are being encouraged to eat gluten-foods that might be steadily eroding their health and energy. If you have any lingering doubt about your own health, then I suggest that you check out the possibility of gluten-sensitivity.

If you have any comments or questions we would love to hear from you.

Dr Rodney Ford is a Pediatric Gastroenterologist, Allergist and Nutrition Consultant. He has been Associate Professor of Pediatrics at the Christchurch School of Medicine, University of Otago. He runs a busy Childrens Gastroenterology and Allergy Clinic in Christchurch, New Zealand. He has written over a hundred scientific papers including book chapters and books. www.doctorgluten.com

This includes a series of five books on gluten: why it can make you ill and how to go gluten-free.

  • Are You Gluten-Sensitive? Your Questions Answered
  • Going Gluten-Free: How to Get Started
  • The Gluten-Free lunch book
  • The book for the Sick, Tired and Grumpy (Gluten-Free kids)
  • Full of it! The shocking truth about gluten (The brain-grain connection - ISBN 978-0-473-10407-8)

Celiac.com welcomes your comments below (registration is NOT required).



Related Articles




Spread The Word





68 Responses:

 
Mary Canby
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Oct 2007 9:52:37 AM PST
Please have this published MANY places, for our public to read!
(Comment Replies Disabled)

 
an unknown user
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Oct 2007 9:18:45 AM PST
Hmm... the Roman 'bread and circuses' come to mind... Did the Romans see the connection and get their populace fat, dumb, and happy with gluten? Makes me wonder...
(Comment Replies Disabled)

 
JJ Diambrini-Palazzi
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 May 2012 7:18:56 AM PST
I think you're spot on!
(Comment Replies Disabled)

 
Charleen Jones
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Nov 2007 9:39:14 PM PST
The article was very informative and gave me something to go forward with. While I don't think that I'm a celiac, I do believe that I am gluten sensitive. I also believe this can be my husband's problem too. Thank You very much for this life changing information.
(Comment Replies Disabled)

 
Sara
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
09 Nov 2007 6:07:24 AM PST
I am on the gluten free diet after about a year and a half of suffering from the symptoms of celiac disease. I have been diagnosed by a gastroenterologist as a celiac from several days of different tests to confirm this diagnosis. I am a new patient and have seen for myself and my family has seen this too, my symptoms have improved greatly. I have been on this diet for about two months now. I love it that I do see light at the end of the tunnel. I can now get back some of the energy, I do not have the symptoms of joint pain, vomiting or diarrhea, my skin has improved and most of all, I feel good. I am not completed well, but I am encouraged and know that this has a treatment that can help me. Thanks for hearing my story. S.
(Comment Replies Disabled)

 
Norm Gurr
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
17 Nov 2007 6:10:45 PM PST
A great article which shows the issue.

I collapsed last Boxing Day after eating a large amount of cakes pies and bread on Christmas. The hospital thought I had all of the symptoms of a stroke. It was proved later that it was not that. Since then, I have spent almost a year in agony. My muscles developed cramps. My legs swelled up. I had heart rate attacks of 220 BPM and blood pressure attacks of up to 200 (separately and together). I developed rashes all over my body. I had bleeding through my skin. My legs swelled up. I developed skin like that of an alligator on my legs. I ended up hardly able to walk, even though I had been a 3 mile a day runner for 40 years. I had dizzy spells. I spent a total of two weeks in hospital undergoing tests by a number of specialists. It was determined that I also had perophral neuropathy. I was given up to 14 drugs in an effort to deal with the symptoms. But the doctors had no idea of the cause of all of this.

A friend then told me she had had some of the symptoms I had and was cured by not eating gluten

I laughed, but tried it. Guess what ? I am getting better week by week and all of my symptoms have either abated or have vanished . I am about to start my running again,

Guess what? The doctors refused to believe that it was caused by gluten.

How many others have what I have had to some degree, while the doctors say, 'We may never know the cause of the illness,' while blindly saying that there is no such thing.

Yet medical experts all over the internet search engines around the world say there is this form of gluten sickness beyond the intestine type

I have a challenge in life. It is to see that the doctors in Ontario accept that there is a second disabling if not deadly gluten sickness.

And suggestion which will help me?
(Comment Replies Disabled)

 
james
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
09 Mar 2012 5:50:09 AM PST
Make sure you try the gard diet. I am dealing with the same things you are and looking for a cure. I was a runner of up to 3 miles 4 times a week and woke up one day not being able to even walk a 1/2 mile. I am currently seeking to find other things besides gluten or gliadin. Just look up gard on the internet.
(Comment Replies Disabled)

 
lynn taylor
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
11 Feb 2008 8:46:59 AM PST
Lot of good info------thanks, I have celiac disease,with ab-normal lymph nodes.
(Comment Replies Disabled)

 
raquel
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 Feb 2008 3:04:33 PM PST
About a month ago, my daughter started having some strange symptoms. Along with her eczema, which she scratched to the point of bleeding, she started having a lot of unexplained pain. She is 2 1/2. She complained about toe pain, eye pain, and she was also having frequent tantrums daily. I was at my wits end. None of her doctors could tell what was wrong. They said she was fine, but I knew she was not fine. She also started having odd behavior. She seemed to not be able to control her motor functions of her hands. She would hold on to something with one hand and than use the other hand to try to pry the other hand off. This was very frustrating to her. I went to a naturopath doctor and she was diagnosed with having an allergy to gluten. I now have an appointment with the allergist specialist to verify this. I am not waiting around though. I have taken her off the gluten and she has changed dramatically. I am just learning about gluten-free foods so sometimes there is a slip up and she regresses, but overall, she is pleasant, no more tantrums, and her skin is better. Reading your article made so much sense to me. It helped me realize why she was having such strange behavior. Gluten being a brain disease is an obvious answer to me. I feel so relieved to have an answer. I am so glad I did not take her to a behavior specialist.
(Comment Replies Disabled)

 
evelyn
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Feb 2008 5:44:49 PM PST
Dr. Richard Becker says that gluten is a toxin. I believe it to be true. We have a first hand experience with Celiac Sprue from Grandmother, mother, husbands cousins and on and on. Keep up the good work as it is important to all.
(Comment Replies Disabled)

 
Johnny Wang

said this on
29 Apr 2008 6:04:07 AM PST
Doctor,

The missing piece of this puzzle is gluten ---> glutamate release. Wheat in particular is full of other glutamate precursors, not just gluten.

Glutamate excitotoxicity (like toxicity from monosodium glutamate ingestion) ---> acetylcholine release ---> histamine ---> inflammation. Brain fog, autoimmune issues, and more will crop up along any step of these pathways. The process is seen pretty clearly in asthma, where magnesium (directly antagonizes glutamate/CA++ overflow) is given intravenously in dangerous attacks, causing rapid bronchodilation.

Glutamate excitotoxicity ---> prolactin release ---> dopamine antagonism.

etc.

Good luck!
(Comment Replies Disabled)

 
sheila
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Nov 2009 8:26:37 AM PST
Can you explain the asthma/magnesium connection in more lay terms. I have gluten problems (deep sleeps) but also bronchial asthma. I have been taking magnesium for the heart palpitations I get after eating wheat or yeast. Should I stop ?
(Comment Replies Disabled)

 
Barbara Frohne
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
26 May 2008 1:18:56 PM PST
I'm so excited to learn about the brain connection. I think we are going to be able to get my mother some help!
(Comment Replies Disabled)

 
Diane
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Jun 2008 2:49:23 AM PST
Brilliant article, good on you Dr. Ford for your great work that is no doubt saving peoples lives, making them well and happy again, and for challenging the some medical beliefs. I may add that countless children are no doubt being put on dangerous mind altering drugs for a so called ''ADHD'' and 'ADD,' or for just being naughty, the side effects just add to their behavior problems and sickness. I believe Gluten or food allergy intolerance is the cause with some.
We are in the process of getting our children gluten tested.
Since coming to see you with my daughter amelia, the result is amazing, she is progressing wonderfully thanks to you Rodney.:-) Cheers
Diane Blakemore.
(Comment Replies Disabled)

 
Eugene Saxby
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
22 Jul 2008 11:44:02 PM PST
Now I know why I had digestion problems before going gluten free!!!
(Comment Replies Disabled)

 
Waller McInnes

said this on
26 Jul 2008 7:22:54 AM PST
I am 5 days gluten free and for the first time in my life I can see straight!!!
For 10 years, I was bulimic, and then so-called anorexic, despite eating as much as possible. I constantly felt as if I was being attacked when I sat down to eat. I was depressed, angry, anxious and could barely smile.
I have been studying the healing properties of food for many years, every day struggling to find foods that agreed with my system. The one glutenous food I was hanging onto was shoyu soy sauce, and now that I have given it up, the pain in my body, diabetic and epileptic symptoms are diminishing, my body is registering the food it is taking in and the anxiety is greatly reduced!
I am so excited about what lies ahead. Thank you for sharing this powerful article. I know for sure the gluten sensitivity and possible celiac caused me 27 years of severe angst--the word needs to get out there BIG TIME!
(Comment Replies Disabled)

 
Ruth McAdams
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
28 Aug 2008 5:31:57 AM PST
Thank you, thank you, thank you!!!!
(Comment Replies Disabled)

 
Ann Jones
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
10 Oct 2008 7:24:29 AM PST
I was diagnosed at 50, my son at 40. I was a nervous teen and could not read aloud in front of my class and knew the fear and self consciousness was not normal even though I was told that I was a beautiful girl. My son in his teens became ill and hard to get along with hot tempered and stressed. He developed neuropathy and diagnosed without stomach problems. My sister lives in a small town with nerve problems, diabetes and now stomach problems. Her doctors won't test her for Celiac. You are right!
(Comment Replies Disabled)

 
Linda Michaels
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 Oct 2008 10:52:35 AM PST
Animal feed has soy and gluten containing grains, the reason it is better to buy 100 percent grass fed beef and wild fish and raw organic butter made from 100 percent grass fed cattle.
(Comment Replies Disabled)

 
Candice
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Dec 2008 7:54:27 AM PST
Please tell everyone about this. I was recently diagnosed after years of being misdiagnosed. Now my body has so much damage done they don't know how soon I'll begin to feel well. I am glad that I know what is wrong now, but I do feel angry that years of my life have been stolen because of the incredible lack of knowledge about this disease.
(Comment Replies Disabled)

 
Mary
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 Jan 2009 5:50:34 AM PST
How do you convince a doctor to write a script to test for celiac when your doctor is not convinced your symptoms are related?
(Comment Replies Disabled)

 
Lana Heater
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
14 Apr 2009 11:54:39 AM PST
Replying to #18 Mary: Seek another doctor!
(Comment Replies Disabled)

 
Tony Gooch
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
13 Jun 2009 12:56:13 PM PST
I can vouch for this, I have had mental problems since the age of ten (am now sixty three) and only discovered gluten to be the problem two years ago.
(Comment Replies Disabled)

 
Shelly
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Jul 2009 3:16:06 AM PST
My heart goes out to you! I am grateful for what you wrote here Tony, because you got me thinking that maybe my aunt (my mom's sister) who had mental illness (now deceased) could of had celiac disease. Then there is my sister who's dealing with mental illness and living on the streets of CA :( and wants no help for anyone. Then when I think of my mom I see that she is a little bit off and could never drink milk and has other symptoms the fit celiac disease. Her mom and other members on her side too had problems of mental illness. Sadly so far I am the only one that was diagnosed with celiac disease back in 1996 and didn't know until a week ago how serious this celiac disease is because the doctor didn't tell me. UGH!!!!! I been told I have Fibromyalgia, Lupus, Arthritis...and the list goes on. No mention from my new doctor about celiac disease, I will bring it up next month when I see him that should be interesting, since he has my 1996 results in his file and never once mentioned the celiac disease just other things they found with me like mono. You really got me thinking that all along with my mom's side of the family it's just been celiac disease! Thanks again!
(Comment Replies Disabled)

 
Rodney
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Jul 2009 2:25:50 PM PST
Hi Shelly
Thank you, and thanks to everyone else for your insightful comments. The more I look at the evidence of gluten and neurological harm, the more I am concerned to leave children eating gluten if they are susceptible to gluten reactivity. I have the privilege of being invited to speak at a number of cities in the USA in Oct/Nov this year (2009). The topic is: “The Gluten Syndrome: a neurological disease”. See link: http://www.csaceliacs.org/Conferences/2009Presenters.php
This is a huge subject, and a very worrying one. Again I appreciate the support and interest of the group. Cheers, Dr Rodney Ford.
(Comment Replies Disabled)

 
mike
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 Sep 2009 11:45:29 AM PST
I just found out that I have celiac disease but my GI doctor isn't convinced that it is true so I had to go through all of his tests because I am have hepititus as well. I've been on the gluten free diet for a week and see a very pronounced change. I thought I had low sugar because of a fainting spell at work and severe cramps in my legs. Yes I agree that this stuff IS a toxin and it has an effect on the brain as well as the rest of the body.
(Comment Replies Disabled)

 
sheila
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Nov 2009 8:32:57 AM PST
Wonderful site - I would like to be able to post a comment. Or ask a question - please tell me how. I have had celiac test that came back negative. But I have bad reaction to all grains, so would like tell people about this also.
(Comment Replies Disabled)

 
Steve Nenninger
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
20 Dec 2009 12:16:06 PM PST
This article is outstanding. I see that the doctor was concluding his first study in 1982. That was when my symptoms first started, how I wish we had this article then. It took me over 20 years to figure it out, you all know how that goes. It is inspiring that there are people like the doctor out there.
(Comment Replies Disabled)

 
Donielle Wilson, ND
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
20 Dec 2009 12:20:06 PM PST
Dear Dr. Ford! Thank you so much for this article and all of your work. I am sitting here researching the connection between gluten and mental health issues for a presentation I am giving in February. I am a naturopathic doctor in New York specializing in neurotransmitter imbalances and food sensitivities. I have seen in my practice exactly what you describe, and I am so excited to be sharing the information with more patients and practitioners. Brilliant! I hope to have the chance to meet you one day. Here is to eating gluten-free!
(Comment Replies Disabled)

 
Jayne - England
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Jan 2010 2:20:32 PM PST
Thank you Dr Ford and others for your welcomed contribution and continued observation and research into gluten toxicity, and for highlighting the toxic effects of gluten to all, and for this article. It took nearly 3 decades or me to be diagnosed with Coeliac Disease (I have what I call 'toxic gluten autoimmune disorder', it effects all my body including by brain not just my gut). I had neurological symptoms, muscle weakness, concentration problems, poor memory, hypertension, tachycardia, exercise intolerance, incoordination, ataxia, dizziness, breathlessness, low immune symptom, skin/bone/eye pain, headaches, blurred vision, pins/needles/numbness, nightmares, insomnia, hypoglycemia, and had anaemia even though I ate plenty of food and took supplements, felt worse after eating food, had bulky stools after eating, I constantly felt nausea, sometimes retched after eating anything and felt bloated, sometimes I was very thin with a pot belly other times I looked overweight - swollen with water retention, dry skin, cold sores, blisters often on skin, red flushing of skin, kidney stones, glomerulonephritis, I was like a zombie, just existing. Doctors claimed I was attention seeking, and that it was all in my head, that there was nothing wrong with me therefore it was in their words chronic fatigue syndrome/ME/hysteria/stress/anxiety, my symptoms were dismissed by ignorant doctors who should know better, who should take their head out of the sand, and stop being ignorant. I was told it wasn't the food I was eating when I said I thought it was the carboydrates (mainly grains), and they told me there was no such thing, and accused me of having illness behaviour, and an eating disorder. I was shocked when I purchased my medical records after many years of fighting for them, to find doctors labelled me as neurotic and they hadn't even put my symptoms down, saying I was hysteric/malingering/chronic fatigue syndrome therefore nothing organic wrong with me, that I was attention seeking with illusionary ideas about my health. It was bad enough living not even half a life, and fighting for a diagnosis without the bullying poor behaviour from so called health professionals. I was thankfully diagnosed with Coeliac Disease due to a doctor writing his thesis on coeliac disease and anaemia, and I just so happen to have had a blood test at the same time that landed on his desk by mistake. Within two weeks on the gluten free diet I was well for the first time in my life, I felt alive for the first time in my life, all my symptoms gone in just 2 weeks. Unfortunately the doctors disbelieve me that gluten is not just confined to the gut, majority do not listen/respect/trust what patients say, they dont believe the effects of gluten on the body, or want to believe, one wonders if there was a pill for gluten toxicity and a financial incentive to diagnose and prescribe a drug for gluten toxicity that we will see a huge surge in acceptance of the condition and an increase in diagnosis, even though the solution is simple - do not eat gluten.

If I eat the smallest amount of gluten my symptoms reappear, and it takes 2 weeks to recover, I ignore food that claim to be gluten free, I make sure everything is naturally gluten free. Unfortunately after two years on the diet I started showing signs of myasthenia gravis, again doctors are saying there is nothing wrong, I purchased my own blood tests for the antibodies for myasthenia gravis, they were negative (but they are not 100%, like alot of conditions, we can't always rely on tests or health professionals), An Ice pack on any muscle including my eyes for just two minutes reverse my muscle weakness for just over a minute - again doctors dismiss this, and say there is no such thing. However I do believe there is a connection to gluten toxicity and people developing other autoimmune disorders, especially if not diagnosed soon enough, and doctors should start listening to patients and keep up to date with the research. Patients health outcomes should be recorded internationally on databases for all to see, objectively to measure health outcomes and raise awareness of the gluten toxicity as well as other conditions, information is power. So many peoples lives are ruined because of the lack of awareness of gluten toxicity, so many misdiagnosed. Thank you for your dedication and enthusiasm into researching and raising awareness of gluten toxicity.
(Comment Replies Disabled)

 
dave
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
08 Feb 2010 8:45:26 AM PST
I'm a little perplexed why it's called a "disease." Celiac, gluten sensitivity, whatever... If a food item is toxic to an individual then it could be completely normal rather than some oddity. Maybe instead there's something wrong with people whose bodies don't react when they should. Most people would die instantly if they drank cyanide, but there may be a few out there who would survive... Therefore do the vast majority of people have a "disease" that prevents them from being able to ingest cyanide?

Crazy.
(Comment Replies Disabled)

 
Bobbie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
14 Feb 2010 4:04:42 PM PST
I can vouch for four generations of undiagnosed gluten sensitivity. Even now, my daughter and I have had severe stomach, eczema, and anxiety/irritation symptoms, but there's nothing in our medical records about that. We quit eating wheat before being tested (and won't go back on it to prove what we know!) None of our pediatricians, dermatologists, or a psychotherapist from Stanford ever suggested we get tested or would comment on gluten sensitivity causing tantrums in my daughter. Yet once we quit gluten, the tantrums disappeared. Parents, my daughter also gets tantrums from food coloring (within 15 minutes of eating them she is pretty belligerent).

Dr. Ford, I have also been researching pesticides and fungicides commonly used on grain products. These list MANY neurological symptoms, since many of them are in fact neurotoxins (malathion, permethrin, etc). It seems chemical sensitivities in general are not validated, and there is no public research on symptoms related to pesticide residues on food. Do you know if there has been any direct research into the possibility that many people are reacting to the pesticides and not the gluten?

Can't thank you enough for supporting all of us!
(Comment Replies Disabled)

 
Sensitive
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
11 Mar 2010 10:10:24 PM PST
It's extraordinary how diverse the symptoms for this can be. Me: dry skin, dermatitis herpetiformis (small itchy clear bubbles), constipation, diarrhea, breast (not chest) pains, bloating, then moving on to leg "vibrations" and burning palms, red flushes, cramped hands and "unidentified bright objects" on my Magnetic resonance imaging (MRI).

Got a probable diagnosis of multiple sclerosis, then found out that many gluten-intolerant people have a "neuro dominant" expression or some form of neurological problems. (At least 10% according to one site--search "House episode on celiac disease" and then choose the "wikis" link.)

I read an article in Scientific American about how much of the world's wheat fell to a fungus--rust--that led many of the world's growers in the late 90's to spray with fungicides. Then when that grew expensive, they turned to a Turkish wheat strain that was resistant to rust. AND, the gluten levels in wheat flour have risen from 2% in the 50s to over 20% now. Did you know it is often sprayed onto the flour after grinding to raise the gluten levels?

I first went to spelt and got some relief. Then cut out that. More symptoms went away. Still ate oats. Until I gave up oats (unless certified gluten free) and ALL forms of gluten, had residual symptoms. They still come back, sometimes as small bumps around the edge of my scalp, if I accidentally eat gluten.

Other symptoms: my sister: bloating, especially her face. One niece: absolute moon face even when rail thin. Another niece: heart palpitations, mood alterations, digestive difficulties, etc.

All symptoms resolved on a gluten free diet. Someday folks will look back at us as we look at the Romans who used lead glazes on all their dinnerware and poisoned themselves.

If you're having these symptoms, research the kinds of common foods you wouldn't ordinarily think contain gluten: vinegar, except rice vinegar and apple cider vinegar, malt products of all kinds including worchestire sauce, soy sauce (try wheat-free tamari), maltodextrin, modified food starch (wheat forms), etc. I had to print out a list and then go through all my food supplies and throw out 2/3. But worth it.

Who wants unidentified bright objects showing up in brain scans? (They are also associated with lupus, Alzheimer, multiple sclerosis, other auto-immune diseases) P.S. Blood work inconclusive (I had already given up wheat and they warned me I would need to eat it for a month again first. No way!)

Don't always go by what the doctors say. They are fumbling in the dark on this one, for the most part.
(Comment Replies Disabled)

 
lpohlman
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
15 Mar 2010 2:13:07 PM PST
Sounds familiar--Could this be a family member writing this comment on her birthday? Even though I didn't think I was one of the family members to suffer from gluten intolerance--I'm beginning to wonder. I have recently experienced toe joint pain and leg cramps, as well restless leg syndrome in the evening. Could these symptoms come from my exposure to gluten? Hmm...I will try a gluten free diet for a few weeks and see if there is a connection. Thank you for sharing this site.
(Comment Replies Disabled)

 
Jean
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
04 Apr 2011 1:20:25 PM PST
Thank you for your response. I agree. Dr's are Practicing (until they get it right). Also the hidden gluten in foods I never thought of.
(Comment Replies Disabled)

 
Lora
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Apr 2010 7:45:17 PM PST
I'm reading this article and every single comment and I can't be more angry that I've spent my whole life. I'm 53 right now and suffering from celiac disease manifested with all classical complications associated with that. I have lost all my savings trying to get help and find a doctor who could treat me. I ended up with a psychiatrist, who diagnosed me with depressive disorder. My doctor is constantly changing my anti- depressive medications because none of them have been working, and telling my mother I am just a hypochondriac and I have to work more. I forgot to say, none of my family members believed me even when I got so sick, that I could not work any more and went on disability with. Every one of them and even my best friend who is not my friend any more- I'm just lazy and something with my head even when I could not get up or walk. I looked like a skeleton eating and washing everything down with with frequent hypoglycemia attacks. My weight went down to 95lb. Only a holistic doctor helped me, who put me on organic diet with fruits, veggies, fresh juices, meat and brown rice (no wheat bread). But he never mentioned the word gluten. And it never occurred to me any connection between eating my whole life wheat and rye bread, semolina and being sick and getting sicker. After getting better I went on my old diet, eating everything and got sick again and even worse rapidly degrading not understanding why and losing any hope. I just got diagnosed with celiac two months ago by young doctor a new graduate, who didn't ignore any of my symptoms: severe depression, anxiety, very weird and scary feelings in my head when I'm eating bread, blurry vision, peripheral neuropathy, loss of balance, frequent pain in the whole gastric intestinal tract, frequent fatty diarrhea with mucus, geographic ulcerated swollen tongue (which I had all my life thyroid, hypoglycemia episodes, cardiovascular problems like arrhythmia, severe osteoporosis, pain in bones, skin problems which do not respond to treatment and getting worse when I eat bread. And finally asthma and difficulty to breath through the nose from swelling after eating bread, constant debilitating fatigue, problems with memory, concentration, attention, orientation, feeling crazy and demented, sometimes forgetting simple words and tasks and not be able to talk and communicate normally. Wondering how could I finish high school and college with very good grades and be good in math, physic and all this technical stuff, with memory oriented to little details. Did these sound like hypochondriac's complaints. I don't think so. After being on gluten-free diet almost for two months I feel so much better, not 100% yet. I can say 50% for sure. But I am getting there. I don't feel crazy any more, very calm without Lorazepam, no scary crawling sensations in my head. More energy and the rest of the symptoms are not so severe right now. I understand there is some damage to the body that is irreversible and being on the very bottom financially due to inability to work, I'm gonna bring my life back again. Thank you very much. Great article. Every doctor should read it.
(Comment Replies Disabled)

 
Terese
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
03 Feb 2012 7:04:06 PM PST
interesting...
I am a Medical Doctor and never knew anything about gluten until I started loosing balance, have terrible sense of directions and experienced brain fog at the time of menopause. My brain MRI showed brain loss at 42 and no Neurologist could comment on it.
I started studying Integrative, Functional Medicine and started tests on myself.
Yes I always had Geografic tongue - /this is the first time I am hearing it could have association. Hyporhyroidism--one tiny bold patch since birth/alopecia areata/ few white spots on my olive skin/vitiligo/. Yes I had IBS and I have hearing loss in one ear. I am 60 now.
I am switching my Family Practice to Integrative, Functional Medicine and I am excited about it.
Keep in mind that gluten has cross-reactivity. It means that you may eat chocolate or have coffee and your body thinks it gluten and reacts to it same way as it would to gluten.
Cyrex lab in AZ performs these tests.Regular laboratories have very limited tests rarely come positive.
Yes, patients-stop asking"is it covered?"
Nothing good is covered. Health insurance is like car insurance- covers wreckage not prevention . And you still pay for oil , timing belt change...
I am off gluten for 2 months I don't have this brain fog anymore.
I am supplementing vitamin B12 and looking forward to a new gluten free life!
(Comment Replies Disabled)

 
robin scutt
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
18 Aug 2010 2:12:20 PM PST
Lifetime brain related poor living. Yesterday started gluten free. Thank you.
(Comment Replies Disabled)

 
Susan Sligh
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
28 Sep 2010 5:59:21 AM PST
I am grateful that you are making a connection with gluten and the brain. I just started a gluten free diet 3 days ago. For 12 years I've been suffering with intestinal problems, balance issues, massive confusion, memory issues, joint and neurological issues, and depression. Everything has since been chalked up to depression. I believe gluten is it. I stomach hasn't bloated in the last 3 days.
(Comment Replies Disabled)

 
fritz catlin
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
03 Nov 2010 2:26:38 AM PST
What isn't mentioned here is the simple fact that we cannot digest any refined carbohydrates without using up our reserves of b vitamins as part of the metabolic process, so the functionality of the fine veins supplying the brain is compromised leading to many mental health problems, doctors generally only look for this in cases of extreme alcoholism, but a high sugar diet is just as bad.
Obviously celiacs with reduced capacity to produce digestive enzymes will be particularly prone to this.
(Comment Replies Disabled)

 
Ali
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
29 Dec 2010 5:24:18 AM PST
Thank you. I have been suffering from celiac and recently went gluten free. I am so much better but recovering and grateful for your work.
(Comment Replies Disabled)

 
Diane
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
09 Mar 2011 8:19:04 AM PST
I was tested for allergies when I was 20 and the top allergy I had was GLUTEN and it was called a brain allergy. I have never been diagnosed with celiac disease or Lyme disease; however, I'm not familiar with those.

The symptoms I felt, when eating large amounts of pasta, was that my brain felt foggy, more tired, harder to think. I felt irritable and cranky. And I felt an urgency to sleep. This is not how some people get tired from eating food. This was my brain feeling suddenly tired.

At that age, I tried completely eliminating gluten from my diet, no pasta, no bread, no sandwich bread, and just ate vegetables, rice, corn based or potato based foods for carbohydrates.

I felt the symptoms went away with that.

However, since 20, I have loosened up my strictness with "no gluten". I find that the brain allergy/ fatigued feeling is proportional to the amount of gluten I eat. I have enjoyed pasta in smaller amounts and it only gets me little more tired, but I don't eat it before I play a big sports game.

Though, I do purposely eat some pasta before I go to bed and it helps me fall asleep quickly.

Hope this personal experience of the gluten brain allergy helps to clear it up...

The question is what is the toll on the body to eat your brain allergy food in small doses?

The doctor says the body can recover after removing gluten from the diet, but are there permanent brain or nerve damage that cannot be recovered?

-Diane
(Comment Replies Disabled)

 
Scheleta Phillips
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
15 Mar 2011 8:34:51 AM PST
Hi Dr. Ford,
My husband and I have a son who is 10 1/2 years old. Two years ago he was diagnosed with Petit Mal seizures, which we initially thought were from hitting his head, while he was playing tug-o-war, his cousin let got and my son flew back into the pointy end of a toy box, we seen the seizures start after this. To make a very long story short, we initially tried a prescription medication, this did not reduce nor take his seizures away, but it did produce horrible side effects; seeing demons in his room trying to kill him, his A's and B's dropped to D's and F's...constantly in trouble and defiant if not in a zombie mode, and those are just a few of the side effects. We decided to try natural ways of healing and through a long journey, we see a Holisitc Practitioner who is also a Chiropractor. With changing his diet along with adjustments weekly, his seizures have dramatically reduced. The best and most results we have seen in the 2 yrs hes had them. A few things we are finding, one, processed sugars trigger them, MSGs, and GLUTEN. If he has something with Gluten he will have seizures that last longer and he will even fall at times. Since we've done this diet/detox, he has not fallen once in two weeks and his seizures now only last 2 seconds max., as they were about 6 seconds max and usually falling. You website is so informative thank you!!!
(Comment Replies Disabled)

 
Jessica
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
08 Apr 2011 3:01:15 PM PST
Thank you for your opinions. Everyone is entitled to one. You repeatedly say "I believe, postulate, or propose" Where is the research to back this up? I find it strange that there are no opposing opinions posted...will this be posted or just thrown out? You can find a connection in anything if you want to look hard enough. I refuse to believe that the wheat made by God for man to eat is causing all these problems.
(Comment Replies Disabled)

 
Sharon
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
25 Apr 2011 7:19:22 PM PST
Made by God, modified and poisoned by man.
(Comment Replies Disabled)

 
Lindsey
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 May 2011 4:31:22 PM PST
....and hybridized. Yes. Our wheat has come a long way from what it was in its original design. Herein lie a labyrinth of problems for modern man. Let us not forget the details regarding modern agricultural methods that denature (and modify) what was once a product the human body could ingest and digest properly. Good stuff.
(Comment Replies Disabled)

 
anna
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
22 Jul 2011 10:10:23 AM PST
obviously you are ignorant. Maybe it isn't affecting you, but it is me, as I've been sick for ten years. I stopped eating gluten and I feel alive again. What is in our diet now is a hybrid wheat modified by man to contain more gluten. The research is right here honey.
(Comment Replies Disabled)

 
jose
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
10 Oct 2011 2:13:49 PM PST
Jessica, whoever is your God, he didn't intend us to be farming, and certainly not with the aid of Monsanto. please do your research before opposing a very well established fact: celiac disease is real.
(Comment Replies Disabled)

 
Reply to Jessica
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Aug 2012 11:15:20 AM PST
God did not make wheat for man to eat! Wheat was originally a weed that "Man" cultivated to eat. Otherwise we would be able to walk into a field of wheat and just start gnawing on the stalks, in "God's form". As with most "Man-made" foods, wheat is not meant to be consumed by the human body. Food should be eaten in it's natural (unprocessed) state as it was meant to be eaten... or so-called "God-made form". Don't let your beliefs cloud basic logic. If wheat truly was made by God for humans to consume, there would NOT be so many people unable to consume it. Perhaps wheat is Devil's food. Do you have any research to dispute that, Jessica? There's an opposing opinion for you!
(Comment Replies Disabled)

 
Elray
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
28 Aug 2011 3:30:40 PM PST
Doctors seem to be the most ignorant and arrogant people on the planet. It seems that if they acknowledge the fact that gluten is ruining our health they would be out of work and people won't believe it unless a doctor tells them. They are I believe controlled by the drug companies. We are now eating copious amounts of wheat and people can't understand how something they have eat all their lives is wrecking their health. It also has an addicting quality and is very acidic. I should also mention that Monsanto has screwed with it. Farmers are now growing ROUNDUP READY WHEAT which is resistant to the unselective herbicide Round up. Once I quit wheat all my problems disappeared. When I told my doctor he sarcastically replied good for you. My symptoms were bouts of mental illness followed with colon cancer around age 47, then came joint pain, next was bad gas and diarrhea which led to my discovery of my wheat intolerance. I no longer fear cancer because my PH is now 7.0 which is normal.
(Comment Replies Disabled)

 
cheryl
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
18 Sep 2011 2:30:36 PM PST
Trying to make sense of my entire life after being diagnosed with celiac disease in June 2011, I am 50 now. Generational dyslexia on my fathers side, he had nine brothers and sisters, numerous family members with mild to severe dyslexia. I have four children and also had one premature baby at 26 weeks that died, my 22 year old daughter seeing endocrinologist diagnosed hypothyroid, P.C.O.S and birth defect, malformed uterus. Twins, 20, 6.5" and underweight, one has allergies, other birth defect urethra, both eczema, A.D.D, L.D. Spent my life trying to help them, accept them, school was a nightmare so we home schooled. I am wondering now if celiac disease/gluten may have affected all of our lives. Wishing all better health and Bless those who heal!
(Comment Replies Disabled)

 
jose
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
10 Oct 2011 2:28:28 PM PST
thank you Prof. Ford for a compelling article. I have been sick with strings of symptoms for years and have been complaining about my severe migraines to doctors for the last seven years. they prescribed strong pain killers. recently my tummy problems were so aggravated that I was scared of leaving home. luckily, a friend told me she was diagnosed with fructose malabsorption, which led me to a low FODMAP diet (and no gluten) and which led my doctor to send me to a gastroenterologist - who is going to test me for celiac. 3 months without gluten, and my migraine disappeared, together with my tummy problems! yesterday, i started the gluten challenge towards the celiac biopsy test. I happily ate slices of beautiful organic bread non-gluten-free, and was looking forward to this 'challenge'. I woke up in the middle of the night with a tummy ache and this morning, I have got the start of a migraine. that's the end of that challenge for me, as the specialist said to stop if I got sick. Your article gives me the confidence that I can at last recover my health and lead a normal life, GLUTEN FREE!!!
(Comment Replies Disabled)

 
Theresa Schaefer
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Oct 2011 8:44:26 PM PST
Thank You. My husband was retaining 25 lbs. of water and doctors could not find what was wrong with him so he came home with 5 different blood pressure pills, steroids and water pills to the tune of $100,000.00 for 3 weeks in the hospital. I suggested gluten and they shot me down. So we went on a gluten free diet and with in 4 days he lost all that water and is doing great.
(Comment Replies Disabled)

 
Devyn
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
31 Dec 2011 2:08:24 AM PST
I can relate to the water retention thing... had terrible edema in my legs for basically my entire life, and within a few days (literally less than three) without gluten they were "normal". I could hardly believe it.
(Comment Replies Disabled)

 
wojtek
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Oct 2011 12:18:51 PM PST
I wish this article can be posted so that everyone in the world can see it. I tried telling my parents I have gluten intolerance but they won't believe me and it's so hard to eat anything they cook because most of the food they make has gluten.
(Comment Replies Disabled)

 
Georgietta
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
13 Dec 2011 11:12:49 AM PST
Since the age of 3 I have had severe asthma. I have been hospitalized uncountable times through the years. At age 44 I had asthma, allergies, reflux disease, depression, endometriosis, digestive problems and pain, severe back pain, chronic bronchitis, bells palsy and an extra 45 pounds of weight.
I am an optometrist. A patient of mine told me she cured lupus and asthma with a gluten free diet. Since my pharmacy bill was going to be $500 a month, I became curious and tried it along with isotonic supplements OPC 3 and ORAC. I lost 35 pounds, pain free, no meds and never felt better in my life. All the bouts with
Bronchitis was really a reaction to gluten. Now I take a Benedryl and Mucenix only rarely.
OUR FOOD IS Poisoning us!!!
(Comment Replies Disabled)

 
jamie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
03 Jan 2012 2:35:26 PM PST
After my food is contaminated with gluten, I become worthless. I can't process letters into words, or road signs for their meaning.I can't drive. I can't read. I can't work. But the scariest part is my thoughts. I get so angry and have no remorse for my actions. I go from Mother Teresa to Charles Manson in minutes. I'm so relived to hear that progress is being made with this. THANK YOU!!
(Comment Replies Disabled)

 
Markus
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
15 Jan 2012 2:03:26 AM PST
Although I agree that many people suffer from gluten intolerance, I cannot see the brain and nerve system connection. There is not a single convincing evidence shown in this article for this. Myself being a scientist, regard the terms "I believe" and "I think" as disqualifying. The author does not explain, why e.g. the cardiovascular or lymphatic system should not be able to produce all the symptoms by transporting the damaging agents throughout the body? Isn't the fact that people recover after being on a non-gluten diet a clear argument against a damaged brain/nerve system?
(Comment Replies Disabled)

 
Jeff
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Jan 2012 10:05:23 AM PST
I don't care if it is neurological or not. We have increasingly modified and over-processed our food to the point where it is nothing like it was intended to be. Too many physicians want to treat the symptoms with medicines rather than look for the underlying causes to many medical problems.

Having removed wheat and gluten has changed my entire family. My son having been diagnosed with wheat and gluten allergy was completely changed within 48 hours of a gluten free diet. He went from pale, bloated, and lethargic to a thinner, energetic 4 year old. He is now almost 7 and as energetic and healthy as ever.

Removing the wheat and gluten from my diet has allowed me to loose 50 lbs. and I no longer have migraines and ear infections...

Kudo's to documents that look for the root of the problem and not just treat the symptoms!!!
(Comment Replies Disabled)

 
Alice
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Mar 2012 12:36:46 PM PST
Three examples of gluten at work:

1. For a couple of years I had gastric reflux (I also have Chronic Fatigue Syndrome, Chronic Lyme Disease, Hashimoto's & low thyroid--but I'll just stick to gluten sensitivity here). My doctor suggested I go off grains. Lo and behold, not only did the GERD disappear but also headaches.
2. About 2 years ago I started having abdominal aching (I had drifted away from my non-gluten diet). I was very worried. My GP sent me to a gastroenterologist; then I went to a second one. Of course they automatically want to do a colonoscopy/endoscopy--and in my already fragile condition I didn't want any invasive procedures. I was advised by someone who does muscle-testing and dowsing to go off not just wheat and other gluten products, but all grains (because as someone mentioned, there can be a sort of "cross-contamination" or sensitivity to gluten-like proteins), as well as some other foods. Within 2 months my condition began to resolve and after a bit longer I was pain free.
3. Just the other night, because I've been having a rough time generally, I had a "treat" of pizza made with wheat. I have been able to tolerate small doses of gluten, infrequently, before, so I was not prepared for the HUGE reaction I had. In the middle of that pizza, I found myself in a very unpleasant "altered" state and when I got up from the table I was weaving like a drunk person. I barely made it into bed. And the next day, just like after being drunk, I could hardly remember what happened-- just that it did happen and that my brain was in some bizarre state. Well, no more "treats" for me. And no more grains of any kind--even nongluten--for a while.
(Comment Replies Disabled)

 
Winky
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Apr 2012 7:03:58 AM PST
A few years ago I read an excellent book called "Dangerous Grains" which touches on this subject. It certainly clued me into my gluten sensitivity when I was experiencing such extreme brain fog that I couldn't even carry on a conversation because I couldn't remember what a person had just said to me, or the topic of discussion! The book also pointed out that all grains have proteins similar to gluten, even the supposed gluten-free ones. For a time, my body and mind were reacting to all grains and I had to go completely grain-free for a time because I was experiencing the same symptoms as I did prior to my initial gluten detox. Consequently, grains play a very minor role in my diet. For me, a "treat" is a gluten-free baked item or gluten-free musli. My ability to use my brain is too important to me, and I'm too young to be experiencing brain impairment like this.
(Comment Replies Disabled)

 
Kathy
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
19 Jun 2012 5:57:37 PM PST
I went off of gluten, but not other grains, 2 months ago. My brain is the clearest it's ever been. I really thought that I was getting dementia for years. I am elated to feel a clear head and know that I am not getting Alzheimer's. It feels way better than a big cookie could ever taste! I'll never go back to gluten. I wish other people were more believing... so many illnesses could be healed.
(Comment Replies Disabled)

 
karla
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Nov 2013 2:25:01 PM PST
You have just in enlightened me. I have been gluten free for 2 and half years now. It is a struggle every day to stay this way. I can do fine for a while. And then I start hurting all over clear to the bone. I can hardly make it up the stairs at times. Among other problems. But, I have been thinking that there must be something else that is affecting me besides the gluten. I think it is the other grains. I would have rice and corn products. I will cut the other grains out of my diet and see what happens.
(Comment Replies Disabled)

 
ben g
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
22 May 2012 8:09:01 PM PST
Dr. Ford, it is great to have some sort of clarity on this subject. I had gone two years with what I thought were acid flashbacks and extensive rashes that would cover a majority of my body, with no explanation. About 5 months ago my nephew was diagnosed with celiac disease and as our symptoms were similar, I tried cutting gluten out of my diet. I have now lost weight, gained energy, and I have a much more positive attitude towards life, including a slow but steady change in the episodes I was having. I just want to thank you. Keep on truckin'.
(Comment Replies Disabled)

 
JAG
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
17 Jun 2012 8:53:03 PM PST
Here's my struggle: why, if a person who knows smoking is bad, do they keep doing it? Why, if a person knows drugs are bad, do they not stay off them? So, knowing gluten makes me sick, mostly mentally, why can I not stay completely gluten-free? Ugh!
(Comment Replies Disabled)

 
Winky
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
14 Aug 2012 1:57:29 AM PST
I hear you on this one. I think the problem is that a) gluten foods are everywhere, b) gluten foods are addictive, c) the new food labelling in Canada lists "wheat" as a contained allergen, but not gluten, which makes eating any processed foods risky business (even when you think you're an avid label reader!) I recently had a run-in with a chocolate bar in my attempt to eat like my friends at a social outing, and paid the price with brain fog and the usual gluten symptoms even from that tiny amount.
(Comment Replies Disabled)

 
Elizabeth Jeffries
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
27 Oct 2012 5:01:54 PM PST
I was diagnosed with Hypothyroid disease at age 12 and Systemic Lupus at age 15. I have suffered for years and years with illness and dyslexia and all kinds of problems from ulcers to chronic fatigue, to weight gain to anorexia and the list goes on. I now am told I have adrenal gland exhaustion and a brain disorder that doesn't allow my body to absorb folic acid. I am so very tired of being sick and tired and in pain.

I just barely began a gluten free diet this week for me and my family. I have 4 children ages 5, 4, 3 and 1. the 3 older boys are diagnosed with autism, SPD, ADHD and major anxiety problems. I also have a husband with severe ADHD and anxiety. We are a mess to say the very least.

I am hopeful that a gluten-free diet will help us all. We are looking and searching for someone to use us as a research project. I am an extremely proactive mother who does whatever it takes to keep my family functioning. Someone needs to document this process of changing your life by going gluten-free. If we had the money we would mount cameras in our home and share with others what a special needs family is really like. I have become painfully aware that people just don't understand what our day is really like.

Forget all these other ridiculous reality shows and let's show people what we parents are really going through! Feel free to contact us with any info on gluten and its link to these previously described problems.
(Comment Replies Disabled)

 
Gene Hames
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
04 May 2013 11:19:51 PM PST
Gluten is a neurotoxin. Makes perfect sense to me, considering barley in beer makes you intoxicated. And only the sugars from the starch of barley are used to make the beer. I don't see how the sale of beer or any wheat product is legal. All it does is damage internal and external organs such as the liver, small intestines, the brain and your skin.
(Comment Replies Disabled)


Comment posting has been disabled on this article