Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Record is Archived

    This article is now archived and is closed to further replies.

    Jennifer Arrington
    Jennifer Arrington

    Life in the Trenches—Recovering from Celiac Disease

    Reviewed and edited by a celiac disease expert.

    I would hate to add up all the hundreds of dollars I have wasted trying to get healthy.  Now, however, I get healthy by focusing on one thing:  making my intestines healthy.  If my intestines are healthy, I can absorb food.  If I can absorb food, my body will be receiving the nutrition it needs to function, and thus I will be healthy.

    Of course, rule number one for all of us is to stay gluten free.  But, focusing on avoidance alone, can get depressing.  Instead, I like to focus on what I can do to strengthen my digestive system.  That way, all the good gluten free food I am consuming can actually benefit my body.  What good is eating healthy if you are unable to absorb the nutrients?  Pouring healthy food into a compromised gut would be as wasteful as pouring dollar bills over an ATM machine and hoping in vain to strengthen your bank account balance.

    Celiac.com Sponsor (A12):
    Research shows that those of us with celiac disease/gluten intolerance often have decreased absorption despite following a strict gluten free diet.  Scott Adams summarized one of these articles on the celiac.com website back in 2003.  The article by Lee SK, et al. entitled “Duodenal Histology in Patients with Celiac Disease after Treatment with a Gluten-free Diet” implied that even though patients may feel better on a gluten-free diet, there may still be damaged intestinal areas that are incapable of optimal nutrient absorption.  Since specific nutrients are absorbed along specific locations in the small intestine, this can have long-term ramifications.  For instance, the proximal portion of the intestine is the site for absorption of vitamin B6 (pyroxidine).  If that portion is damaged, there will be decreased absorption, and your body will be deficient in B6.  You may then experience a range of neurological symptoms such as nervousness, irritability, and shakiness.  And, as happened in my case, you may see a doctor, only to be told you are having anxiety attacks and be handed a prescription for a mild tranquilizer.  Thankfully, I discovered that a good B6 supplement (Solgar “Magnesium with B6”) was all I needed and threw away the offending prescription, but this serves as an excellent—albeit oversimplified—example as to why we have to focus on improving the health of our intestines.

    Before I go on, I do want to say that the products listed below do not benefit me financially in the least.  Additionally, these are the products that work best for my body.  You may find a different brand works better for you, but as long as our focus is on getting those intestines healthy, we are all heading in the right direction!

    So, read on about what I personally consider the top four intestinal healing supplements…

    The first and best all-round product I have found that truly aids in restoring the intestinal lining is a glutamine supplement put out by a company called Metagenics.  The supplement, called “Glutagenics”, contains glutamine, licorice root, and aloe vera.  While studying for my masters in nutrition at Texas A&M University, we learned that glutamine is a key amino acid that aids in restoring the intestinal lining in patients that are transitioning from being tube-fed to a normal diet.   So, when my own chiropractor suggested this supplement and mentioned it contained glutamine, I purchased it and have been taking it on and off for three years.  

    Glutagenics is available online through various websites that carry the Metagenics brand. The supplement is unfortunately a bit cost prohibitive, but you can shop around for other brands that contain a similar blend, or buy the three active ingredients separately. Unfortunately, this did not work for me (I have an expensive gut), but it may for you.

    The next product is a good omega-3 fatty acid. Omega-3 fatty acids have so many benefits that even if you weren’t working on building up your intestines, they would still be beneficial. During my graduate research, I was fortunate to be part of an ongoing study on the mechanism whereby omega-3 fatty acids reduce the inflammatory response. Obviously, when our intestines are damaged, there is plenty of inflammation. So, including omega-3 fatty acids in our diet is vital.

    Thankfully, omega-3 fatty acids are getting easier and easier to come by. My family eats the high omega-3 brand eggs and the Smart Balance peanut butter and butter spreads. You can also purchase wonderful oil blends by Nordic Naturals. My favorite is the lemon-flavored Omega-3 liquid. The lemon flavor truly masks the fishy taste and even my children swallow the oil with minimal grumbling. Nordic Naturals is quite expensive (around $20.00 for 8 oz) but if you compare the amount of DHA you are getting per serving, it is definitely the most DHA for your dollar!

    Another great healing nutrient is zinc. Zinc is wonderful for wound healing- you’ll see it in many topical creams, but it also helps restore the intestines. Metagenics puts out a great supplement and their products are great for sensitive individuals. I find that 10mg works best for me. I don’t take it every day – too much will give you a bad taste in your mouth. Once I get that bad taste, I know I need to go off it for awhile.

    Finally (for now), find a great probiotic. The one that everyone recommends, by Garden of Life, contains wheat grass, so we have to avoid it. I do extremely well, however, on a product called Lacidophil by Xymogen. My energy levels actually improve on this brand. Xymogen has their own website where you can purchase products directly. Taking a good probiotic restores a healthy balance to your gut flora, which aids in overall health and digestion. I have just recently ordered one from Emerson Ecologics through a natural doctor and it’s supposed to be even better. It has many more strains of the good bacteria so I’m going to try it as soon as it comes in.

    Of the four products listed above, the two that I take daily are the probiotic and omega-3 oil. The other two I take on an ‘as-I-need-it’ basis.

    Unfortunately, our bodies don’t tolerate a lot of extra supplements, so go slowly and only add one at a time. Keep track of how you feel. You may never tolerate the mass quantities that some companies will try to sell you. But, since you are your own best manager, work with yourself slowly and patiently and you will find your health improves over time.

    May God bless you with the wisdom and discernment you need to live a healthy and vibrant life!



    User Feedback

    Recommended Comments

    Guest Helen  Hanson

    Posted

    Enjoyed your article and agree with needing to repair the intestines...after colonoscopy and an endoscopy...having been clear of gluten for over 6 months, my doctor said I wasn't gluten intolerant....that I had lymphatic colitis! (I wasn't going to eat gluten again just to prove him wrong! I used Nature's Sunshine's Intestinal Soothe & Build, Food Enzymes and Protease H P and Anti-Gas Formula. I also take Omega 3 along with B-vitamins which seem to be helping heart arrhythmia and my frame of mind.

    Link to comment
    Share on other sites
    Guest reneé heising

    Posted

    Very helpful and informative! Thanks for taking the time to put this info into an article!

    Link to comment
    Share on other sites
    Guest meme

    Good information for the most part, but individuals might want to check whether or not they can have the wheat grass, according to most sources, it does not contain gluten.

    Link to comment
    Share on other sites
    Guest Caroline

    Posted

    Thanks for the great advice!

    Link to comment
    Share on other sites
    Guest Jennifer

    Posted

    Good information for the most part, but individuals might want to check whether or not they can have the wheat grass, according to most sources, it does not contain gluten.

    Thanks for the info on wheat grass - like most of us, I see "wheat" and I put the product back on the shelf. I appreciate the correction.

    Link to comment
    Share on other sites
    Guest Kathy

    Very helpful and it makes sense to focus on healing the poor little small intestine after the damage it suffers when gluten is ingested. I had heard of glutamine and did not know about the healing properties for the small intestine. I will definitely look into this further. I feel wheat grass that is freshly juiced is fine for me. I did my research and felt that it would be safe and tried it for 6 days with a friend who owns a juicer. I felt no ill effects and I am one of the people who does experience symptoms when gluten is unfortunately ingested.

    Link to comment
    Share on other sites
    Guest Cammy
    Enjoyed your article and agree with needing to repair the intestines...after colonoscopy and an endoscopy...having been clear of gluten for over 6 months, my doctor said I wasn't gluten intolerant....that I had lymphatic colitis! (I wasn't going to eat gluten again just to prove him wrong! I used Nature's Sunshine's Intestinal Soothe & Build, Food Enzymes and Protease H P and Anti-Gas Formula. I also take Omega 3 along with B-vitamins which seem to be helping heart arrhythmia and my frame of mind.

    Thanks. I have the anti-gas formula and am debating on whether to try it.

    Link to comment
    Share on other sites
    Guest johnty Hickman

    Posted

    I agree with the posts above about wheat grass. I am extremely gluten intolerant, yet I consume wheat grass with out a reaction. I was told below 4" of growth there is no gluten.

    Link to comment
    Share on other sites
    Guest Alicia khuong

    Posted

    I found the article interesting and a first stepping stone to more information about diet.

    Link to comment
    Share on other sites
    Guest C Brown

    Posted

    This was an ok article... I was diagnosed with celiac a few months ago, even though I've probably had this for years! I was just ignore the signs and symptoms. I really didn't get much from this article with all the research I've been doing, I don't think she really gave the best information. Does anyone reading this know why you can't tolerate gluten? NOT BECAUSE YOUR ALLERGIC. It's because bacteria/microbes take over your intestinal flora causing hydrogen, a few different kinds of acids, mucus, and eliminating enzymes! One specifically is lactase! It's the first to go, in celiac and the last to be regained after the intestinal disease has subsided. How do you get it to subside you are wondering? Diet! It's called the Specific Carbohydrate Diet! look it up! Read reviews! It can be cured if your patient and disciplined... might take a year but you'll get your life back to normal.

    Link to comment
    Share on other sites
    Guest Tracy
    This was an ok article... I was diagnosed with celiac a few months ago, even though I've probably had this for years! I was just ignore the signs and symptoms. I really didn't get much from this article with all the research I've been doing, I don't think she really gave the best information. Does anyone reading this know why you can't tolerate gluten? NOT BECAUSE YOUR ALLERGIC. It's because bacteria/microbes take over your intestinal flora causing hydrogen, a few different kinds of acids, mucus, and eliminating enzymes! One specifically is lactase! It's the first to go, in celiac and the last to be regained after the intestinal disease has subsided. How do you get it to subside you are wondering? Diet! It's called the Specific Carbohydrate Diet! look it up! Read reviews! It can be cured if your patient and disciplined... might take a year but you'll get your life back to normal.

    I've done the specific carbohydrate diet, and it really does help. However, as a celiac I have an autoimmune reaction to gluten, which will not go away no matter what I do. Remission, sure. But specific carbohydrate diet won't suddenly make you not celiac anymore.

    Link to comment
    Share on other sites
    Guest katie
    Good information for the most part, but individuals might want to check whether or not they can have the wheat grass, according to most sources, it does not contain gluten.

    yes I agree, even the official celiac website in Australia says wheat grass as a juice is fine, the only problem being in the powdered form there may be additives which can contain gluten.

    Link to comment
    Share on other sites


    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Jennifer Arrington

    I first learned of celiac disease while studying for my masters in nutrition and immunology at Texas A&M University. Prior to this, I had been sick for over six years with unexplained health problems. After discussing my options with a local physician, I decided to try the gluten free diet.  Within days the symptoms had resolved!  Ten years and two healthy children later, I am still gluten free.  In an effort to help bring celiac disease into the mainstream, I have recently published a Christian romance novel, Trusting for Tomorrow, that highlights the struggles of diagnosing and living with celiac disease.  Follow my blog at www.jenniferinjupiter.wordpress.com.


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Scott Adams
    Celiac.com 02/26/2007 - Celiac disease is an inherited autoimmune disorder. Even though celiac disease is genetic, and generally runs in families, it can sometimes be triggered by, or become active for the first time after, surgery, pregnancy, childbirth, viral infection, or severe emotional stress. People with untreated celiac disease typically have abnormally high levels of associated antibodies including anti-gliadin, anti-endomysium and anti-tissue transglutaminase. The presence of these antibodies is caused by an immune system reaction to the presence of gluten in the body.
    When people with celiac disease eat foods or use products containing gluten, the response from their immune system damages the tiny, fingerlike protrusions lining the small intestine, called villi. Properly...


    Wendy Cohan, RN
    Celiac Disease Head to Toe
    Celiac.com 04/05/2019 (Originally published on 10/19/2009) - Gluten intolerance caused by celiac disease, or non-celiac gluten sensitivity, may affect virtually any part of the body. A culprit in multiple health disorders, gluten intolerance is a major driver of health care delivery and associated costs.  While this may seem to be an outrageous claim, a review of the many ways in which gluten intolerance can adversely affect the body will illustrate this point. So, let’s work our way down from head to toe.
    Celiac Disease Can Cause Hair Loss
    Normal, healthy hair is usually glossy and thick.  An autoimmune disorder known as alopecia areata results in abnormal loss of hair, either in patches, or totally, and is one of many autoimmune disorders associated with celiac disease. Malab...


  • Recent Activity

    1. - Scott Adams replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      abnormal weight loss

    2. - Scott Adams replied to Neat1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Maybe celiac, maybe just ncgs?

    3. - Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders
      7

      Sarah Grace

    4. - glucel replied to Sarah Grace's topic in Related Issues & Disorders
      7

      Sarah Grace

    5. - glucel replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      abnormal weight loss


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,086
    • Most Online (within 30 mins)
      7,748

    RKB
    Newest Member
    RKB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • Neat1
      8
    • Sarah Grace
      7
    • Drewy
      6
    • Richwhitelady
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...