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Support Groups
This category contains celiac disease support group information, both international and within the United States of America, including local and national organizations and their contacts.
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Recent Activity
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- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, Migraines ran in my family as well. Correcting my Thiamine insufficiency made a dramatic improvement in frequency and duration. If you take Thiamine, B12 and B6 together, they have analgesic (pain relieving) properties. Taking thiamine every day has cut down on their occurrence and severity for me. Take Thiamine in the form Benfotiamine... -
- knitty kitty replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease34
Refractory Celiac disease - what to do
@ehb Great you're going to start the AIP diet! I know it's scary and stressful, but you'll soon start feeling better. It's a challenge, but you can make it. Do ask for a Erythrocyte Transketolace test which tests for Thiamine level. I hope your Vitamin D level is between 70 and 100 nmol/L. In this optimal range, Vitamin D can act like a... -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease34Refractory Celiac disease - what to do
@knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’... -
- dixonpete commented on dixonpete's blog entry in Pete Dixon4Father, it's been some time since my last hookworm larvae innoculation
I read a research article today about how hookworms are being considered as a standard of care of colitis. Dunno about them used for obesity treatment though. The first thing I did once I figured out I wasn't reacting to gluten anymore was to head for the bakery isle. It had been 13 years..- 1
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- RMJ commented on dixonpete's blog entry in Pete Dixon4Father, it's been some time since my last hookworm larvae innoculation
Dixonpete, I thought of you when I saw this article, although it may not have anything new for you. Worm inspired treatments inch towards the clinic
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