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This category contains celiac disease support group information, both international and within the United States of America, including local and national organizations and their contacts.
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Recent Activity
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- NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease9Newly Diagnosed
Definitely useful info. Thank you! -
- Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease9Newly Diagnosed
It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends... -
- NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease9
Newly Diagnosed
Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist a... -
- NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease9
Newly Diagnosed
Hi! I went to the university here where they have the top doctors. They sent me for an intensive round of lab tests. Once celiac disease turned up, they sent for further lab tests to confirm it. Everything came back positive. The scoping and biopsy I have not had done yet. I thought my PCP was going to refer me to a GI dr to have it done but it didn’t happen. ... -
- Oldturdle replied to CeliacPI's topic in Related Issues & Disorders9Lymphocytic Colitis with Celiac
Thanks, Knitty Kitty! You seem so knowledgeable. I have followed your other posts. Actually, I have been supplementing with all of the B complex vitamins, as well as other recommended vitamins and minerals for over 50 years. My urine is bright yellow after dosing, so I am pretty sure that I am absorbing enough of these supplements to be therapeutic. ...- 1
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