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Still Sick

Posted by Carri Ninja, 02 December 2009 · 239 views

As of recently I had a scope done.
I have been gluten free for a year now and had to have a scope done because I am still bleeding. The Dr. thought that I might have colon cancer. Very scary at 29.
I watched my grandmother go through a lot of the same things. She passed away in her mid 50's. When the scope results came back there was no cancer. THANK GOD. If you have read any of my other posts you might have seen this already.
I was just back at the Dr.'s office yesterday because of ongoing problems.

My scope showed that I still have Celiac damage and that can still be causing the bleeding.
He also told me yesterday that he really couldn't find why I am still having pain, vomiting, weight loss, extremely tired, memory lapses, and a long list of other strange problems. So instead of just telling me I was crazy and imagining things he started looking over other tests I have had done.

Come to find out I have Post Tubal ligation syndrome.
I had never heard of this and was never told the risk of this happening when I had my tubes tied. From what he said there is a 33% chance of getting it in the first 5 years after having your tubes tied. 33% is a huge number considering how many women have their tubes tied each year! The blood flow is cut off to the uterus and ovaries causing a hormone imbalance. WOW right! As if my poor family hasn't suffered enough!

I now have to have a hysterectomy here very soon.

So if your thinking about getting your tubes tied, please talk to your DR. about the risks of Post Tubal ligation Syndrome. It is very very real and can cause a numerous amount of problems.

33% is not a huge percentage, but I am one of that 33%, and the Dr. didn't explain the risk. It is so frustrating and maddening that I have suffered so long with the cealiac and to now have to go through even more because of an elective surgery.

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I had the same thing happen to me.
I first went back to my obgyn because of all of the weird symptoms I was having. Excessive gas, bloating, complete loss of sex drive, hair falling out, inability to lose the weight after my baby was born, waking up several times in the night for no reason and crushing fatigue were ruining my life. I was told the TL had nothing to do with these problems and it was probably just stress. I did numerous searches on the internet of my symptoms and celiac disease kept coming up. I went to a gastroenterologist and was finally taken seriously. The blood test and the scope test revealed that I did have celiac disease. I have been gluten free for 9 months, but I am still having all of my symptoms. I read a book call "It's my Ovaries, Stupid!" by Elizabeth Lee Vliet,M.D. The book seems to say that having a tubal ligation can increase allergies like gluten intolerance. I know that we are genetically wired for certain things to happen, but if a procedure makes things worse, women need to be informed.
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