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fergusminto

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About fergusminto

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  1. You won't get any physician agreeing with this but in IMO yes but not necessarily "allergies ". I am coeliac but also have numerous other "intolerances" which I believe are related to celiac disease. Try laying off dairy (use coconut milk, cream and oil), eggs (use No Egg), oats (similar protein as gluten) and soya (filthy stuff!). Cook everthing from scratch - not difficult, and do not use stock cubes - keep all bones and boil them up to make your own stock. Not difficult and very healthy. Also use honey instead of sugar and no chocolate. Your gut needs to heal before you try and reintroduce these foods. Be kind to it and try your best not to upset it. Very best of luck.
  2. As for eating out, I have found anywhere in the UK that in even semi-decent restaurants I can tell them exactly what I want. Look through their menu and pick things you like and tell them what you want and how to cook it. Most decent chefs will like a change and a challenge and I have been pleasantly surprised with the help that they have given. After a while you will have list of decent restaurants that you can trust. Usually I ask for a rare staeck cooked in Corn oil or olive oil with boiled potatoes and non-buttered veg. If you starts thre the chef usually gives other suggestions but make sure he/she is well aware of basic coeliac gluten cross contamination in kitchen, esp deep fat fryers.
  3. Hi Ken. I know how you feel. I am Coeliac (UK!) with multiple intolerances and it has taken me meny years to isolate exactly what the problem foods are. I cannot really advise you what to eat or to avoid as everyone is different but I can suggest you "go back to basics" - in other words absolutely no processed foods even those that are heavily advertised as Gluten Free etc etc - just have a good look at what is in them. Basic food, cooked from scratch is healthier and much easier to isolate foods that you may be intolerentto. I cannot eat: Gluten, including Oats, all dairy, eggs (whites are worse than yolks), soya (a real b---h), preservatives (phosphates, sulphates, sulphites -which rules out 99.9% of wines and most bottled drinks) and various veg/fruits including butternut squash, cashews, grapes, pears, leeks, Celery (sulphites) and artificially "smoked" meats and stock cubes (I keep all bones and make my own stock, free!). I now cure my own bacon (simple - belly pork with dry cure of rock salt and molasses/demarara sugar for 5 days in fridge) but stay away from all pre-packed sliced meats which are full of preservatives) and the only bread I can eat is Seattle Brown Loaves. Keep well away from "E" numbers and any foods that require processing in their production and beware of "Vegetable" oil which is usually soya. Use Corn oil, Ghee (salted butter melted in a pan, remove the scum which is the protein and you are left with a golden liquid) or walnut/coconut oils. Also beware of Crisps/Chips (USA term). Most are sprayed with some liquid prior to cooking and only one type does not affect me - Kettle Crisps/Chips, low salted only NEVER take artifical flavourings in any foods - hidden in E numbers. If I do eat any of the above the symptoms are basically the same, headaches, wind, tiredness, migraines and a feeling of "low" almost depression but not quite as bad. Can last for up to 5 days but usually 1/2. It is really the caveman diet - absolutely no fast foods. I can make myself a meal in a few minutes with anything I have in the house. I eat any meats, most veg (onions, carrots, garlic, peppers, potatoes, of course, green veg etc). A wok is good to have as is a pressure cooker for making stock out of bones. Menus: Breakfast, bacon, fried potatoes, onions peppers. Tea with Honey and Coconut cream (coconut a gem!) and Seattle bread toasted (best that way with "Pure" Sunflower spread) . Lunch: soup, toasts and meat of some kind. Apples, oranges etc Dinners: staples of potatoes, pastas (Gluten free of course), rice, meats, veg, fish. Never concern yourself with what you cant eat, concentrate on what you can and I enjoy cooking my own food and I can also prepare a dinner party and nobody knows it is designed for me! Best of luck, it is a change of lifestyle for the good. Excuse ramblings at times as I keep remembering things as I write.
  4. Hi, firstly I do not have a medical background but I do suffer from Coeliac. No 'intolerances' linked to celiac disease have been proven but you only need to read comments on this site to see many of us do complain of such. Since being diagnosed 8 years ago I have developed intolerances to oats, all dairy, eggs, soya, Brazil nuts, all preservatives, pears and sulphites (in wine). Tends to be the proteins that are the cause. Symptoms tend to be tiredness, headaches, migraines and a low grade depressive/low feeling - just fed up, no oomph! Can last for between 2 and 5 days. So, you are not alone. Should add that these are not "allergies" which are much more serious.
  5. I see a number of fellow sufferers have already contacted you but just to add to what they have said, I was diagnosed 6 years ago and over that period I have become intolerant to: All dairy, Eggs, Soya, alcohol, sulhites (in fact all chemical preservatives which means I cannot eat processed ham, bacon etc) and a few other silly ones! I now make my own bacon and cook evrything from basic ingredients - no "carry-outs" or junk food at all. Difficulty eating out but you soon get to know those establishments whom you can tell exactly what you want as it is not on the menu! Symptoms of eating any of these include headaches, tiredness, irritability and muscle pain especially in the neck. It does, however, more positively, make you more aware and interested in good food and how you can make your own instead of buying in ready-processed food. One other point - I am no lover of processed "Gluten-Free" food you see so much of advertised in Coeliac Association newsletters and websites and stores - have a good look at what is in them! Full of sugar and stuff you may never have heard of. Hope this helps.
  6. Do not despair! You are not the only one in the US with this problem and believe me there are plenty of us in the UK. I was diagnosed 6 years ago and immediately went onto a gluten-free diet. However, it sone became obvious to me at least (not necessarily to Doctors) that there is much more to celiac disease than just a gluten problem. It has taken me a long time to realise that I am also intolerant to Oats, all Dairy, Eggs, Soya (flthy stuff) and now sulphites found in wines and most other low alcohol drinks. Just recently I have my doubts about alcohol in general but that is a case still to be proven. My advice is cook everything from scratch - no processed meals - and keep a diary for a few weeks on what you are eating and any reactions. Good luck.
  7. Firstly, don’t despair. There are many of us out there with similar probs and some of us have managed to control them. Doctors/nutritionists, generally, do not understand celiac disease and fail to identify the link between celiac disease and food intolerances. celiac disease damages the gut. I was diagnosed 6 years ago and have learned the hard way just like your husband is doing. I suffered from tiredness, fatigue, headaches, weight loss and a feeling of “down” every morning. Through intolerance tests I found I was intolerant to All dairy, eggs (especially whites), chocolate (no matter how pure) and soya (filthy stuff). Even stopped buying stock cubes as we keep all bones and boil them up for stock. As a result I take NO processed foods at all, cooking from scratch just as we used to do when I was a kid (now 65). Alcohol gives me terrible headaches so I am also “dry” which is probably the most difficult thing socially. I do go to a large number of meetings with business folk but I have to bring my own food and you soon find out that many people have similar problems. Now gaining weight and feeling much better now I know really what to avoid. (btw I am food trained so even more frustrating!). Just come off another bad week. I get EnerG bread (Seattle, and I live in Scotland!) but the pharmacist had to swop to another brand – had soya in it (only a trace) – made me feel awful. Drank plenty of water to clear system. For further good info try the SCD site – I got a lot of good info there. Best of luck – just plenty of good basic home cooked food, meat, veg and fruit. Dairy, eggs and any soya are common problems.
  8. Hi BarryC. Not widely known that wine can/does contain gluten. My experienced immunologist informed me that it can be introduced in two ways. Firstly, if the wine is of the "oaked " variety it may have been stored in casks that have been treated with flour and water in irder to seal any potential leaks. Secondly wine is more often than not "fined". This is a process for clearing the cloudy base wine by adding "Finings" which is a mixture of egg white, ground fish bones and wheat glutenate. This is not fully removed from the wine before being bottled and some gluten is almost definitely left in the final product. I am catering trained and this was a surprise to me. If you are very sensitive as I am thus will pos give you headaches after one or two glasses.
  9. Yes there is more to gluten intolerence and Coeliac than meets the eye. I was dignosed with celiac disease 6 years ago. A first the diet went ok but then things started to go wrong about 4 years ago. Too many intolerences building up and I started losing weight and became increasingly tired. Intolerence tests and experience indicated that I was intolerent to all dairy, eggs, soya, oats, and many other things. Was 154 lbs now 133. Now on GAPS diet which is particularly boring - no carbs at all and I live on protein, vegetables and fruit! celiac disease has caused something to happen in my gut so that I am not digesting properly. Had a SIBO breath test (inconclusive), also a scan (no results yet), checked for paracites (no result yet) and have been referred to immunology. My advice is not to go vegan. You are restricted enough as it is. In fact eat some meat/fish as you will need the protein and, you won't like this, don't eat out as you cannot trust any kitchen except your own - I know as I have a degree in Hotel and Catering. Your gut must be inflamed. My Nutritionist (a highly competent doctor) has told me no grains at all, no carbs and use plenty of coconut - milk, oil and cream. Very nice in fact! And ghee which is "clarified" fresh butter. Put unsalted butter into a pan and under low heat skim off the fat as it rises to the top. You should finish nup with a pure golden liquid. Use that in place of oils. Animal fats are also "good" for you. Stay clear of "vegetable" oil which often contains soya but is not disclosed on pakaging. Use Olive oils for salads only. This kind of diet will help to cure the inflammation but can take some time. See a good nutritionist. This won't be easy bu there are many of us out there with similar problems. In fact we are breaking new ground!
  10. I sympathise with what you are going through but you are not alone. I was diagnosed with celiac disease 5 years ago after decades of fatigue but soon found out that celiac disease does more damage to your gut that UK NHS doctors realise. Just fired my UK NHS doc and gone private. Intolerences abound and make me tired and rather depressed so now on a GAPS diet, no carbs, no dairy, no eggs, no soya etc - really a protein, fat, veg and fruit diet and like you cannot trust eating out. This diet makes you very tired as no carbs for medium term energy. Cheated two weeks ago with a curry and white rice and what a difference! New NHS Doc is referring me to a "real" specialist. There are two ways to treat this - the first is long term GAPS diet with nutrient supplements, for year or year and a half (been on it now since mid December 2013). The second is what I call the "nuclear" strategy - strong anti-biotics to kill off all bacteria especially those in my small intestine (SIBO) and them taking pro-biotics. Latter is not guaranteed to work long term but I am willing to give it a try. Luckily I am catering trained so can cope for the most part. Just waiting, like you, for a proper diagnosis/prognosis/treatment. Best of luck tomorrow. Bruce
  11. Hi Llabrword. Welcome to the site. I joined about 4 weeks ago for the same reasons as you - confusion. I have just replied to Bartful in another string of this subject which I think may be of help to you. There are number of items on your list to which I am also intolerant but my reaction is not so quick. I am NOT a doctor just a sufferer btw. There is more to celiac disease than we are generally told and the state of your gut is often affected by it either directly or indirectly. I have just had my hair tested for minerals etc. Cost me about £250 as UK NHS wasn't helpful. Told me a lot about why I had so many intolerances and now I know what to do about it. My specialist also told me that my intolerance test only told me what I was intolerant of "at that time" as intolerances caused by leaky gut tend to be "dynamic" and change regularly. Final piece of advice, find yourself an experienced practitioner like mine - a doctor who has celiac disease and specialises in nutrition. Best of luck.
  12. Hi Bartfull. Same problem as you. Diagnosed 5 years ago but gluten-free diet did not do much except let the doctors tick a box every year as my blood tests came back fine. But actually a different story. Increasing intolerances. UK NHS will not test for intolerances. Had to go privately. Showed I was intolerant to all dairy, eggs and a lot of other foods. Doctors refused to accept results. Told by last doctor 6 weeks ago to "learn to live with it"!! Red rag to a bull. So I went private and started reading up on internet - this site as well. What I read here was confirmed by my specialist (a doctor who is also a Coeliac). celiac disease is only part of the story. Commercial gluten-free products are, on the whole, not good for you due to the processing - just look at the ingredients. Acute lack of energy, weight loss, mood swings etc have been caused by leaking gut (another problem UK NHS refuses to acknowledge). I have been put on a GAPS diet for the next year or so as hair and urine tests (which I also had to pay for) showed a general lack of minerals and some toxic elements in my body. GAPS is a newer version of SCD (Specific Carbohydrate Diet). Google it I know I am in for an uncomfortable 12 months but as it appears I have suffered from this most of my life (another research study I have read), at 64 it is about time I fixed it! Best of luck but please remember that only a small fraction of celiac disease sufferers have their gut completely healed by a gluten-free diet - some are made worse by it (although it IS essential, but keep off processed commercial gluten-free foods). gluten-free + GAPS diet I am not looking forward to!
  13. This thread is very interesting. Like so many coeliacs I thought my bad temper/anger was just part of my personality but realise that I have not always been like this at all and it is my celiac disease and other food intolerances that are playing a part. These intolerances make me very tired and very "down" and if anyone asks/tells me to do something I really can't be bothered doing then they get a mouthful. I also now realise that although my celiac disease antibody level is down to "normal", this is not the full story and there is more to celiac disease than is commonly realised. Since going on the gluten-free diet I have become intolerant to all dairy, oats, eggs, soya, grapes, pears, ginger....never ending. My body appears to be a mass of inflammation - costant SI pain, sore arms which leads to frequent headaches and migraines. But it is the depressive symptoms that I truly detest and the anger/short temper that comes with it. Now seeing a specialist who hopefully will guide me through a healing diet.
  14. Forgot to add - my wife reminded me - that the word "inflammation" is recurrent in both posts. I have an inflamed sacroileac and tennis elbow in both arms. All have occurred since going on this gluten-free diet and I have been taking diclofenac an anti-inflammatory drug which I detest! I am also seeing a chiropractor monthly. In addition I have intolerances to aromas which make me sneeze and run uncontrollably. Otherwise I have been 100% fit all my life!