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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About mbr22m

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  1. Thanks, Ed. I saw the neurologist and she suspects that low iron may be the cause and is running an iron panel. It does get discouraging when I eat healthy, exercise and take vitamins and still have issues that don't seem to improve, but I try and be grateful for the days I feel good :-) Neurologist said it is possibly restless leg syndrome, but still arranged for nerve conduction study. Still waiting on that appt. I still don't understand how that could explain tingling in hands though. Hopefully iron panel might reveal answers. Also found out my vitamin D was on the low side (I thought it was ok)
  2. Thank you all Yes icelandgirl, Just thinking about having to see another doctor gives me anxiety too. My mother has 4 AI diseases (lupus, AI hepatitis, sjogrens and hashi) so I am always worried about heading down the same path. I swear she has celiac too but she refuses to even try going gluten-free to see if she improves, and her health continues to decline. Thanks ravenwoodglass, I have appt with my chiropractor Friday for an alignment. I hunch over a computer all day so maybe it could be a pinched nerve. I hope!
  3. I'm just do tired.. every month, It's something different to the point that my primary care thinks I'm a neurotic hypochondriac. . I'm tired of being asked if I'm under a lot of stress, then handed a rx for xanax.. Does it ever get better?
  4. Thank you all :-) I do take B complex everyday, along with a protein shake every morning that has a lot of vitamins in it. I'll get the B6 checked. I know calcium, D, magnesium, potassium and B12 are all normal.
  5. Hi all, I was diagnosed with celiac about ten years ago through biopsy and blood test. About 5 years after going gluten-free, I started having neurological symptoms (tingling, cool like numbness in my hands). It was during a stressful time in my life. I went to a neurologist and she did an eval to check my reflexes, balance etc and it was fine. I increased my B12 and it went away. Now, It returned and much worse. It's mostly at night and I wake up with numb, tingling hands and feet and patches on my legs. I'm really scared and started researching on here and it seems to be common. Has anyone else has this happen after being gluten-free for so long? I know it's not CC because my GI just ran a battery of tests to see if I was still inadvertently being exposed and all came back negative. I have another appointment with neurologist for the nerve conduction study.
  6. Barrett's Esophagus & Celiac

    I finally got my biopsy results back. My doctor kept rescheduling my appointment.. He said the biopsies came back negative for barrett's, but I have hiatal hernia, gastritis and esophagitis. On the report he gave me after endoscopy, it says 'irregular SC junction indicates barrett's esophagus'. I only have to take ppis for 4-6 weeks. I bought a wedge pillow too and that helped. I really would like to manage this without the ppis. I find Gaviscon helps with the throat irritation, which I thought was allergy related all this time.
  7. Barrett's Esophagus & Celiac

    thanks, I will have to check the digestzen out. I take digestive enzymes and those help some, especially the Enzymedica brand.
  8. Barrett's Esophagus & Celiac

    I have a hiatal hernia as well and I think the reflux is a result of that rather than too much acid. I've tried 3 different PPIs and they all make me feel awful (everything from really sore muscles to jaw and throat pain, to extreme dizziness and feeling of fullness after eating only couple bites of food). I'm on Nexium now and that isn't as bad for me as protonix or omeprazole. I'm starting to wean off now because they're just making me feel much worse, not better. I've been trying to manage it through diet and portion control now. Also Taking aloe, honey and DGL. Hopefully that will help. Thanks for responding
  9. Barrett's Esophagus & Celiac

    Thanks for responding. I just started seeing this GI. My other GI diagnosed me with gastritis and hiatal hernia. I'm waiting on biopsies from New doc but he told me I must take PPI, which oddly enough make me feel worse. He's also testing for h pylori and addtl food allergies We don't eat a lot of spicy food; mostly fish, chicken, steamed veggies. I'm hoping everything will be ok now that I'm taking PPI.
  10. Hi all, I was recently diagnosed with barrett's esophagus. I'm wondering if anyone out there has this and celiac that can calm my nerves? Everytime I've googled it, cancer comes up and I'm having panic attacks. . I've been gluten free for several years after a celiac diagnosis. I'm also lactose, soy, corn free. I'm so surprised by this new diagnosis as I rarely have reflux or heartburn.
  11. Very Discouraged!

    I have problems with corn, soy and dairy, in addition to gluten. A lot of processed foods (even if certified gluten free) makes me feel awful, especially if it contains GMO corn, soy, etc. I read something about 'cross reactive' foods worth a read. I also had the opportunity to see Dr Alessio Fasano speak at a celiac convention and he said it only takes 3 grains of gluten the size of a grain of sand to make someone with celiac ill, so definitely agree with other posters about totally gluten-free kitchen. Also, shampoo, conditioner, shower gel, toothpaste, etc. I was getting a rash from makeup and lotion that contained gluten. Abes market and vitacost online have many gluten free bath and body products.
  12. Has Anyone Cruised Windstar?

    Thank you, cyclinglady! This is my first time traveling with celiac. We usually vacation nearby and I bring a cooler with me.
  13. I'm going on a 10 day cruise with Windstar (Italy to Spain) and wondering if anyone else has sailed with them and how their experience was. I'm packing emergency snacks and the ship was notified months ago, but I'm still so nervous. Any cruising tips to ease my anxiety??
  14. Have they tested him for LOW stomach acid? The reason I ask is that the symptoms for high and low stomach acid are the same. GI was giving me prilosec, but then when I had saliva stool test, turned out I had low stomach acid and digestive enzymes, which was what was causing my reflux and the prilosec was making it worse
  15. I take methalated sublingual b12 too and that helped with my nerve problems. I had bad neuropathy. I also got gastroenteritis from eating out, and only started feeling better after a combination of antibiotics and supplements that my naturopath put me on (igG, DGL, glutamine, aloe, probiotics). I don't think most primary care physicians know enough about celiac to be helpful, At least in my experience, which is why I wound up seeking alternative medicine