Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hyper- Acid Secretion?
0

2 posts in this topic

I apologize in advance for the long post. I guess I am still in shock. I am a 54 year old female in Tolland County, Connecticut and was just diagnosed this Wednesday. I had my upper endo and colonoscopy on 11/13/13. The Dr put me on Zantac 300 mg twice a day, along with Carafate. I had an allergic reaction to the Carafate. I do have a host of allergies to foods (including seafood) and medications ( like Protonix). The only other thing they told me to take for relief was Tums. I did not start my gluten free diet until the confirmed diagnosis of Celiac on 11/27/13. My blood work was mildly positive but they said the biopsy showed severe celiac disease. I also have esophagitis ( no Barrett's, Thank God), as well as gastritis and multiple duodenal ulcers. No evidence of yeast or H.Pylori.

 

Talk about timing just before the ultimate food binge day.  By the time I got home from the Dr, my daughter who probably also has celiac (she will have Upper Endo on Jan 2), divided the pantry and gave me separate shelf space from foods with gluten. I immediately downloaded gluten free apps for my phone and went food shopping since I was cooking the turkey, etc.  I was able to have a good Thanksgiving dinner. So I thought to myself, I am going to manage this with a shared gluten household and all will be well.

 

Last night I had what I guess is hyper-acid secretion that woke me from my sleep. TUMS didn’t help. OK what is this now? I did a little searching on Google and it made me crazy. They were saying that being on acid suppressors is bad in the long run ( H 2 blockers or PPI inhibitors) and may not work for everyone. Of course now it is Saturday so I can’t talk to the MD. How else am I going to heal the esophagitis, gastritis and duodenal ulcers? I read the phrase gluten withdrawal and have to research this. Might this have anything to do with hyper acid secretion?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the forum!

A few things come to mind after reading your post.  First, have you tried taking a digestive enzyme?  If you have ulcers you would want to check with your doctor first, but a good digestive enzyme can really help your body break down your food - especially when you're healing from all the Celiac damage and probably can't break them down on your own.  If your doctor says it's ok, only take the digestive enzyme when you eat enough food - including protein - to need them.  Given the ulcers, you would most likely want a digestive enzyme that does not have hydrocloric acid in it.

 

The second thing is a good probiotic.  The bacteria in the gut tends to get out of whack with Celiac - and a good probiotic can help right things around and also help with disgestion.

The last thing, aside from finding out what other foods your body can't tolerate right now, is to try sticking to whole foods that are easily digested.  Don't make your body work too hard while it is trying to heal.

 

Congratulations on immediately going gluten-free!  I found going cold-turkey worked best for me too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,650
    • Total Posts
      921,606
  • Topics

  • Posts

    • This subject is often raised on this site, especially by women.  I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years.   Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen great improvement in their own hair and what they did. There are lots of tips on line but I am particularly interested in hearing from someone who has actually been there, done that, and now has better hair!  
    • This subject is often raised on this site, especially by women.  I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years.   Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen great improvement in their own hair and what they did. There are lots of tips on line but I am particularly interested in hearing from someone who has actually been there, done that, and now has better hair!  
    • Oh i hope so!! I'm really anxious about the procedure as I've never done it before. I've been through operations but never an endoscopy and the thought of it is really scaring me! Thank you for giving me some courage! 
    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/ gene testing?  Some 30% of the poulation carries the celiac genes.  It just tells you that you have the chance to develop celiac disease.  It can not diagnose you.    
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined