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Trying To Determine If I Have Celiac?


eckert177

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eckert177 Newbie

Hello everyone. I have been lurking around this newsgroup for awhile

now. I finally have the courage to post and ask some questions. I am a 22

year old male. 5'6 138lbs. I have basically been this weight since I was

about 17 years old. About 3 years ago I started feeling stomach

discomfort.What I mean by that, is that everyone morning if I awake early I

get the runs. Or basically the pain of diahriaa. I have come to accept this

happening every morning. Not liquidly but soft. (I apologize for the terms

but you all are probably used to it:) At night time when I lay down and

through out the day my stomach just feels like there's always a knot in it.

During the day it growls even when I'm not hungry. It makes weird noises the

worst at night when I lay down. Its come to the point where I need some

background noise on in the background cause its embarrassing. It just seems

like its basically an overactive stomach.

But its effecting my life. I try to stay away from quiet rooms with

allot of people. The worst is the fact that in the morning my stomach is the

most discomforting. It feels like a knot and I'm not hungry for about an

hour or 2 after I wake up. So if I have to head to a meeting or class my

stomach is the worst then. I hope I have explained this well. I appreciate

all the feedback and know someone out there can recommend what to do. I know

I should head to the doctors. But what type of doctor and I feel more

comfortable going to one after getting feedback from everyone. Or if anyone

has had this in the past and know of little remedies. Thanks you all very

much. And God Bless.

Jim:)


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Guest jhmom

Hi Jim and welcome! :D

I know EXACTLY what you are talking about from the morning runs to the burbling intestines!!! I have not found anything to stop either of these symptoms.

I have been gluten-free since last Sept and however I have seen some improvement I am not 100% better but at least the abdominal pain is gone. In my case there may be overlapping problems, the doctor is still trying to figure it all out but I suggest you try elimitating dairy and or other possible culprits, that is what I plan to do too.

Good luck to you and God Bless

plantime Contributor

Whenever I have an accident, my stomach gurgles so loud it can be heard over my teens' music. I can also feel whatever it was I ate as it passes each stage of my intestines. It feels like a jagged ball as it goes, and sometimes my abdomen is red and swollen where it is at. Try going gluten-free, see if it makes a difference to your body. The worst that can happen, is that you will have restricted your diet unnecessarily for 4-6 weeks. The morning runs is probably because you have not gone all night, and everything has slid through at once. The place to start is with your regular doctor. If you don't get answers there, then start looking for another doctor. My regular doctor is sending me to an allergist, and I am hoping the allergist will order the blood panels I want. I do hope you get better soon!

travelthomas Apprentice

Hi Jim,

I went through the same situation in college. It was quite embarrassing.

I found out that I have celiac disease by living outside of the U.S. Every time I came back here, and went on a gluten filled diet, I got really sick. It was a no brainer for me to eliminate gluten from my diet.

You might give an Asian type diet a try to see what happens (or move to Thailand). :D Just stay away from the instant rice (it makes me sick), and frozen chicken (the chicken broth has gluten in it).

Good luck. B)

Guest aramgard

Jim, Thomas is right. It doesn't really take a doctor to diagnose us. Before I was diagnosed you could hear me over the TV or radio or grandchildren clear to the other side of the house. I visited doctors many times during the 53 years it took them to diagnose me and I was only diagnosed because I had seen someone on TV talking about Celiac and specifically requested the testing. The doctors reply was "Oh that couldn't be the problem". But he called and appologized after the results came back. Nighttime had slowly became hellish, with pain, bloating, cramping and then the constant diarrhea. It takes several months, usually, to feel better on a gluten free diet, but it is really worth the effort. I've been gluten free for three years and have only had the cramping and diarrhea once in the past year and that was because I forgot to read a label. If you need help with the diet, just tell us, we are all experts with this diet. It does become easier after a few months. Don't give up hope, just try the diet for a few months and see the difference. Shirley

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    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
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      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
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