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Trying To Determine If I Have Celiac?


eckert177

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eckert177 Newbie

Hello everyone. I have been lurking around this newsgroup for awhile

now. I finally have the courage to post and ask some questions. I am a 22

year old male. 5'6 138lbs. I have basically been this weight since I was

about 17 years old. About 3 years ago I started feeling stomach

discomfort.What I mean by that, is that everyone morning if I awake early I

get the runs. Or basically the pain of diahriaa. I have come to accept this

happening every morning. Not liquidly but soft. (I apologize for the terms

but you all are probably used to it:) At night time when I lay down and

through out the day my stomach just feels like there's always a knot in it.

During the day it growls even when I'm not hungry. It makes weird noises the

worst at night when I lay down. Its come to the point where I need some

background noise on in the background cause its embarrassing. It just seems

like its basically an overactive stomach.

But its effecting my life. I try to stay away from quiet rooms with

allot of people. The worst is the fact that in the morning my stomach is the

most discomforting. It feels like a knot and I'm not hungry for about an

hour or 2 after I wake up. So if I have to head to a meeting or class my

stomach is the worst then. I hope I have explained this well. I appreciate

all the feedback and know someone out there can recommend what to do. I know

I should head to the doctors. But what type of doctor and I feel more

comfortable going to one after getting feedback from everyone. Or if anyone

has had this in the past and know of little remedies. Thanks you all very

much. And God Bless.

Jim:)


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Guest jhmom

Hi Jim and welcome! :D

I know EXACTLY what you are talking about from the morning runs to the burbling intestines!!! I have not found anything to stop either of these symptoms.

I have been gluten-free since last Sept and however I have seen some improvement I am not 100% better but at least the abdominal pain is gone. In my case there may be overlapping problems, the doctor is still trying to figure it all out but I suggest you try elimitating dairy and or other possible culprits, that is what I plan to do too.

Good luck to you and God Bless

plantime Contributor

Whenever I have an accident, my stomach gurgles so loud it can be heard over my teens' music. I can also feel whatever it was I ate as it passes each stage of my intestines. It feels like a jagged ball as it goes, and sometimes my abdomen is red and swollen where it is at. Try going gluten-free, see if it makes a difference to your body. The worst that can happen, is that you will have restricted your diet unnecessarily for 4-6 weeks. The morning runs is probably because you have not gone all night, and everything has slid through at once. The place to start is with your regular doctor. If you don't get answers there, then start looking for another doctor. My regular doctor is sending me to an allergist, and I am hoping the allergist will order the blood panels I want. I do hope you get better soon!

travelthomas Apprentice

Hi Jim,

I went through the same situation in college. It was quite embarrassing.

I found out that I have celiac disease by living outside of the U.S. Every time I came back here, and went on a gluten filled diet, I got really sick. It was a no brainer for me to eliminate gluten from my diet.

You might give an Asian type diet a try to see what happens (or move to Thailand). :D Just stay away from the instant rice (it makes me sick), and frozen chicken (the chicken broth has gluten in it).

Good luck. B)

Guest aramgard

Jim, Thomas is right. It doesn't really take a doctor to diagnose us. Before I was diagnosed you could hear me over the TV or radio or grandchildren clear to the other side of the house. I visited doctors many times during the 53 years it took them to diagnose me and I was only diagnosed because I had seen someone on TV talking about Celiac and specifically requested the testing. The doctors reply was "Oh that couldn't be the problem". But he called and appologized after the results came back. Nighttime had slowly became hellish, with pain, bloating, cramping and then the constant diarrhea. It takes several months, usually, to feel better on a gluten free diet, but it is really worth the effort. I've been gluten free for three years and have only had the cramping and diarrhea once in the past year and that was because I forgot to read a label. If you need help with the diet, just tell us, we are all experts with this diet. It does become easier after a few months. Don't give up hope, just try the diet for a few months and see the difference. Shirley

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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