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Chronic Sinusitis & Celiac Disease


jmarie

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jmarie Newbie

I have been gluten-free since a biopsy diagnosis last April, but I have had a chronic sinus infection since October :( . I have them every year, and now I have a consultation appt with a ENT to determine whether I need surgery. When I googled "chronic sinusitis celiac disease", I immediately came to a site that listed celiac as a predisposition to chronic sinusitis. Since my insurance company has refused a CAT scan (recommended by my PCP), I wondered whether I could site celiac disease as a predisposition that might make them more inclined to treat it (apparently 4 months of sinus infections and 3 courses of antibiotics are not enough :huh: . I wonder if anyone has any knowledge or experience around this issue...

Thanks,

Marie


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Jnkmnky Collaborator

I rented a house with mold and had a sinus infection that should have killed me. :) But it didn't! I found by the fifth infection, that taking the red sudafed tablets, twice a day- once in the morning, once at night- for a month after the round of antibiotics helped to keep the infection gone. I think you're really prone to re-infection after a sinus infection. The "therapeudic" use of the sudafed was what kept the infection from coming back after the antibiotics did their job. My friend just had a bad infection and I told her the same thing. She thinks it helped to finally kill the infection.

ianm Apprentice

My nose used to be constantly stuffed up but since I cut the gluten I can finally breath easy.

gf4life Enthusiast

My middle child has chronic sinus problems. I can't say if they are celiac related or not, but I can tell you this. They cannot tell what is going on in your sinus with just flat film x-rays. And an MRI is not suitable wither. They HAVE to do a CT scan in order to get a good view of what is going on in the sinus...

Hopefully the ENT will put some pressure on the insurance and get the test done. I hope you don't need surgery, but I can tell you that it isn't too bad. My 9 year old has already gone through two since he was 7 and is lokking at possibly another sinus surgery this year. :( He is a trooper though and doesn't mind having them done. He hates missing school though, since it is hard to get caught up.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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