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Test Results Are In.....
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3 posts in this topic

I guess the only positive test I still have is the Gliadin IgA. My doctor says it's not a big deal until the Ttg turns positive, but that it could be latent Celiac.

I'm still wondering if anyone has any advice on high IgA and what to do with the info. Mine was 74 normal is 25 or less.........

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Hi! I am in the process of trying to figure out my results also. My ttg was negative and my Iga was only 24, but I had some other numbers that were higher. My small intestine biopsy does show damaged villi. Today I spoke with a very knowledgable nurse at a gi office - she told me that if the ttg is positive, even with a normal Iga, Celiac should be investigated as a possibility. She did seem puzzled that my ttg was normal (or actually negative) and said that there is a genetic test that can be done I'm not sure how this is supposed to be written, but she said to ask for HLAeq2 and HLAdq8 tests. If they are both negative, then it is not Celiac. If one is positive and one is negative, you still have a 30% chance of not getting Celiac. I am going to post this info and see if anyone else is familiar with it and I'm going to request the test because I want to make sure I am following the right treatment. She said there are many other conditions that can damage your villi. Good luck with your results!

LISA

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Thanks Lisa. I'm still doing research on this. I wish I could afford my own tests but I just cant right now.

You were brave enough for the biopsy, I havent chosen to do one yet.

Do you have symptoms?

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    • It is absolutely possible for non-Celiac gluten intolerance and/or gluten sensitivity to cause extreme symptoms. The difference between those and Celiac is that Celiac will cause actual small intestinal damage to the villi, while NCGI/gluten sensitivity can have extreme symptoms, there is no damage to the small intestine.  Other causes of bloating can be SIBO or small intestinal bacterial overgrowth.  The title pretty much says it all and you need antibiotics to help combat that. Basically, your small intestine's bacteria is out of whack and you have more bad bacteria than good. I know there is a test but have no experience with this. You may want to google it and read up on it and maybe ask a specialist about it too?  This is something they should be testing for anyway to figure out what is going on.  You could also have food allergies, as opposed to an intolerance like Celiac.  You can see why this is so hard to figure out sometimes! Are you sure you are completely gluten free?  This diet has a big learning curve and cross contamination is important.  Please take a look, if you already have not, at this link.  It was written by a previous member of the forum and although it is a bit lengthy, it is what you need to know about following the diet and living gluten free successfully. She did a very good job on it!  Even tiny amounts in your diet can still cause symptoms. http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ Have you been tested for vitamin deficiencies or anemia?  These could offer a clue to see whether you are malnourished or not. Many people with celiac have both deficiencies and anemia.  Between testing for these and genetic testing to see if you carry a Celiac gene might help you to rule it out if you cannot have a scope done.  But you do remember that you need to be eating gluten for the scope? 
    • Celiac disease is a tricky rascal. Just when you think you've got it under control, it sneaks up and manifests into new and often unexpected problems. At least, this is what we have found over the last decade. From contacts with others who have Celiac disease, we know we're not alone. I'm in my early thirties and find that sometimes my body acts more like that of an old man's. View the full article
    • Thank you, Gemini.   Is it possible for non-celiac gluten sensitivity or intolerance to have this severe symptoms?
      I'm on gluten free diet two weeks now and no change... What are other causes of these symptoms beside food?
    • I am trying to decipher the test and it looks to me like the Total IgA is fine.  Your number appears to be in the middle of the reference range, which would be sufficient IgA for testing.  I am in America so your country's testing is a bit different from here....I really hope I got that right!  If you have severe enough symptoms of a GI problem, some doctors here would move onto a biopsy even with negative blood results.  I think if you cannot get a full Celiac panel done, then a scope with biopsy should come next. Severe bloating has a cause and they need to rule out a food problem. There can be other causes but food is usually a big trigger. Yes, keep us updated!  We are here to help.
    • A rapidly expanding knowledge of the celiac disease regulatory pathway could soon lead to new breakthroughs. View the full article
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