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What's My First Step?


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3 replies to this topic

#1 Fettucini

 
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Posted 14 July 2004 - 05:31 PM

Does anyone know where I can be tested? I have low income, and no insurance.

What level of testing (if any) would be appropriate for me given my symptoms:

- difficulty focusing, forgetfulness
- headache
- diahrea, loose stools
- depression/fatigue
- feeling a need for nurishment, even when full

Also, I am thin despite eating plenty.

I have been unable to clearly establish a link between eating wheat and my
symptons. If there is a link, there seems to be a delay of three days to a week.
This delay (and perhaps lack of mental clarity) makes it difficult for me to know
whether of not I am imagining the connection. I do not have any obvious
increase in symptoms on the same day I eat wheat, even in large quantities.

My understanding is that the response time to wheat among people with celiac
disease varies. Is three days to a week typical?

After avoiding wheat for a couple months, I noticed improvement, but this could
be due to a variety of unrelated causes. Casein or lactose intolerance may be
another suspect because I was severely allergic to milk as an infant.

I am starting a spreadsheet to track diet and symptoms over time. This should
be useful in any case.
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#2 Fettucini

 
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Posted 14 July 2004 - 05:35 PM

BTW, I am in the Santa Cruz, California area. Any thoughts about how
I can find a good clinic that can to celiac screening?
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#3 celiac3270

 
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Posted 14 July 2004 - 05:38 PM

I know what everyone else will recommend so I may as well say it now: Enterolab. You get advice on what tests to take (and they're supposed to be more inexpensive)....you have choices on how many and which you choose to take. Someone else can give you more info. I haven't taken any tests there, but many others have.

-celiac3270
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#4 tarnalberry

 
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Posted 14 July 2004 - 07:58 PM

If you're trying to do a dietary challenge for gluten intolerance, don't forget that just cutting out wheat is not enough. You have to cut out anything that has or is made from wheat, barley, rye, and oats. Have you gone over the safe/unsafe list on this site?
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA




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