Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Home Testing Kits


Guest gillian502

Recommended Posts

Guest gillian502

I've had so much unreliable information from companies lately, that I'd like to have an at-home testing kit for those times when the product I'm using may be suspect. Does anyone know what types of home kits are available and the approximate cost?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wish Newbie

I have never personally used a gluten test kit, but another Celiac I know has and we have discussed them. The kits are manufactured by ELISA technologies and cost $80. Each kit contains materials for 5 individual tests. You can find out a lot more at the ELISA website (Open Original Shared Link).

My opinion on the test kits (and others may disagree) is that they are best for telling you which foods DO contain gluten--that is, if you get any degree of positive result, you know not to consume that food. However, negative results do not necessarily indicate that a food is safe because there is always the chance that you will be testing a candy bar/scoop of ice cream/etc. from a batch made during the shift of more careful workers...it could still be the case that there is contamination in other batches of the same product even though the one sample you tested came back negative. Of course, you can always test the same product repeatedly over the course of time and become more certain of the result, but that gets pretty pricey. This is just my opinion, though...if you think the peace of mind is worth the high cost, then go for it!

Good luck,

Wish

Guest Sibewill

I've tried the kits twice so far and have to agree with Wish. Reason being, that both times it came out inconclusive. By that I mean the closest reading would be no gluten, but it did not conform to any exact result. The first test was on a gluten-free pizza, and the second on Scotch (just really wishfull thinking and I figured it would make a good "control" sample). The results were practically the same visually but as I was told, one was (likely)negative and the other positive. This was told to me when I called the company and was connected to a very helpfull engineer who explained in great detail how the tests work... it made sense at the time but I certainly can't figure it out right now. Basically though, the Scotch was so high in Gluten that it "washed out" the tester. The pizza he explained was in all likelihood safe (which I'm guaranteed by the maker it is). I still have some test kits remaining but at the price and lack of defined results, I am saving them for something realllly important since there is still some risk involved as a function of my not being a lab technician who will operate these extremely sensitive test kits exactly right. They take very small samples (use a food processor to ensure it mixes well) and mix with a tiny amount of liquid which is easy to put too much in and ruin the test. So in my opinion, too much $$$ and not enough accuracy for my likes.

sorry to ramble but I'm a bit under the weather again!

Guest gillian502

Thanks for the replies. My plan was mostly to use them on medications to see if they have any gluten levels in them...the pharmacutical companies never seem able to guartantee it one way or another. But it sounds as if it may not be able to test meds. A little pricey for only 5 test kits, too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.