Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Home Testing Kits


Guest gillian502

Recommended Posts

Guest gillian502

I've had so much unreliable information from companies lately, that I'd like to have an at-home testing kit for those times when the product I'm using may be suspect. Does anyone know what types of home kits are available and the approximate cost?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wish Newbie

I have never personally used a gluten test kit, but another Celiac I know has and we have discussed them. The kits are manufactured by ELISA technologies and cost $80. Each kit contains materials for 5 individual tests. You can find out a lot more at the ELISA website (Open Original Shared Link).

My opinion on the test kits (and others may disagree) is that they are best for telling you which foods DO contain gluten--that is, if you get any degree of positive result, you know not to consume that food. However, negative results do not necessarily indicate that a food is safe because there is always the chance that you will be testing a candy bar/scoop of ice cream/etc. from a batch made during the shift of more careful workers...it could still be the case that there is contamination in other batches of the same product even though the one sample you tested came back negative. Of course, you can always test the same product repeatedly over the course of time and become more certain of the result, but that gets pretty pricey. This is just my opinion, though...if you think the peace of mind is worth the high cost, then go for it!

Good luck,

Wish

Guest Sibewill

I've tried the kits twice so far and have to agree with Wish. Reason being, that both times it came out inconclusive. By that I mean the closest reading would be no gluten, but it did not conform to any exact result. The first test was on a gluten-free pizza, and the second on Scotch (just really wishfull thinking and I figured it would make a good "control" sample). The results were practically the same visually but as I was told, one was (likely)negative and the other positive. This was told to me when I called the company and was connected to a very helpfull engineer who explained in great detail how the tests work... it made sense at the time but I certainly can't figure it out right now. Basically though, the Scotch was so high in Gluten that it "washed out" the tester. The pizza he explained was in all likelihood safe (which I'm guaranteed by the maker it is). I still have some test kits remaining but at the price and lack of defined results, I am saving them for something realllly important since there is still some risk involved as a function of my not being a lab technician who will operate these extremely sensitive test kits exactly right. They take very small samples (use a food processor to ensure it mixes well) and mix with a tiny amount of liquid which is easy to put too much in and ruin the test. So in my opinion, too much $$$ and not enough accuracy for my likes.

sorry to ramble but I'm a bit under the weather again!

Guest gillian502

Thanks for the replies. My plan was mostly to use them on medications to see if they have any gluten levels in them...the pharmacutical companies never seem able to guartantee it one way or another. But it sounds as if it may not be able to test meds. A little pricey for only 5 test kits, too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748

    Cwbtex
    Newest Member
    Cwbtex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.