Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Celiacs?

Guest mares83

By Guest mares83
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest mares83
Guest mares83
Posted

I recently was tested for celiacs (IGA-43 and IGG-110) and had a biopsy done that did not show any damage. My Endomysial IGA and Reticulin IGA were not detected. My doctor says I can either go on a gluten free trial or just not worry about it. Any advice or suggestions would be greatly appreciated because I'm not really sure what I should do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

Two positive tests is a pretty high indicator of some sort of a gluten problem -- although it might not yet be full-blown celiac. In particular, the Iga test is VERY specific. Are you convinced the biopsy was done correctly, taking a minimum of a half dozen samples (10 is even better)? Damage can be patchy and can be missed.

The biggest question is whether you have symptoms. You must, otherwise why would he test you? If you do have symptoms do you feel bad enough to go gluten-free and see if that solves your problems?

richard

Guest mares83
Guest mares83
Posted

They did take 7 biopsy samples; the only reason I can think of that the biopsy results wouldn't be accurate is that I'm on some medicane for Crohns Disease (my doctor had mentioned before that some of the same meds are used to treate both). I was initially tested a few months ago after I had a Crohns flare up and became anemic very fast (which isn't as typical with Crohns). I don't have any pain after eating; although sometimes when I eat rich food like pasta or calzones I have some stomach pain (although I'm not sure if that would be Crohns or Celiac). My doctor is referring me to a nutritionist so I can have a gluten free trial (she's says for about two months, and then have my bloodwork rechecked. So i guess we'll see..........

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,166
    • Most Online (within 30 mins)
      7,748
    Morrelle
    Newest Member
    Morrelle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ValerieC
      Guide to colleges for celiac disease

      By ValerieC · Posted

      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
    • Scott Adams
      TTG IgA and IGA elevated mildy

      By Scott Adams · Posted

      Around 9% of celiacs cannot tolerate any oats, even gluten-free oats. It might be worth eliminating them for a few months, then get re-tested.
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      I only eat certifed gluten-free products but a lot of which are processed. Could there be trace gluten in those or is that very unlikely? 
    • Scott Adams
      TTG IgA and IGA elevated mildy

      By Scott Adams · Posted

      For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes (you may want to avoid oats):    
×
×
  • Create New...