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Gf & Feeling Good - Negative Blood Test
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After 14 years of illness - anxiety/depression, severe fatigue, bloating/GI disturbance, etc. I decided to try a gluten-free diet prompted by a newspaper article on Celiac Disease. Without doubt, this has been the most significant development over the last 14 years. There was a very significant improvement in the GI symptoms after a couple of days; after a week, I had much more energy; and my mood has also improved.

This prompted me to call my doctor and discuss the findings. As I have been overweight (weight went from 168 to 264lbs over the last 14 years), he told me that I wouldn't be a classic celiac, but suggested that I get some bloods done to check for antibodies. I had been on the gluten-free diet for two weeks when the bloods were done.

Got the results today and they were negative (don

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I agree - a definite diagnosis would be nice - for my daughter too. But feeling better is even nicer, if gluten-free is doing that for you as it is my daughter, continue - diagnosis or not.

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See if you can get the exact results from your tests, they might be of some help. It's important to know which ones were run, as there are many. Also, some show negative on their blood tests, but when given a biopsy, show positive... that is not uncommon. Some never show positive, but improve on the diet (there are many in that situation). Being on a gluten-free diet can alter your test results, so that's important to know. It's great to hear that you're feeling better!!

Gretchen

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I agree with getting the exact test results. "Negative" is not the hard and fast interpretation that you'd think it is. Two doctors have disagreed on my test results in particular, but I go by how I feel on the diet. (My allergist didn't want to believe that only having a slightly elevated anti-reticulin IgG could indicate gluten-intolerance.) But I also had been gluten-free for two weeks before my blood test, and - quite frankly - if you didn't have much damage when you had your 'scope, you may have healed fast enough that the antibodies weren't escaping your digestive tract as well as they had in the past.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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