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Gf & Feeling Good - Negative Blood Test
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After 14 years of illness - anxiety/depression, severe fatigue, bloating/GI disturbance, etc. I decided to try a gluten-free diet prompted by a newspaper article on Celiac Disease. Without doubt, this has been the most significant development over the last 14 years. There was a very significant improvement in the GI symptoms after a couple of days; after a week, I had much more energy; and my mood has also improved.

This prompted me to call my doctor and discuss the findings. As I have been overweight (weight went from 168 to 264lbs over the last 14 years), he told me that I wouldn't be a classic celiac, but suggested that I get some bloods done to check for antibodies. I had been on the gluten-free diet for two weeks when the bloods were done.

Got the results today and they were negative (don

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I agree - a definite diagnosis would be nice - for my daughter too. But feeling better is even nicer, if gluten-free is doing that for you as it is my daughter, continue - diagnosis or not.

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See if you can get the exact results from your tests, they might be of some help. It's important to know which ones were run, as there are many. Also, some show negative on their blood tests, but when given a biopsy, show positive... that is not uncommon. Some never show positive, but improve on the diet (there are many in that situation). Being on a gluten-free diet can alter your test results, so that's important to know. It's great to hear that you're feeling better!!

Gretchen

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I agree with getting the exact test results. "Negative" is not the hard and fast interpretation that you'd think it is. Two doctors have disagreed on my test results in particular, but I go by how I feel on the diet. (My allergist didn't want to believe that only having a slightly elevated anti-reticulin IgG could indicate gluten-intolerance.) But I also had been gluten-free for two weeks before my blood test, and - quite frankly - if you didn't have much damage when you had your 'scope, you may have healed fast enough that the antibodies weren't escaping your digestive tract as well as they had in the past.

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    • Biopsy confirmed?
      Right, usually they do an endoscopy after a positive blood antibody test.  The biopsy confirms the antibody results.  Doing them in the reverse order doesn't hurt anything though.  Sometimes people "fail" the antibody tests but still have gut damage.  Not everybody makes the same antibodies or in the same quantities.  Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test. And don't worry if the celiac tests are positive for gliaden antibodies.  Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully.  It takes some effort, but anything worthwhile does they say.
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    • Positive Biopsy, Negative Blood Tests
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