Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Question About Biopsy Diagnosis
0

5 posts in this topic

Hello all,

I'm hoping someone here can clear something up for me. I've read that an endoscopy with biopsy of the small bowel is the gold standard for diagnosing Celiac. I've had two blood tests which both came back negative, and so I suggested the endoscopy to my doctor because so far they haven't come up with any other ideas and my symptoms are consistent with Celiac, and he said it wasn't necessary because when they did the colonoscopy, they got a sample from the small bowel. Does this sound right? I thought it had to be from the upper part of the small bowel which I doubt they got via colonoscopy.

Any info would be great,

Thanks,

Kelly

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Kelly,

I had a colonoscopy when they were trying to diagnose IBS - came back as no sign. My new doc did some blood tests which came back with some fairly extreme readings, and suggested I needed a endoscopy to check the small intestine. I mentioned the colonoscopy, and he said pretty much what you did - the biopsy needs to be taken from the upper end of the intestine.

You can always just tell yr doctor to do the test... But would you want to have the test done with 2 neg blood results? I know a lot of people have positive blood but negative biopsy, but had anyone had the opposite?

0

Share this post


Link to post
Share on other sites

Absolutely. A recent study (you can find it on celiac.com's frontpage) noted that blood tests are not as accurate as reported in literature when there is not already a fair amount of intestinal damage. Of course, you still have to hope that the doctor biopsies the right places!

0

Share this post


Link to post
Share on other sites

He cannot get the samples he needs during a colonoscopy. You have to have an endoscopy.

richard

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,112
    • Total Posts
      919,440
  • Topics

  • Posts

    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,150
    • Most Online
      1,763

    Newest Member
    Ayryil
    Joined