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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Question About Biopsy Diagnosis
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5 posts in this topic

Hello all,

I'm hoping someone here can clear something up for me. I've read that an endoscopy with biopsy of the small bowel is the gold standard for diagnosing Celiac. I've had two blood tests which both came back negative, and so I suggested the endoscopy to my doctor because so far they haven't come up with any other ideas and my symptoms are consistent with Celiac, and he said it wasn't necessary because when they did the colonoscopy, they got a sample from the small bowel. Does this sound right? I thought it had to be from the upper part of the small bowel which I doubt they got via colonoscopy.

Any info would be great,

Thanks,

Kelly

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Hi Kelly,

I had a colonoscopy when they were trying to diagnose IBS - came back as no sign. My new doc did some blood tests which came back with some fairly extreme readings, and suggested I needed a endoscopy to check the small intestine. I mentioned the colonoscopy, and he said pretty much what you did - the biopsy needs to be taken from the upper end of the intestine.

You can always just tell yr doctor to do the test... But would you want to have the test done with 2 neg blood results? I know a lot of people have positive blood but negative biopsy, but had anyone had the opposite?

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Absolutely. A recent study (you can find it on celiac.com's frontpage) noted that blood tests are not as accurate as reported in literature when there is not already a fair amount of intestinal damage. Of course, you still have to hope that the doctor biopsies the right places!

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He cannot get the samples he needs during a colonoscopy. You have to have an endoscopy.

richard

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