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Endoscopy Results


arismama

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arismama Rookie

My 16 month old had her scope yesterday. All went as well as could be expected. My daughter was given fentanyl (morphine type for pain) and versed as an amnesiac. She did great once the drugs kicked in. I did great once I had her back in my arms again. :lol: The scope revealed a very nice looking esophagus and stomach lining but her duodenum (leading section of the small intestine) didn't fare as well. It showed some signs of bleeding and looked "ratty" as described by the GI. I forgot to ask afterward, but before the procedure he told me he'd take a minimum of 10 samples from various locations. He is convinced based upon what he saw (and the fact that her eczema had a major flare up yesterday) that it is a food allergy and still holding to the idea that it is not appearing to be celiac disease. We will know more when the biopsy comes back. There is a possibility that it could be a bacteria, but the labs will have to reveal that. He wanted to go down the list of the big 8 food allergens and consider the next step in eliminating them from her diet. I told him that beyond the milk and egg, the allergist has us avoiding all nuts, fish, and shellfish. He said, "Well, that would have been the next step, but it sounds like he has you on the right track." He also mentioned a few different meds she could take to counteract whatever allergen is irritating her intestines. But for now he said that we should continue what we've been doing and then we'll talk once the results come in. I sure hope there's something revealing in those biopsies. Anyway, there's our little update.

Jen


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I'm glad they were able to see what was going on in her intestine. I hope that the biopsies will reveal what is truly going on so she can get better. Good luck with the results and keep us posted!

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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