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4 Year Old And Mom Getting A Diagnonsis...

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Posted 13 February 2004 - 04:00 PM

Hello, I'm new to the forum.. Thought I would post our story. My daughter has had diarrhea most of her life, she is 4 years old, after her checks being fairly benign I asked for a test for her BM's as they are so fatty and bulky. The pediatrician kindly ordered a malabsorption test which turned out negative of course. I went back to doctor again and asked for allergy testing and and a celiac panel. I have lupus and hashimoto's thyroiditis and I understand that autoimmune disorders are definantly genetic. I believe the doctor just humored "overactive" mom :rolleyes: and ordered a celiac panel. Only one turned positive with a IgG at 20.7 and a very low IgA. Well, now we are in the process of a very surprised doctor requesting a gastrointerologist referrel. I'm just nervous about putting my little girl through the process of a biopsy.
I also have just had the celiac panel drawn, just today. I've been a bunch of tests done in the past and was told it was just IBS and have never been tested for celiac disease. The pain and cramping and diarrhea are horrible and I just hope we get to the bottom of things. What a relief that will be!
Hope to here input on the biopsy, necessary or not? Thank you in advance for any comments.

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Posted 13 February 2004 - 08:12 PM

Welcome Tia:

If it were me with positive blood results your daughter has received I would not put her through the biopsy testing. I would immediately start her on a gluten-fre diet, that is the real test anyway. The reason I say this is because there is always a chance the biopsy would not show any damage, however the test itself is pretty painless as long as they put her to sleep, but why put her through more testing.

Another option is to be tested through Enterolab, they do a stool panel test, which is more sensitive than the blood. It is non invasive and fairly simple to order, ship and receive your results within weeks & they are accurate!!!!

I too was told I had IBS, my doc did the blood-work, which came back negative, the biopsy which showed "patchy inflammation" but he still ruled it as negative. I went through Enterolab and received a positive diagnosis and immediately started a gluten-free diet and I could tell a difference within days!

I hope you and your daughter find some answers soon and begin to feel better. :D
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