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Reaction Relevance To Damage?

Guest Leidenschaft

By Guest Leidenschaft
in Post Diagnosis, Recovery & Treatment of Celiac Disease

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Guest Leidenschaft
Guest Leidenschaft
Posted

Hi, I posed this question in another post that's been on the board for awhile, however I think it got buried! ;)

I am a very fortunate Celiac I think, I don't have very strong reactions when I get "glutinated". On average if I get contaminated I will be on the toilet first thing in the AM for a bought of diarrhea. If I've got into something more, I may make two or three trips in the same day. Generally I think that is about it, although the more reading I do in this forum, the more I suspect that I may be having other minor symptoms that I've previously attributed to other things, like PMS and stress! :blink:

My question is.... is there any relation to the severity of reaction to the severity of damage in the intestine? Would a person who has a severe reaction have more damage to the intestine than one that has a mild one? Or does it work this way?

I look forward to hearing from all you experts! :D

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lovegrov Collaborator
lovegrov
Posted

No relevance that I know of. I was so SEVERELY damaged I was dying yet I have no or very little reaction to gluten, or at least to small mistakes.

richard

KaitiUSA Enthusiast
KaitiUSA
Posted

Yeah I agree..some people don't have symtoms but it doesn't mean you don't have damage. It's just the way bodies react..they all react differently.

Guest Leidenschaft
Guest Leidenschaft
Posted

<_< That's pretty much what I figured! Darn! :( Oh well, I am gluten-free as completely as one can be! I just worry that some hidden sources will continue to do the damage due to the fact that I don't know when I'm being "glutinated"! I tend to go with my gut so to speak :P if I don't have any noticeable reaction to something that appears gluten-free, then I trust it is. I haven't resorted to some of the strict measures I've read about such as phoning the manufacturer etc. If it's something I would use ALOT then I would, such as toothpaste etc. FYI, I use Sensodyne, and although the company did the standard "cover our butts" disclaimer, I have been using it without reaction for over a year.

Thanks for the input!

tarnalberry Community Regular
tarnalberry
Posted

Lol! I've reacted to Sensodyne. That wasn't a fun surprise! (I'm not that sensitive, but apparently a bit more than you. Meh... We're all different! :-) )

Guest Leidenschaft
Guest Leidenschaft
Posted

So in fact, the Sensodyne could be doing me damage and I'm not getting a reaction?? :blink:

Maybe I just spit better than you? :lol:

I suppose it could also be a contaminant in the batch you had?

Who's to know??? :(

SharonF Contributor
SharonF
Posted

I thought I was the same, just a few trips to the bathroom after a gluten experience, no big deal.

Then I realized that I was also feeling incredibly TIRED, and it was due to the gluten!

It's so nice to have energy again, and to not have to run to the bathroom 3/4 times a day, that I don't ever lapse.

I have called few manufacturers, but I have become familiar with what products are gluten free, and I always make sure to read labels.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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      Small Bowel Resection 12 inches

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