Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction Relevance To Damage?

Guest Leidenschaft

By Guest Leidenschaft
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest Leidenschaft
Guest Leidenschaft
Posted

Hi, I posed this question in another post that's been on the board for awhile, however I think it got buried! ;)

I am a very fortunate Celiac I think, I don't have very strong reactions when I get "glutinated". On average if I get contaminated I will be on the toilet first thing in the AM for a bought of diarrhea. If I've got into something more, I may make two or three trips in the same day. Generally I think that is about it, although the more reading I do in this forum, the more I suspect that I may be having other minor symptoms that I've previously attributed to other things, like PMS and stress! :blink:

My question is.... is there any relation to the severity of reaction to the severity of damage in the intestine? Would a person who has a severe reaction have more damage to the intestine than one that has a mild one? Or does it work this way?

I look forward to hearing from all you experts! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

No relevance that I know of. I was so SEVERELY damaged I was dying yet I have no or very little reaction to gluten, or at least to small mistakes.

richard

KaitiUSA Enthusiast
KaitiUSA
Posted

Yeah I agree..some people don't have symtoms but it doesn't mean you don't have damage. It's just the way bodies react..they all react differently.

Guest Leidenschaft
Guest Leidenschaft
Posted

<_< That's pretty much what I figured! Darn! :( Oh well, I am gluten-free as completely as one can be! I just worry that some hidden sources will continue to do the damage due to the fact that I don't know when I'm being "glutinated"! I tend to go with my gut so to speak :P if I don't have any noticeable reaction to something that appears gluten-free, then I trust it is. I haven't resorted to some of the strict measures I've read about such as phoning the manufacturer etc. If it's something I would use ALOT then I would, such as toothpaste etc. FYI, I use Sensodyne, and although the company did the standard "cover our butts" disclaimer, I have been using it without reaction for over a year.

Thanks for the input!

tarnalberry Community Regular
tarnalberry
Posted

Lol! I've reacted to Sensodyne. That wasn't a fun surprise! (I'm not that sensitive, but apparently a bit more than you. Meh... We're all different! :-) )

Guest Leidenschaft
Guest Leidenschaft
Posted

So in fact, the Sensodyne could be doing me damage and I'm not getting a reaction?? :blink:

Maybe I just spit better than you? :lol:

I suppose it could also be a contaminant in the batch you had?

Who's to know??? :(

SharonF Contributor
SharonF
Posted

I thought I was the same, just a few trips to the bathroom after a gluten experience, no big deal.

Then I realized that I was also feeling incredibly TIRED, and it was due to the gluten!

It's so nice to have energy again, and to not have to run to the bathroom 3/4 times a day, that I don't ever lapse.

I have called few manufacturers, but I have become familiar with what products are gluten free, and I always make sure to read labels.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,778
    • Most Online (within 30 mins)
      7,748
    Megg Heath
    Newest Member
    Megg Heath
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.