Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Great Line For The Doctor..
0

7 posts in this topic

I posted for help on another board I am on to get the doctor to listen and do the blood panel.. I really needed the words to put it politely.. consisely and get results.. well someone sent this line....

"I understand the direction you are going but as a mother I feel that this (insert name of test, problem, procedure, etc.) will give me peace of mind. Is there a medical reason not to perform this test prior to continuing? (they say yes or no...almost always no). Great....when can we schedule it for?"

I think it will get results.. I will be trying it out at the next doctor visit..

Denise

0

Share this post


Link to post
Share on other sites


Ads by Google:

As a physician, I can sadly tell you that you may still have trouble...alot depends on what type of insurance you have! For patients with HMO type insurance, doctors get penalized for ordering expensive tests - we have to show justification for doing so...and in many cases, it is hard to do. Some doctors are good at writing letters with a good "spin" to make the case, some doctors don't want to be bothered. Some have an ego problem and don't want patients telling them what to order...

Offer to pay out of pocket for the test if you can't get the doc to order the test (check the cost first - it may be absurdly overpriced.)

0

Share this post


Link to post
Share on other sites

I have another thought on how to get your doctor to listen to your concerns re: celiac disease.

Next time you have an appt with the doctor, bring copies of doctor-written articles on celiac disease from respected journals. Stuff written by non professionals has very little influence on most docs. Here is a link to a good article:

Celiac Disease review article This article is a little old, but it is still very good.

another review article appeared in The New England Journal of Medicine on Jan.17, 2002. Volume 346, pp.180-188. You can't get to it online without paying a fee, but you can probably get it at your library.

Personally hand the articles to the doctor, ask him/her to give you a call when he/she has read them to discuss IF he/she thinks that you may have reason enough to get tested for celiac disease(or schedule another appt to discuss in a few weeks). Don't mail the articles or leave them with the nurse or receptionist... they will likely never be seen again.

Hope this helps!

0

Share this post


Link to post
Share on other sites

Well I would hope I would not have to hand the 'premier' ped. gi doc of the children's hospital information about celiac.. he has already done an endoscopy which came out negative but I have found more times than not that young children have this happen. Also he had been on a pretty much gluten free diet for the better part of 4 months .. the last two months he was gluten-free except for a half a peice of bread a day..

So if insurance was going to take issue with anything I would hope they would have taken issue with the endoscopy..

that all said you think I have a chance?

0

Share this post


Link to post
Share on other sites

If he knows so much about celiac disease, you'd think he'd know not to do the biopsy while the child is on a gluten-free diet! (remind him of this at your next visit-not that he should've known better, but that perhaps the results were inaccurate...)

What are you asking for him to do next? another biopsy? or the blood work? neither will work well unless you put your child back on full gluten diet for at least a couple of months.

0

Share this post


Link to post
Share on other sites




He was taking in at minimum a half a slice of bread a day two months prior to the biopsy. It may not have been enough gluten in take.. or he may just not have damage. He is now on a regular gluten to the hilt diet.. since the tenth of the month he has not had any good bms.. all loose and yucky.. about 1 to 4 a day right now.. ooh I take that back he had one.. but that was after a 24 hour period of him really not eating anything because he has a cold..

He was on the regular diet about 3 weeks when this started up again.. it's like we are back at where we were when this started last year.

I just want him to do the blood panel and then I am starting him on a gluten-free diet again as soon as that blood is drawn..

The appt is on the 15th so he will have been on a regular diet for 7 weeks.

I still don't understand why he did the biopsy first..

clueless..

especially since I have been told that he has had to be bullied into it in the past..

We just had a fecal fat and trypsin test done as well those came back normal..

0

Share this post


Link to post
Share on other sites

Hi!

I'm new to this forum, so please excuse and correct any mistake in protocol. Thanks.

I finally found my celiac disease by reading "Dangerous Grains". My symptoms were not classic, but I've had all kind of GI problems all my life, and the confusion/depression kind of stuff. None of the doctors could spot it.

Anyway, after I finally got a diagnosis, I did a lot of research and kept coming up with a link, although infrequent, between celiac disease and Rheumatoid Arthritis (RA), which my husband has. He didn't think he had celiac disease because he doesn't have GI symptoms and doesn't understand that you can have celiac disease and have some very atypical symptoms, or no symptoms at all. I got him to ask his rheumatologist about it, but the rheumatologist just poo-pooed it and I got the feeling the he was giving my husband the standard "tell her not to worry her pretty little head about these complicated medical things" line, which was the attitude he had when I met him on one of my husband's visits. That was the same attitude I got from many of the other doctors when I was trying to get my own diagnosis. If I hadn't finally fought my way through all the people who didn't know what they were talking about and paid for the blood tests and biopsy myself, I still wouldn't have my own diagnosis. Getting my own diagnosis gave me a tremendous boost in self-confidence. Now I know that I can trust my own research.

I still wanted my husband to be tested. So I got all kind of articles from Reader's Digest, Woman's Day Magazine, and a bunch of GI doctors and the Celiac Foundation. I also included a handout from the Celiac Foundation called "10 things doctors may want to know" or something like that, which talks about how often celiac disease is misdiagnosed because doctors aren't trained to look for it, and circled that part. I had a whole stack of stuff. I left each article open to the page that referenced RA and circled the reference. I wanted to make it as easy as possible for him to scan and get the pertinent info in 30 seconds or less, which is about the length of time I thought the doctor would devote to looking at the stack of articles.

Then I got my husband to bring it to his doctor on his regular visit, which I think he did just to shut me up. (;>). But I didn't care why, I just wanted him to be tested. It worked, I think I embarrassed the doctor into doing it, because he gave my husband the orders and he will be tested during his next blood test. The doctor told him that he doesn't have celiac disease, but that's what kills me. He can't know that without at least screening for it in a blood test and even then, he may not be able to tell. The doctor is just convinced that he would be able to tell. I'm sure it's because my husband doesn't have the classical GI symptoms. Whatever the reason, I'm just hoping that he does have celiac disease, because I really believe that there is a connection and that the GFD will help him. Keep your fingers crossed for me. I will post on here if it turns out to be right. Thanks so much for this forum. As I've said, I'm new here and newly diagnosed, but so happy to have gotten diagnosed and on a GFD. I've been sick for so long and things are getting better every day.

Gerri

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,906
    • Total Posts
      919,579
  • Topics

  • Posts

    • Looking For A Family In The Houston Metro Area
      Hello again!! I am now looking for TWO families in the state of TX who know about the celiac disease. We have two students from Europe and we have to find a host family for each student, the host family has to know what a celiac disease is about and be willing to host a student and give them support and guidance for 10 months. Thank you guys!! For more info, you can email me at hdoyle@icesusa.org
    • Kidney disease question
      GFR ranges are very strange.  We went through this with my husband.  Did you notice in Icelandgirl's link that there is no range that is considered good and normal?  I just had mine tested and the report said that normal was > 60.  As your report says, your value is only a problem if there is other evidence of kidney damage.
    • Kidney disease question
      Hi Matt I'd love answers to this one too. My own levels have varied since I have been monitored, over the last three or so years.   I asked my GP about this and I seem to recall she said to me that levels of hydration affect this number.  i.e. when my figures were in the 90s it was because I was super-hydrated. When my numbers were in the 70s she wasn't worried, either! I'm hoping someone with a better knowledge of these matters will chime in but the last time I was tested my gastroenterologist was very pleased with my kidney and liver function numbers - so it seems to me that when my own numbers were in the 70s on a couple of occasions I must have been  less well hydrated when I had the test those times? And that these numbers are therefore subject to variation.     
    • New to this gluten-free life
      Kareng is correct.  There are also a number of good reference books on celiacs and gluten free issues.  Also several magazines.  The main thing is to find out the hidden and unusual sources of gluten, and also to be very careful when eating at restaurants.  I got glutened quite a few times at restaurants before I learned to triple check and began to find safe places.  Good luck. 
    • Kidney disease question
      Hi Matt, Since celiac impacts the whole body...I think kidneys are affected.  I have kidney stones and they are super fun(not) and my urologist says that it's fairly common with celiac and malabsorption.  I don't know specifically about kidney disease, but when I was in the hospital passing my stones...prior to passing, my GFR was around 60.  A few weeks later when my doctor did bloodwork it was 87.  Here is some info that may help.   https://www.kidney.org/atoz/content/gfr
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined