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Is This Celiac?

Guest bwackmusic

By Guest bwackmusic
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest bwackmusic
Guest bwackmusic
Posted

Hi bwackmusic,

Welcome to the forum :) theres loads of info and helpful people on here so just ask loads of questions and hope you feel well soon :)

thank you Veggie Gal. I just yesterday discovered the problem I have with soy. also discovered, through this site, that being cold is also a result. I'm a bit on over load right now, So, can anyone explain to me about very sudden onset of celiac? I had a furnace break down around Christmas, and had blamed the coldness on that situation, now I wonder. also, does anyone have an understanding about remission? I had ,what was assumed to be acid reflux in the late 90's, had all the tests, but it was never diagnosed as acid reflux, in fact no diagnosis was ever made. The symptoms went away within the year, and I was free of problems. Now it seems that I am in in some kind of "flare". Looking back, I can recall some symptoms that I attributed to other external issues over that last 5 years, but within the last 2 weeks the pain and problems really increased. I do feel better, but also feel very overwhelmed and scared. I read one post that said "go slow". NOT MY STRONG SUIT,but I will have to do so.

I have a wonderful doctor who said that we could do tests. I asked to do that later, and to try to get feeling better by changing my diet first. Is there a suggestion on how often to eat? Thank you for ayone who can help. I live alone and would appreciate any help from this community. bfm

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mushroom Proficient
mushroom
Posted

I guess we would be able to offer more help if we knew exactly what your symptoms are when you have a 'flare'. Are you having any digestive issues or are we talking just about acid reflux. You also mention being cold and now finding you have a problem with soy. What are the symptoms, apart from the possible acid reflux, that you attribute to possible celiac disease. Have you considered having the celiac blood testing done if you believe that's what you might have. If you want to be tested this should be done while you are still eating gluten. We are happy to offer all the help you need :) - we just need to know what that help is that you need.

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    • JudyLou
      Seeking advice on potential gluten challenge

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      Seeking advice on potential gluten challenge

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    • JudyLou
      Seeking advice on potential gluten challenge

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      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
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