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Is This Celiac?

Guest bwackmusic

By Guest bwackmusic
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest bwackmusic
Guest bwackmusic
Posted

Hi bwackmusic,

Welcome to the forum :) theres loads of info and helpful people on here so just ask loads of questions and hope you feel well soon :)

thank you Veggie Gal. I just yesterday discovered the problem I have with soy. also discovered, through this site, that being cold is also a result. I'm a bit on over load right now, So, can anyone explain to me about very sudden onset of celiac? I had a furnace break down around Christmas, and had blamed the coldness on that situation, now I wonder. also, does anyone have an understanding about remission? I had ,what was assumed to be acid reflux in the late 90's, had all the tests, but it was never diagnosed as acid reflux, in fact no diagnosis was ever made. The symptoms went away within the year, and I was free of problems. Now it seems that I am in in some kind of "flare". Looking back, I can recall some symptoms that I attributed to other external issues over that last 5 years, but within the last 2 weeks the pain and problems really increased. I do feel better, but also feel very overwhelmed and scared. I read one post that said "go slow". NOT MY STRONG SUIT,but I will have to do so.

I have a wonderful doctor who said that we could do tests. I asked to do that later, and to try to get feeling better by changing my diet first. Is there a suggestion on how often to eat? Thank you for ayone who can help. I live alone and would appreciate any help from this community. bfm

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mushroom Proficient
mushroom
Posted

I guess we would be able to offer more help if we knew exactly what your symptoms are when you have a 'flare'. Are you having any digestive issues or are we talking just about acid reflux. You also mention being cold and now finding you have a problem with soy. What are the symptoms, apart from the possible acid reflux, that you attribute to possible celiac disease. Have you considered having the celiac blood testing done if you believe that's what you might have. If you want to be tested this should be done while you are still eating gluten. We are happy to offer all the help you need :) - we just need to know what that help is that you need.

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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