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lilu

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About Me

I am a 47 year old married person living in So Cal. I work as a liability and property damage insurance claims supervisor. My husband and I have two beautiful daughters, 18 and 19 years old. After a long battle with symptoms and no answers, we discovered information about Celiac Disease and my husband went through testing. Though he tested negatively, his genetic tests came back DQ2/DQ2, and positive for the genes relating to crohn's disease, so we decided to do a gluten free trial. This was about a month and a half ago, and his symptoms have been GREATLY reduced. It's like I'm married to a totally new person! It is my firm belief that by going gluten-free now, we are not only able to again live a ormal, healthy, happy life, but that we are preventing his ultimate demise from one of many autoimmune diseases that run rampant in his family...diabetes 1, crohn's, digestive cancers, to name just a few. I was already a pretty avid cook going into this, so to me, in addition to gaining health, I'm having one hellava good time learning new cooking and baking methods, playing with new ingredients, and exploring my kitchen in whole new ways! :D

  1. lilu
    Wow. Given the current economy and how hard jobs can be to find, that's a tough one. I think at the very least he should start wearing a mask at work to avoid inhaling flour. If it's a local place, he could talk to the owner about creating some gluten free menu options. Still, as pizza is my favorite food, I think were I in his shoes, I'd ultimately have...
  2. lilu
    No, no, no... Please do not give him gluten! From an addiction perspective that's like giving an alcoholic a little bit now and then to take the edge off. Giving him gluten now will only prolong the withdrawal. From a celiac perspective, additional damage will keep happening if you do this, which will result in a longer healing time and greater injury. ...
  3. lilu

    ARCHIVED Lunch Ideas

    lilu replied to staci002's topic in Coping with Celiac Disease

    So, suggestions on what to bring FOR lunch... There are some good frozen gluten-free meals available if you have a microwave. EVOL bowls, Amy's bowls and some other products, Glutino frozen lunches to name a few. You can also bring dinner leftovers (which is what I try to do). I freeze them for a couple days first so I'm not eating the same meal two days...
  4. lilu
    You can do this and we are all here to help! Recipes, tips, how-to-starts, shoulders to cry on, success stories to inspire, tales of mistakes letting you know you're not alone. Living with others who aren't gluten free, or keeping a gluten free home, related illnesses and other food intolerances. Whatever you need, just ask. It's here! Best of health...
  5. lilu
    Can't help but notice that it sounds like you were eating a lot of processed foods. Maybe I misread? Anyway, if you have been, then you should know that even "gluten free" foods may still have some gluten in them. Depending on the agency they were certified by, they can still contain somewhere between 6 and 20 parts per million. While this amount seems...
  6. lilu
  7. lilu
    Re: body products, etc. I wondered about this too at first, and ran into several contradictory statements... Yes, you do need to avoid external products with gluten; no, it's just what you're eating that matters; yes, you should avoid gluten containing products, but only things like lip gloss and toothpaste; no, avoid all gluten containing products; on...
  8. lilu
    1) GI docs can go either way... They can be very knowledgeable or not. It's kind of a roll of the dice. Also, they tend to look at test results as the defining criteria. The problem with this is that if you are not in an advanced disease state your blood work and/or biopsy may come back negative. Do the testing, but prepare yourself for negative results....
  9. lilu
    One thing I have found helpful is to provide them with MEDICAL information. Unfortunately, it seems that those who don't want to believe in the strict adherence required also don't put a lot of weight in information from sources such as blogs, forums, etc. When I've come across this kind of attitude, I find whipping out the "official" guns can help. Here...
  10. lilu
    I don't know if you have Albertsons, but where we are they carry a lot of Schar products
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  13. lilu

    Hubby's coming home from a LOOONNNGGG business trip tomorrow! Yay! I' took the opportunity while he was away to REALLY make our home Gluten Free - cleaned out the kitchen, new toaster, new utensils, new bakeware. Then I used all that wonderful new stuff to whip up some gluten free goodies! Homemade croutons, snack mix, bread, all the things I know he's been missing on the road!

  14. lilu
    I had an issue with my doc not knowing what tests to order, and so I took the list of tests and contacted the lab directly to see if they offered the tests I wanted and if so, what the CPT-4 codes (insurancese for 'the common number id's of the tests) were. I bet you could contact the lab your doc uses and get the same info. It takes a bit of work, but I...
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  17. lilu
    Wow! Great ideas! You know, you can also make chex mix gluten-free... Just omit wheat chex and increase rice and corn chex to offset. Use gluten-free worcestershire sauce, Glutino or Snyders gluten-free pretzels, and rice cracker bits instead of bagel bites. Instead of "season salt", I use an organic herb blend called Herby (Frontier Organics, gluten-free...
  18. lilu
    I'm proud of you too! Big accomplishment!!!
  19. lilu
    I don't have any good advice or wisdom, but I wanted to send you hugs and hope anyway! It's a journey...
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