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Celiac Disease Research Projects, Fundraising, Epidemiology, Etc.

This category deals with various proposed and ongoing research projects, including the any fundraising for those projects, and also covers research regarding celiac disease epidemiology.

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    Image: CC--Donnell King

    A half-time report on what we've learned about each other so far in the Relational Aspects of Food Sensitivities research.

    The study is geared toward gaining perspective on the perceived impact one adult's food restrictions cause in a household when cohabitating with other adults. It may ultimately yield strategies to address the social and emotional impact of living with food sensitivities. It aims to provide coping strategies, solidarity and empowerment to our community.



    Image: CC--Sean MacEntee

    In a recent issue of Journal of Gluten Sensitivity, we announced a research study/survey for adults who are 18 or older and living the "gluten-free" lifestyle in a household with other adults over 18. Click here to read the Survey Overview Article.

    The survey is a research study conducted by Jean Duane, PhD Student at the University of Denver. It will focus on family interactions when dealing with dietary restrictions, with the potential to increase family members' compliance.

    To take the survey, please click here:

    NOTE: SURVEY CLOSED AS OF 9/18/2017.



    Does less infant death mean more adults with celiac disease? Photo: CC--Kicki Zeilon

    Some evidence indicates that rates of celiac disease in the general population are increasing over time.

    Prior to the discovery of gluten's role in celiac disease, the prognosis for celiac sufferers was bleak. Did higher betas of death keep celiac disease rates correspondingly lower?



    Photo: CC--Micolo J.

    A team of researchers recently set out to document trends in diagnosis of celiac disease among patients from a single centre from 1958–2014, and and to provide data on rates and numbers of cases in those born in Derby city over 4 decades. The team also sought to explore a possible connection between deprivation and prevalence and characteristics of celiac disease in Asians.



    Image: CC--Jason Taellious

    Adults who have gluten sensitivities cohabitating with non-gluten sensitive adults may have a lot of unanswered questions that need to be asked. Dramatic changes in one family member's diet can have profound effects on a household (Bacigalupe & Plocha, 2015). Numerous studies document how parents and children handle everyday living when the child has food intolerances, but very few studies focus on adults living with food sensitivities. Wouldn't you like to know how other adults with food sensitivities adapt and manage over the long haul?



    Photo: CC--Emran Kassim

    Researchers at Hiroshima University say they have perfected the science behind a new bread-baking recipe. Developed by Japan's National Agriculture and Food Research Organization, NARO, the method uses rice-flour to produce gluten-free bread with a similar consistency and volume to traditional wheat-flour loaves.

    Now, rice-flour based gluten-free breads are old hat, but they've long had a reputation for being dry, crumbly, soulless creations that pale in comparison to even the cheapest traditional breads.



    Photo: Andres Rueda

    Massachusetts biotech firm ImmusanT has announced the successful completion of its first phase 1b trial of Nexvax2, an immunotherapy drug designed to protect celiac sufferers from the adverse effects of gluten exposure, including gastrointestinal symptoms, such as diarrhea, abdominal pain and bloating.

    Nexvax2 is a drug that relies on three peptides designed to promote T cells involved in the inflammatory reaction in celiac disease to become tolerant to gluten.

    The company hopes that an initial course will promote gluten-tolerance, which can then be maintained by periodic boosters of the vaccine.



    Celiac disease is on the rise in Italy. Photo: CC--David Evers

    More Italians are being diagnosed with celiac disease than ever before.

    According to the Report to the Parliament from the Ministry of Health, 182,858 Italians were diagnosed with celiac disease, compared with less than 172,000 in 2014; an increase of about 6%.



    Photo: CC-- Gordon

    Researchers really do not have really good data on rates of celiac disease in the general population of children in the United States. A team of researchers recently set out to estimate the cumulative incidence of celiac disease in adolescents born in the Denver metropolitan area. Their team collected data on HLA-DR, DQ genotypes of 31,766 infants, born from 1993 through 2004 at St. Joseph’s Hospital in Denver, from the Diabetes Autoimmunity Study in the Young.



    Photo: CC--Art Around

    A team of researchers recently set out to determine whether there might exist ethnic differences in celiac disease autoimmunity in children at 6 years of age, and if present, to assess how these differences may be explained by known sociodemographic and environmental factors.



    Photo: CC--Kathy & Sam

    PvP Biologics, a business spun out of the University of Washington, now has a $35 million deal with Takeda Pharmaceutical to develop its therapy for celiac disease. PvP Biologics is developing an enzyme that can be taken orally and survive in the harsh acidic environment of the stomach. That enzyme is called KumaMax.



    Photo: CC--Peter

    Researchers are seeing less hidden celiac disease, but more cases of people going gluten-free without diagnosis.



    Image: CC--Nelson L

    Danish researchers use duodenal biopsies, celiac disease-specific antibodies, and human leukocyte-antigen genotypes to validate celiac disease diagnoses in the Danish National Patient Register.



    Can body metrics and rate data help us better understand adolescents with celiac disease? Photo: CC--Wellness GM

    A team of researchers recently set out to investigate the impact of celiac disease diagnosis on anthropometric measures at late adolescence, and to assess trends in the prevalence of diagnosed celiac disease over time.



    A new study looks at celiac disease rates and gluten-free food consumption. Image: CC--Scott Maxwell

    Previous studies have indicated an increase in celiac disease rates in the United States, but these studies have been done on narrow populations, and did not produce results that are nationally representative.



    Photo: CC--SuSanA Secretariat

    What a gross title–it bothers me and I wrote it! It wasn't my idea originally. The research paper the data came from was entitled, "Experimental hookworm infection and gluten microchallenge promote tolerance in celiac disease" published recently in the Journal of Allergy and Clinical Immunology.



    Man demonstrates Bhangra, a traditional dance from the Punjab region of India. Photo: CC--Timothy J.

    Among patients diagnosed with celiac disease by small intestinal biopsy in the U.S., people from the Punjab region of India have the highest rates of disease, according to new research published in Clinical Gastroenterology and Hepatology.



    The Celiac Disease Foundation has received an award to promote patient researcher interaction. Photo: CC--Military Health

    The Celiac Disease Foundation (CDF) has received an award from the Patient-Centered Outcomes Research Institute (PCORI).



    Girl Scouts will include some gluten-free versions for the 2016 cookie season. Photo: CC--Marit & Toomas Hinosaar

    Good news, gluten-free cookie lovers! Girls Scouts will feature several gluten-free versions of their famous cookies for the 2016 season.



    Photo: CC--Moyan Brenn

    The number of children with gluten intolerance in one part of Scotland has more than doubled in just five years, according to a new survey.


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