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Recent Activity
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- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Positive biopsy
26F! -
- pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0
Celiac for dummies
I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies? -
- trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Positive biopsy
Would it be rude to ask your age? -
- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Positive biopsy
Wow! Thank you @trents I really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. -
- trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Positive biopsy
Yep, you've got celiac disease. That is a high score. In the U.K. you could have been diagnosed on the TTG-IGA score alone and not needed an endoscopy/biopsy. But I realize your physicians were not looking for celiac disease in the first place. But it also makes me wonder how much of your bowel issues are tied to celiac disease whose onset may actually have...
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By pothosqueen · Posted
I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies? -
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By pothosqueen · Posted
Wow! Thank you @trents I really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. -
Yep, you've got celiac disease. That is a high score. In the U.K. you could have been diagnosed on the TTG-IGA score alone and not needed an endoscopy/biopsy. But I realize your physicians were not looking for celiac disease in the first place. But it also makes me wonder how much of your bowel issues are tied to celiac disease whose onset may actually have been years ago. Taking years to get a celiac diagnosis after onset is typical because the symptoms mimic so many other bowel diseases and many of us have "silent" celiac for years, meaning we have no or few symptoms until damage the small bowel lining becomes quite advanced and other symptoms, e.g. iron deficiency anemia, start showing up.
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