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Help Please!

bayba792

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bayba792 Rookie
bayba792
Posted

My son is 8 years old and has been having a hard time with gaining weight. His dr first said that he is a picky eater and then a form of control. after many efforts of trying to help him gain weight he continued to decline. He went from 85% on the growth chart to 4%. He was admitted to the hospital in Feb. of this year due to failure to thrive. He complained about abdominal pain and was using the bathroom 45 times a day. He was in the hospital for a week only to be released saying all test came back negative. They referred him to a local children's hospital but we didn't get a visit until 2 months later. one month before his appointment I put him on gluten free diet to see if that helped and it did. His abdominal pain went away completely but he still had bathroom problems. They did the endoscope and said everything came back normal. When they did the colonoscopy he had what looked like seeds throughout his colon. They were black and white. The Dr told me that the "seeds" were stuck to his colon and she had tried to flush them out but they were stuck and she would have to scrap them off which she wouldn't do because he is a child and she didn't want to damage his colon. Needless to say she called me and said that all the biopsies came back negative and she diagnosed him with functional abdominal pain IBS!!!! WTH I know that this cannot be IBS. He has not grown in height in over 2 years, he is severally underweight 47 pounds, he is extremely weak has no energy and goes to the bathroom 20+ times a day!!! Please if anyone has any suggestions as to what I should do please help.

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Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Welcome bayba792

 

Did the doctors do these blood tests for Celiac?

 

Total Iga
tTG-IgA
DGP-IgA
DGP-IgG

 

Good luck and keep us posted.

bayba792 Rookie
bayba792
Posted
  • Author

Welcome bayba792

 

Did the doctors do these blood tests for Celiac?

 

Total Iga

tTG-IgA

DGP-IgA

DGP-IgG

 

Good luck and keep us posted.

they said that they tested him for Celiac while he was in the hospital and it came back negative. He has gone from a healthy active boy to barely having and strength to do anything. So far his diagnosis is: Growth retardation, Weight loss, Functional Abdominal Pain IBS. They just gave me pain medication for him that he can take 4x a day and said to give him a probiotic. He is currently on Homebound medical school program because he has to have access at all times to the bathroom. His weight is exactly the same as it was in 2010. He also gets a fever every month of 102 that lasts for 3 days and then goes away. I don't know what else to do. I am going to go and get all his medical records on monday that way I can go through them. Could being gluten free for a month have affected his endo?

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