Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Blood Test 10 Years Ago...could I Still Have Celiacs?

greenchick22

Recommended Posts

greenchick22 Rookie
greenchick22
Posted

Hello!  I'm in my thirties and had a Celiac blood panel about 10 years ago due to a lot of gastrointestinal issues at the time.  Blood test came up negative, endoscopy showed inflammation but that's all they told me and then diagnosed me with IBS.  I didn't know to ask more, I was so young, but I wish I had pushed for more info.!  Following that I took Levsin for my stomach, which helped, and on my own went off of dairy and basically diagnosed myself lactose intolerant.  Also started probiotics.  Stomach was much better, but it still flared up sometimes.  Fast forward a few years and I started experiencing fatigue that got worse and worse.  I feel like I could sleep for 15 hours or more if I didn't have to work.  I feel lazy, but I'm just too tired to do anything!  I used to be motivated to exercise but not anymore.

 

Other symptoms that have appeared or worsened over the past few years:  loose stools (sometimes), gassy, burping, eczema, itchy skin, anxiety, depression, irritable/moody suddenly for no reason, terrible pms, "fuzzy" thinking, memory problems, can't concentrate, easy bruising, hip and leg soreness,  weakness in muscles of hands and arms and sometimes face, congestion/frequent sinusitis, dry eyes and mouth, costochondritis, asthma,  more cavities (never used to have them)

 

Last year my liver was enlarged and I had low potassium and had to take a supplement - it improved and nothing was ever found out about why the liver was inflamed.  

 

I had a blood workup a few months ago and turned up deficient in Vitamins B and D.  Iron wasn't deficient, but also wasn't very high.  The range is 10-291 and mine was 32.   Red blood cell count was a little high, and alkaline phosphatase was a little low - both of which they said not to worrry about.  They put me on high doses of vitamins to handle the B and D and I thought surely my depression and fatigue would improve with those, but no such luck.  

 

I feel awful most of the time and miss the energy and zest for life I used to have!  I just had another Celiac panel, in the hopes that maybe something will turn up this time.  Is it possible to test positive years later, after testing negative? Does anyone have suggestions on what to do if the test comes up negative again?  I'm almost certain I have some sort of gluten problem...not thrilled about a diet change but if I feel better, it will be totally worth it.

 

Thanks!

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emaegf Newbie
emaegf
Posted

Yes, it is possible to test positive even if you had a negative test years earlier.  If you do have negative test results again do a gluten free diet trial and see if it helps.  Testing for Celiac is three fold 1 - Blood panel, 2 - Biopsy, 3 - Patient's response to a gltuen free diet. If 3 helps even if 1 & 2 are negative you may be nonCeliac gluten intoleratant. The treatment is the same however - a life long gluten free diet.

1desperateladysaved Proficient
1desperateladysaved
Posted

I hope your test will be definitive for you.  The diet is difficult, but a piece of cake compared to living with mental fog and fatigue.  I hope you will be getting better soon.

 

D

greenchick22 Rookie
greenchick22
Posted
  • Author

Thank you both!  As crazy as it sounds, I'm almost hoping that I can get a positive diagnosis.  At least then I'll have some knowledge about changes to make and hope of feeling better.

Catholic Mommie Newbie
Catholic Mommie
Posted

Hi I am totally new at this diagnosis thing but this may help you. I would get retested if i were you because of this. I was tested for the celiac panel last september by my GP and the result was negative. Now fast forward to this year to March and i retested. The test itself had changed but it was the same celiac panel that was ordered and this time the result was positive. They tested this time for endoantimysial antibodies i may not have spelled that right. So now i am waiting to do a biopsy. Note though that if you want to do a biopsy i don't think you should stop eating gluten because then you will heal and they won't find the intestine damage if you are celiac. So that is just six months of time and the test changed. Retest for sure and i will you well!!! :)

Catholic Mommie Newbie
Catholic Mommie
Posted

I forgot to mention that i have the same deficiencies B12 and D like you and iron as well for me. I'm in my late 30's too. So those alone I would say Test! 

 

:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,536
    • Most Online (within 30 mins)
      7,748
    Flibertygibbet
    Newest Member
    Flibertygibbet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.