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Anyone Have Infertility.....

melisadki

By melisadki
in Related Issues & Disorders

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melisadki Explorer
melisadki
Posted

Just curious there are so many mixed reviews on whether celiac disease causes infertility and miscarriages so I am waiting to get my blood panel done this week. I already know I am gluten sensitive by enterolab.

Here are my stats on pregnancy.

My one and only pregnancy after trying 2 years was miscarried at 9 weeks

My husband and I have been trying another 7 months no luck yet.

I have been diagnosed Polycystic Ovarian Syndrome (Does anyone know if there is a connection between that and celiac disease?)

I also have low thyroid but I am currently good taking meds

I take glucaphage for Insulin Resistance

My periods are mostly regular and I ovulate almost every month. I also have down rounds of clomid and femara.

Any thoughts.......I really dont want to get pregnant just to miscarry again. I am definetly going gluten-free ASAP after my bloodwork this week.

Mel

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amber3174 Newbie
amber3174
Posted

Hi, I have 2 miscarriages this year. I have had 2 normal pregnancies in the past (last one was 8 years ago) and now am having problems. I believe it is due to Celiac and not being gluten free. Everything I have read has said this can lead to infertlity and multiple m/c. I am now gluten-free, just for the last few months. We would like to try again when I have been gluten-free for awhile. Although I know that does not gaurantee a successful pregnancy. I have also been told that once you are gluten free your chances of m/c are the same as any "normal" persons would be.

Anyway, I probably havent helped you much, just thought I'd let you know that I can kind of relate to what you are going through. I would say just learn all you can about Celiac and being gluten-free, that has helped me alot.

Good luck to you!

suz2024 Newbie
suz2024
Posted

Hi. I went through 6 years of infertility treatments, surgeries (severe endometriosis), testing and drugs with no results. I was told I had less than a 3% chance of getting pg. I had given up all hope. I was then diagnosed with reactive hypoglycemia and put on a carb/sugar restricted diet, very similar to the gluten-free diet, but not as stringent (I was not aware of the gluten-free diet at that time.) In addition to the diet, I was also relieved of the stress of trying to get pg, since I was told it could not happen. Then, for the first time in years, I ovulated on my own, bursting a large cyst on my ovary at the same time ending up in the ER because I couldn't believe I was ovulating and thought for sure it was my apendix rupturing. They gave me a shot of an anti-inflamatory drug but I refused the narcotic pain killer. Two weeks later I missed my period and gave birth to a beautiful little girl. I absolutely believe that it was the diet that allowed me to ovulate. I am sure the anti-inflamatory drug had anything to do with it, but it occurred right at that time so I am not willing to rule out anything.

I understand the pain you are going through. I pray that all your dreams come true. I know the hurt and agony that hope sometimes causes us, but it is that hope that got me where I am today. That is why my daughter's middle name is Hope. Good luck and I will keep you in my prayers.

Suz

melisadki Explorer
melisadki
Posted
  • Author

Suz and Amber thanks for sharing your stories. I cant believe how hard it can be to get pregnant and all and also this diet. I just started looking at gluten-free alternatives and it so expensive.. :blink:

I am glad to hear you both had children though....that is encouraging for me.

Take care :)

Carriefaith Enthusiast
Carriefaith
Posted
Just curious there are so many mixed reviews on whether celiac disease causes infertility and miscarriages so I am waiting to get my blood panel done this week. I already know I am gluten sensitive by enterolab.
I believe infertility and miscarriage are complications of celiac disease "Miscarriage and congenital malformation of the baby, such as neural tube defects, are risks for untreated pregnant women with celiac disease because of malabsorption of nutrients." Open Original Shared Link

Basically what this means is, if your intestines are severly damaged from gluten, you cannot absorb many nutrients and your body cannot support a baby. This will improve on a strict gluten free diet.

Roxyk Newbie
Roxyk
Posted

Hi!

I am now 20 weeks pregnant. My husband & I had been ttc for one year prior to my celiac diagnosis. One week after being gluten-free for a year, I finally got the call that I was pregnant. At the time we were seeing an RE & doing injectables/IUI.

Both my RE & OB think the problems getting pregnant were probably due to celiac. They also read the same info I had - it can take 6 months to one year of being gluten free to heal enough to become pregnant. I had also pretty much stopped getting a period. But I had a totally normal one just before my 1 year gluten-free anniversary.

Hang in there. It is heart-breaking, but so worth it in the end. Not just for the pregnancy, but how wonderful you will feel. I feel 10 years younger & so much more energy - well before I got pregnant- being gluten free.

Roxy

kess Newbie
kess
Posted

From my limited readings, PCOS is probably the reason that you have problem conceiving. You may need to see and RE or another specialist. Here's a good board that you may find useful -- for women thinking about ttc after miscarriage: Open Original Shared Link I think you will find a lot of support there and good information. Women there have all the medical details down.

As far as what caused your miscarriage, it could have just been a fluke, and you will go on to have a healthy pregnancy next time around. This is what I'm hoping for. Here's a good discussion on causes: Open Original Shared Link

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melisadki Explorer
melisadki
Posted
  • Author

Thanks for your suggestion I definetly know the PCOS makes me have weak ovulation and low progesterone. I am currently taking femara this has helped me ovulate with good progesterone numbers meaning a good ovulation. I found out by blood test I am not celiac but I do have gluten intolerance diagnosed by enterolab.

Anyway hoping it will happen soon or else I am doing a laproscopy in decemeber to check for blockages.. :huh:

Billygoat Apprentice
Billygoat
Posted
Then, for the first time in years, I ovulated on my own, bursting a large cyst on my ovary at the same time ending up in the ER because I couldn't believe I was ovulating and thought for sure it was my apendix rupturing.  They gave me a shot of an anti-inflamatory drug but I refused the narcotic pain killer.  Two weeks later I missed my period and gave birth to a beautiful little girl.  I absolutely believe that it was the diet that allowed me to ovulate.  I am sure the anti-inflamatory drug had anything to do with it, but it occurred right at that time so I am not willing to rule out anything.

<{POST_SNAPBACK}>

I don't mean to be rude, as I realize this is a sensitive topic, but this makes no sense to me. After two weeks of ovulating and bursting a cyst you gave birth to your daughter? Did you not realize you were pregnant? So sorry to sound confused. I am. :blink:

suz2024 Newbie
suz2024
Posted
I don't mean to be rude, as I realize this is a sensitive topic, but this makes no sense to me.  After two weeks of ovulating and bursting a cyst you gave birth to your daughter?  Did you not realize you were pregnant?  So sorry to sound confused.  I am.  :blink:

<{POST_SNAPBACK}>

Yes, this is a sensative topic, and I am sorry if my message wasn't written concisely. I guess what I should have written was "I missed my period and 8 1/2 months later I gave birth."

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