Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help-daughter's Results In


WRowland

Recommended Posts

WRowland Newbie

Got my daughter's results in-she didn't get my DQ8(201) or my husbands DQ2(302)....

She's double DQ7(302). I was well prepared for explaining DQ2/DQ8 but not this.

What I can find about it, beyond "gluten sensitive" is that it's dark grey in a medium grey area. Some are saying that it may be a third celiac gene.

So, I'm looking for anyone with this genotype to chime in, especially symptoms they experienced, especially pain and neurological. This is a big life style change for her and she needs to recognize herself. This is a mother begging. Please help me help her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WRowland Newbie

Sorry, that's DQ2(201) and DQ8(302).

WRowland Newbie

And DQ7(301). Can you tell I'm really upset?

alisonsf Newbie

I'm sorry to say it really is a grey zone and there are at this point no definite answers. I am DQ6 and DQ7, negative tTG with high positives on my antigliadin tests. I've been told that I probably shouldn't eat gluten if I feel better when I don't, but that eating gluten won't kill me. Without the genetic markers for celiac disease I do not need to worry about things like lymphoma.

What I think is going on is an antigliadin response but not an autoimmune response and that is an important distinction.

This should be considered good news, though I can understand your dismay over a vague diagnosis.

Matilda Enthusiast

I've got 1 of those 0301's. I read somewhere that it's very similar to DQ8. I think I would probably email Dr Fine and ask what he think the significance of a double 0301 is.

Best wishes,

Matilda

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,954
    • Most Online (within 30 mins)
      7,748

    Ann Cusano
    Newest Member
    Ann Cusano
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
    • Scott Adams
      This article might also be helpful, as you could have DH: https://www.celiac.com/celiac-disease/understanding-dermatitis-herpetiformis-the-skin-manifestation-of-celiac-disease-r6361/
    • trents
      I would think that as long as you keep your food on a wrapper or on a paper plate you would not be at risk for cross contamination. You may be overthinking it all which is common for those in the first year of the celiac journey. But let me ask you. Are you feeling self-conscious about having a celiac diagnosis? I notice the term "isolated" in your thread title. Do you fear being shunned? I offer this video clip for your consideration:  
    • Tanya177
      I’m worried about cross contamination, as people don’t clear up properly. I take my own lunch in a packed lunch box with my own cutlery, plate etc and wash it all at home everyday rather than using the schools communal options. There is always crumbs or food left out for us to share on tables etc. 
    • trents
      Welcome to the forum, @Tanya177! Help us understand why you don't eat with the other staff members at the present time. I'm assuming you already pack your own lunch rather than eating school cafeteria food. Surely there are other staffers who bring their own lunches. How would this be different if you did not have celiac disease?
×
×
  • Create New...