Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help-daughter's Results In

WRowland

Recommended Posts

WRowland Newbie
WRowland
Posted

Got my daughter's results in-she didn't get my DQ8(201) or my husbands DQ2(302)....

She's double DQ7(302). I was well prepared for explaining DQ2/DQ8 but not this.

What I can find about it, beyond "gluten sensitive" is that it's dark grey in a medium grey area. Some are saying that it may be a third celiac gene.

So, I'm looking for anyone with this genotype to chime in, especially symptoms they experienced, especially pain and neurological. This is a big life style change for her and she needs to recognize herself. This is a mother begging. Please help me help her.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WRowland Newbie
WRowland
Posted
  • Author

Sorry, that's DQ2(201) and DQ8(302).

WRowland Newbie
WRowland
Posted
  • Author

And DQ7(301). Can you tell I'm really upset?

alisonsf Newbie
alisonsf
Posted

I'm sorry to say it really is a grey zone and there are at this point no definite answers. I am DQ6 and DQ7, negative tTG with high positives on my antigliadin tests. I've been told that I probably shouldn't eat gluten if I feel better when I don't, but that eating gluten won't kill me. Without the genetic markers for celiac disease I do not need to worry about things like lymphoma.

What I think is going on is an antigliadin response but not an autoimmune response and that is an important distinction.

This should be considered good news, though I can understand your dismay over a vague diagnosis.

Matilda Enthusiast
Matilda
Posted

I've got 1 of those 0301's. I read somewhere that it's very similar to DQ8. I think I would probably email Dr Fine and ask what he think the significance of a double 0301 is.

Best wishes,

Matilda

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Cookies
      2

      Gluten-Free Cranberry Pistachio Snowball Cookies

      This article may help:
    2. Judy Wysocki
      - Judy Wysocki commented on Scott Adams's article in Cookies
      2

      Gluten-Free Cranberry Pistachio Snowball Cookies

      What can I substitute for almond flour? I plan on not doing the nuts either. I'm allergic to nuts.
    3. Scott Adams
      0

      Raspberry Dark Chocolate Gluten-Free Buckwheat Brownies

    4. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      CT with contrast.

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests. Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.
    5. Scott Adams
      - Scott Adams replied to Shellly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New labs are now very elevated

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748
    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      Chances of being coeliac

      By trents · Posted

      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      Chances of being coeliac

      By JettaGirl · Posted

      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.