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fran641

Dr. Oz Show About Gluten

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At a church supper today a few friends were all excited to tell me I don't have to be gluten free forever. When I arrived home I searched the OZ show they heard this info on. Right in the first few minutes the guest doc giving the advice stated that this does not apply to people with celiac, Only those with sensitivities, not autoimmune diseases.

My friends are very supportive but don't understand the difference. I do not believe they have to understand it. That's my job and part of taking care of my body.


Fran

Diagnosed Dec. 2008

Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010

Large B cell lymphoma 2011

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UHmm "dr" Oz is in so much trouble for doing so many bad things that even CONGRESS has taken him to task. I am glad you are taking care of YOU, that is perfect, but please ...somehow explain to these ladies what a crack pot this guy is!

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I saw the topic and, tho I usually turn the show off, I decided I should listen.  I was glad the doctor he was interviewing said that this did not apply to Celiacs.  But I knew this would come up and will probably haunt us for a while.  :angry:


 

 

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That's pretty annoying that they even said it at all. That could mean that a lot of people with obvious gluten problems, but without a firm diagnosis get people bothering them about trying gluten again.  :(


~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 

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They did state it did not apply to Celiacs. To my knowledge thats the truth right? I have asked before if intolerances will harm you and they say no. So what did they say wrong? Not sure where the problem is. Hmmmm


Recovering Gluten Eater 

DX'd June 17th 2013

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What is wrong is they give the impression (like they did to her friends from church) that she would be ok.  People who do not deal with this directly, do not pay such close attention. As you can see was the case when they explained to her that she could someday eat wheat again...even though it was stated that this did not apply to celiacs.  What if some well meaning friend said that whatthey made was gluten free and was not careful and CC'd and thought "hey, just a little bit will be fine" and not even say anything.  All kinds of scenarios can come out of these kinds of things. The problem with Mr. Oz ( I refuse to call him a doctor)  is that he spreads a LOT of misinformation. He is a crack pot and a danger to many sick people, not just celiacs.  

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The thing is, nobody really knows enough about NCGI or other forms of gluten issues other than celiac to make any firm scientifically validated declarations that you can go and eat gluten right now or eventually and not harm yourself.

 

So any comments on those type of things are not really based on any confirmed facts.


~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 

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I was just wondering. I have so many different questions it doesn't matter. I know there is such a line on this. So I am not going to say anything more. I know how intolerances are, believe me! I know! So bless you all! I will ask my questions on another thread. Well maby I will keep my mouth shut... Hmmm


Recovering Gluten Eater 

DX'd June 17th 2013

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Anybody getting their health "information" from Dr. Oz or Facebook should be regarded with pity.


"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." ~Dr. Seuss

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They did state it did not apply to Celiacs. To my knowledge thats the truth right? I have asked before if intolerances will harm you and they say no. So what did they say wrong? Not sure where the problem is. Hmmmm

 

 

I agree.  There are lots of people eating gluten-free that probably don't need to.  And there are probably a lot that can just eat gluten light (for example, someone with FODMAP issues).

 

What made me say "Ugh...here we go..."  is that lots of people will see this show and think everyone who is gluten-free can eventually eat gluten again. Many people don't listen well.   :blink:


 

 

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They did state it did not apply to Celiacs. To my knowledge thats the truth right? I have asked before if intolerances will harm you and they say no. So what did they say wrong? Not sure where the problem is. Hmmmm

Please don't be offended by what I said. The guest doctor did say it doesn't apply to celiacs and I appreciated that. it is the clumping together all gluten-free folks get from friends and some family that creates frustration. If I couldn't have ask lots of questions around here I would have been lost so I hope you won't stop participating.


Fran

Diagnosed Dec. 2008

Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010

Large B cell lymphoma 2011

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There are a lot of people who are gluten free who don't need to be.

 

 I'm pretty sure that most people who are gluten free out of medical necessity won't change based on Dr. Oz. 


~Ruth

Gluten free since 2/14/2010 after suffering a rare and serious complication from my gluten challenge

 

 

 

 

 

 

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I do believe if you have a health issue you go to your dr. and find any information on it yourself. I would never listen to a  Dr.on Tv advise unless I took it to my Dr. 1st. In my eyes these ladies have no clue what they saw and heard and what it all means. They must not have intolerances, Or Celiac It's hard for them to understand it in 5 seconds of talk a show. I certainly wouldn't take it to heart. 


Recovering Gluten Eater 

DX'd June 17th 2013

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I think the biggest problem is that people put so much stake in these TV "experts."  Thanks to Oprah and Jenny McCarthy we have a resurgence in preventable deadly diseases.  I have known people who stopped medications because "Dr Oz told them too."  This was life saving medications.  He is so irresponsible and makes life worse for so many.  Not that I have strong opinions or anything....

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I have a love hate relationship with Dr. Oz, he introduced Celiac to me but he gave pretty crappy information so I went gluten-free without testing.  With all the symptoms and negative testing for every other disease my symptoms could be plus a rash that *may* be DH according to my GP, I consider myself a celiac.  I hate to bring this up but more and more studies are showing that gluten intolerance is possibly a precursor to celiac when the antibodies are high but the vili are fine.  Dr. OZ is crappy medical information but he helped me, not as much as ACCURATE information would of but it lead me to better sources but by then I was months into gluten-free and every glutening was getting worse.  Yes he helped me, but I still think he isn't a credible source. 

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monkeygirl, that is exactly why this clown shouldn't be spewing information/misinformation.  he had a bunch of crap sprinkled with just enough facts to make it sound plausible.  a suspected celiac patient should never go off gluten before testing.  if they feel that bad, they should get tested as soon as possible, but going off gluten prematurely can make the testing inaccurate.  in (y)our case, this advice is just bad and not deadly, such as skipping your immunization or going off your blood pressure meds, but it sure doesn't make getting a diagnosis any easier.  and don't even get me started on all the idiots who decided they have a gluten problem and solve it by scraping the crust off the pie or removing the burger from the bun and eating it.  o, please don't tell that waiter you have celiac while you are picking the croutons off your salad............ <_<

 

edited to clarify:  by 'you' i didn't mean you, monkeygirl.  i meant the fad dieters or the magical-cure-to-all-my-problems-this-week people lolz 


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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Monkey girl (cute name) I get that. I have heard info on Dr. oz show that led me to discuss something with my own Dr. I don't base my health decisions on his show but on my own healthcare providers advice.


Fran

Diagnosed Dec. 2008

Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010

Large B cell lymphoma 2011

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Monkey girl (cute name) I get that. I have heard info on Dr. oz show that led me to discuss something with my own Dr. I don't base my health decisions on his show but on my own healthcare providers advice.

 

THIS is what people should be doing.  Get info but go to your doctor still.  Work with your doctor as a partner in your own health.  Great to hear (read) this, Fran.  :)


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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In my opinion, just ignore them. Of course, they are only trying to help, but if they are that naive about one thing, they're probably not all that smart in general (no offense.) Sometimes I find the whole experience of having Celiac Disease to be socially terrible, but at the end of the day, you just have to take solace in knowing that you are doing the right thing and everyone else is being a tool about it. If your friends press the issue, just remind that them that you have Celiac Disease and it's more in line with a condition like Lupus than a run-of-the-mill food allergy. Furthermore, Dr. Oz is there to sell products and programs to people. He's really no better than an old timey snake oil salesman. His show is a for-profit entity; anyone is who trying to sell something needs to be fact checked. At the end of the day, their perogative is to make money, not do a public service to the community.

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Why would anyone listen to a Dr. on TV? They don't know you? They generally speak about something. Thats crazy for someone to stop taking a life saving pill because of what a Dr. On TV said. You are in control of your health. If I heard a Dr. say If you have Celiac you can still eat Gluten... Do you think I would do it?? No !!! I would certainly research The latest and greatest news and findings about Celiac, but would never just start eating it. Thats just crazy!! Even if my Dr. said to go ahead and eat it I wouldn't...People have to start being responsible for their own health.


Recovering Gluten Eater 

DX'd June 17th 2013

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