Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating, gas in the evening?

elevenluke

Recommended Posts

elevenluke Newbie
elevenluke
Posted

Hello all, my name is Luke! I've lurked this forum for answers quite often and finally decided to make an account of my own to interact (not sure why I didn't sooner). I am an RN and was diagnosed with Celiac Disease about a year and 5 months ago when I was 22.

I have been experiencing severe gas and bloating in the evenings (always after I have had both breakfast and lunch, never do I wake up feeling this way). Around 4-5pm I start feeling very bloated, and notice abdominal distension and a sense of fullness, accompanied by an insane amount of gas I pass for hours and hours (lovely, I know... not.). It is terribly uncomfortable and quite annoying, and I often end up using the restroom to have numerous bowel movements. Has anyone else experienced this, and if so what did you find out if anything related to this?

I am NOT being glutened. I am a gluten nazi, seriously. I just had another endoscopy done to test for H. Pylori and check the condition of my small bowel again, which fortunately is in immaculate condition, with no visible villous atrophy. My antibody levels are within normal range, and I ended up not having H. Pylori either. I am just not sure what could be causing these very annoying symptoms, and it is happening every single day! I have done a course of Xifaxin for suspected SIBO, which after finishing the course I *seemed* to be slightly better for a very short period of time--no more than 2 weeks tops, but I feel just the same again now. I know SIBO can grow back, but I never felt conclusively better to even know whether or not it was that in the first place (something I plan to pursue with GI doc at next visit). I guess I just feel at a loss for what could be causing my symptoms, and I don't know what else to try. I have a great diet that is quite bland and(gluten free of course, with almost no processed food... but this "reaction" of gas and abdominal dissension I seem to be getting daily happens regardless of what I eat it seems. I have recently added in digestive enzymes with each meal to see if that would help, but it has not whatsoever. I have an appointment with the GI doctor again, and am seeing a dietician just because, but have no conclusive answers so far, and am trying my luck here with my celiac brothers and sisters :)

Sorry for the long winded description, I tried to keep only the most relevant information, and keep it the least "graphic" I could (sorry, I talk about poop and nasty bodily functions daily being in nursing so I lose track of what the line is when speaking normally!) Thanks for reading, and having me as a part of the community.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted

Used to get this when I ate anything with carbs/sugars, but this I later learned was from UC and it causing flare ups. I also get this as a after effect from dairy, peanuts, soy, and a few other intolerance of mine but I first normally get really bad stomach issues.

Try a elimination diet and see what it might be, would be my main suggestion. You probably developed a new intolerance or just having a bad reaction to something.

GFinDC Veteran
GFinDC
Posted

An elimination diet would be a good idea.  And start with oats as you might be one of the celiacs who react to them.  Any carbs, sugar and processed foods are a possible source of bloating too.   Probiotics might help.  Antibiotics can really mess up the gut flora so it needs to be re-established with good stuff.

Ennis is right, additional food intolerances can develop.  Dairy, soy, corn, eggs, nightshades, oats, are common food intolerances.  But any food can cause a reaction if you become intolerant to it.  We may be more likely to become intolerant to foods we eat a lot of while our guts are irritated.  That's one reason people do rotation diets.  It's almost always something we are eating or drinking or ingesting in some way that causes symptoms.

elevenluke Newbie
elevenluke
Posted
  • Author

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

  • 1 year later...
Mr. Legend Newbie
Mr. Legend
Posted
On 5/8/2017 at 10:48 PM, elevenluke said:

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

You may have ibs (irritable bowel syndrome) .i am having the same symptoms and taking medication for ibs. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    731049
    Newest Member
    731049
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.