Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating, gas in the evening?

elevenluke

Recommended Posts

elevenluke Newbie
elevenluke
Posted

Hello all, my name is Luke! I've lurked this forum for answers quite often and finally decided to make an account of my own to interact (not sure why I didn't sooner). I am an RN and was diagnosed with Celiac Disease about a year and 5 months ago when I was 22.

I have been experiencing severe gas and bloating in the evenings (always after I have had both breakfast and lunch, never do I wake up feeling this way). Around 4-5pm I start feeling very bloated, and notice abdominal distension and a sense of fullness, accompanied by an insane amount of gas I pass for hours and hours (lovely, I know... not.). It is terribly uncomfortable and quite annoying, and I often end up using the restroom to have numerous bowel movements. Has anyone else experienced this, and if so what did you find out if anything related to this?

I am NOT being glutened. I am a gluten nazi, seriously. I just had another endoscopy done to test for H. Pylori and check the condition of my small bowel again, which fortunately is in immaculate condition, with no visible villous atrophy. My antibody levels are within normal range, and I ended up not having H. Pylori either. I am just not sure what could be causing these very annoying symptoms, and it is happening every single day! I have done a course of Xifaxin for suspected SIBO, which after finishing the course I *seemed* to be slightly better for a very short period of time--no more than 2 weeks tops, but I feel just the same again now. I know SIBO can grow back, but I never felt conclusively better to even know whether or not it was that in the first place (something I plan to pursue with GI doc at next visit). I guess I just feel at a loss for what could be causing my symptoms, and I don't know what else to try. I have a great diet that is quite bland and(gluten free of course, with almost no processed food... but this "reaction" of gas and abdominal dissension I seem to be getting daily happens regardless of what I eat it seems. I have recently added in digestive enzymes with each meal to see if that would help, but it has not whatsoever. I have an appointment with the GI doctor again, and am seeing a dietician just because, but have no conclusive answers so far, and am trying my luck here with my celiac brothers and sisters :)

Sorry for the long winded description, I tried to keep only the most relevant information, and keep it the least "graphic" I could (sorry, I talk about poop and nasty bodily functions daily being in nursing so I lose track of what the line is when speaking normally!) Thanks for reading, and having me as a part of the community.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ennis-TX Grand Master
Ennis-TX
Posted

Used to get this when I ate anything with carbs/sugars, but this I later learned was from UC and it causing flare ups. I also get this as a after effect from dairy, peanuts, soy, and a few other intolerance of mine but I first normally get really bad stomach issues.

Try a elimination diet and see what it might be, would be my main suggestion. You probably developed a new intolerance or just having a bad reaction to something.

GFinDC Veteran
GFinDC
Posted

An elimination diet would be a good idea.  And start with oats as you might be one of the celiacs who react to them.  Any carbs, sugar and processed foods are a possible source of bloating too.   Probiotics might help.  Antibiotics can really mess up the gut flora so it needs to be re-established with good stuff.

Ennis is right, additional food intolerances can develop.  Dairy, soy, corn, eggs, nightshades, oats, are common food intolerances.  But any food can cause a reaction if you become intolerant to it.  We may be more likely to become intolerant to foods we eat a lot of while our guts are irritated.  That's one reason people do rotation diets.  It's almost always something we are eating or drinking or ingesting in some way that causes symptoms.

elevenluke Newbie
elevenluke
Posted
  • Author

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

  • 1 year later...
Mr. Legend Newbie
Mr. Legend
Posted
On 5/8/2017 at 10:48 PM, elevenluke said:

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

You may have ibs (irritable bowel syndrome) .i am having the same symptoms and taking medication for ibs. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to...
    2. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies...
    3. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted...
    4. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Have you had your 25(OH)D vitamin D blood level checked? Vitamin D deficiency occurs in 40 - 60% of western societies. It is even more common in Celiac Disease because of malabsorption syndrome. Appropriate intake of vitamin D or skin production from sun, increases the absorbtion rate of Calcium.and phosphorus, two minerals crucial to...
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Some backup to my statement about gluten and milk. Some background. When my son was born in 1976 he was colicky from the beginning. When he transitioned to formula it got really bad. That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748
    LizzieE
    Newest Member
    LizzieE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.