Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating, gas in the evening?


elevenluke

Recommended Posts

elevenluke Newbie

Hello all, my name is Luke! I've lurked this forum for answers quite often and finally decided to make an account of my own to interact (not sure why I didn't sooner). I am an RN and was diagnosed with Celiac Disease about a year and 5 months ago when I was 22.

I have been experiencing severe gas and bloating in the evenings (always after I have had both breakfast and lunch, never do I wake up feeling this way). Around 4-5pm I start feeling very bloated, and notice abdominal distension and a sense of fullness, accompanied by an insane amount of gas I pass for hours and hours (lovely, I know... not.). It is terribly uncomfortable and quite annoying, and I often end up using the restroom to have numerous bowel movements. Has anyone else experienced this, and if so what did you find out if anything related to this?

I am NOT being glutened. I am a gluten nazi, seriously. I just had another endoscopy done to test for H. Pylori and check the condition of my small bowel again, which fortunately is in immaculate condition, with no visible villous atrophy. My antibody levels are within normal range, and I ended up not having H. Pylori either. I am just not sure what could be causing these very annoying symptoms, and it is happening every single day! I have done a course of Xifaxin for suspected SIBO, which after finishing the course I *seemed* to be slightly better for a very short period of time--no more than 2 weeks tops, but I feel just the same again now. I know SIBO can grow back, but I never felt conclusively better to even know whether or not it was that in the first place (something I plan to pursue with GI doc at next visit). I guess I just feel at a loss for what could be causing my symptoms, and I don't know what else to try. I have a great diet that is quite bland and(gluten free of course, with almost no processed food... but this "reaction" of gas and abdominal dissension I seem to be getting daily happens regardless of what I eat it seems. I have recently added in digestive enzymes with each meal to see if that would help, but it has not whatsoever. I have an appointment with the GI doctor again, and am seeing a dietician just because, but have no conclusive answers so far, and am trying my luck here with my celiac brothers and sisters :)

Sorry for the long winded description, I tried to keep only the most relevant information, and keep it the least "graphic" I could (sorry, I talk about poop and nasty bodily functions daily being in nursing so I lose track of what the line is when speaking normally!) Thanks for reading, and having me as a part of the community.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Used to get this when I ate anything with carbs/sugars, but this I later learned was from UC and it causing flare ups. I also get this as a after effect from dairy, peanuts, soy, and a few other intolerance of mine but I first normally get really bad stomach issues.

Try a elimination diet and see what it might be, would be my main suggestion. You probably developed a new intolerance or just having a bad reaction to something.

GFinDC Veteran

An elimination diet would be a good idea.  And start with oats as you might be one of the celiacs who react to them.  Any carbs, sugar and processed foods are a possible source of bloating too.   Probiotics might help.  Antibiotics can really mess up the gut flora so it needs to be re-established with good stuff.

Ennis is right, additional food intolerances can develop.  Dairy, soy, corn, eggs, nightshades, oats, are common food intolerances.  But any food can cause a reaction if you become intolerant to it.  We may be more likely to become intolerant to foods we eat a lot of while our guts are irritated.  That's one reason people do rotation diets.  It's almost always something we are eating or drinking or ingesting in some way that causes symptoms.

elevenluke Newbie

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

  • 1 year later...
Mr. Legend Newbie
On 5/8/2017 at 10:48 PM, elevenluke said:

I will definitely try the elimination diet. I have been planning to do so for a while, but haven't actually tried it as I have been busy and hadn't brung myself to learn what all I can eat, and ensure it is enough. It is so odd that your body can develop random new intolerances to foods you have eaten your entire life, once you have/are diagnosed with celiac disease. I haven ever had a lower sugar/carb diet as healthy as what I eat now, but surely something is slipping through the cracks causing symptoms.

A question I have for you guys is, have you been tested for food intolerances? I hear mixed things from colleagues about the trustworthiness of the test itself and how indicative it is of actually food sensitivities, and was curious if you all have had the tests and could speak on their reliability in your personal experiences? I plan to do the elimination diet regardless, but I figure it would be helpful to have some level of guidance when replacing possibly offending food groups back into my diet, if I have some kind of potential insight as to what is most likely not great for me. Thanks!

You may have ibs (irritable bowel syndrome) .i am having the same symptoms and taking medication for ibs. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,394
    • Most Online (within 30 mins)
      7,748

    Graceland.h
    Newest Member
    Graceland.h
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.