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Recent Activity
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- Scott Adams replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20
Still unsure.....
Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy). -
- knitty kitty replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
4 Years and very little progress
@maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide). My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies. I studied nutrition before earning a degree in Microbiology because... -
- maylynn replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
4 Years and very little progress
@knitty kitty Did they give you medication for the Thiamine? I have never heard of that and have never related to symptoms more. My energy is always SO low. Zero drive to get anything done or work out. I used to love being on the go and being active. I am heading to the doctor next week so I will make sure to bring this up! Thank you so much! -
- maylynn replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
4 Years and very little progress
@trents I have had another scope done since being diagnosed. The only thing they told me at that time was my body seems to be healing very well and to continue what I was doing. At that time, I had only been diagnosed 2 years so it may be a possibility that it was healing then but not now maybe. I think you're right that it's about time one was done! I will... -
- maylynn replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
4 Years and very little progress
Thank you so much for the advice, Scott. I am going back to the doctors next week to get more blood work done. The only thing they recommended me to take so far has been two shots of liquid iron in the morning to keep my iron levels high. What supplements or vitamins have worked for you? I never physically feel my celiac symptoms, unless I got cross contamination...
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