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Do i have celiacs disease or something else?


XaK

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XaK Newbie

Some of my history

First off I will go through a bit about me.  When I was born I had Tetralogy of Fallot with four operations done some valve patches and some overgrowth removal. in 1994. I was also diagnosed with Aspergers sense like 3 years old or less. I also was once diagnosed with asthma but grew out of it? 

Medication history

20 years fluvoxamine quit cold turkey once then got back on it again then taper off of it in that time frame of 2 weeks of 50 mg - former and this year

Then was told to take Zoloft started at 25 mg for a week then went to 50 mg for a week then tappered off at 20 mg this year

Ive also taken naproxen at the same time for headaches which i read on a website can cause upper gi bleeding which i know you shouldnt diagnose yourself 

 

Note 2 mods  i read celiac can cause bone problems. and all these i experience

 

Copied and pasted i just hand wrote on my about me from my profile 

About Me

Was born with a Broken heart had Tetralogy of Fallot several valve patches and overgrowth removal in 1994.

Was told I had asthma apparently I outgrew that

Was diagnosed with Aspergers Syndrome to young to even remember when

Was severely bullied from elementary - high school; Several times i fought the bullies back and got suspended. :) Yet they didn't...

Obese for as long as i can remember I can always lose weight but i always am fat can't seem to lose the fat itself ever. (Is it Celiacs?)

Sense September 2017 been feeling really bad

Unexplained rash on my upper arms non itchy red bumps and little bumps that rise a bit

Also have a screwed up hip somehow and i mean really screwed up hip causing tingling or is that the Celiac disease? 

Been to like 20 doctors sense september all say nothing is wrong even 2 ER visits. and many chiropractor visits to come and been to gastro

Always feel tingly especially in leg oh and my hip is screwed up and no one knows how i mean i used to leg press 500 lbs but no bone fractures or signs of bone cancer etc asked the chirpractor

Been having restroom problems GI doctor said nothing felt wrong and simply prescribed me probiotics which i have yet to buy as i went 2 days ago work full time and am busy.

My stomach makes growling noises like all the time.

My mom dad and sister have GERD and grandma have ibs my mom and sister have tonsil stones not sure if i have either of those though i feel like something is stuck in my throat 24 7. near the tonsil area. though recently i gargled salt water and it lessened.

Ive had like 6 + blood tests several CBC tests and and one Lymes disease test and all negative. Couple of times i had low blood pressure i do get anxious and worried though but thats understandable when going to doctors etc.

Also went to another GP recently been having ear pressure problems in my right ear and when i hold nose and breath i hear heatbeat also hear droning sound all day in that ear not tinnitus. ETD maybe? allergy related dont know. i know i used to get bad seasonal allergies.

I have to take a lot of poops sometimes i cant tell if its a poop or a fart sometimes i think its going to a poop and its just a fart or reversed dont worry i always make it on time.

i also get like neck throat or some type of convulsions where my ear fills up when pressure every now in than on right side GP said to take flucasatine to see if that helps but worried about its side effects which can cause hyper sensitvity which i already have and read it causes people to loose sense of taste and smell

all this started sense september though and i was on a vacation that did not go well with me even blacked out twice only for like 2 seconds though on a house boat trip in utah lake powell and was a monsoon in the dessert + 110 degrees like every day maybe bumps caused from that did feel like skin was boiling

Could all this be stress and anxiety related from this and caused PTSD i always keep saying ive felt bad sense this vacation i dont think i think about it though i did have a couple of nightmares about it google Monsoon in utah lakepowell several peoples houseboats flipped and lady lost her arm. 

Its either mostly stressed and anxiety related or Celiacs disease l6Z99un.webp

5WHh5my.webp


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Ennis-TX Grand Master

Growing up I was always bullied fellow asperger guy here, often describe myself as a mild sheldon cooper. Anyway The fat thing...yeah I had that til my 20s after I did some stupid stuff and my celiac changed symptoms and I just started loosing weight. I was always tired and to be any kind of active had to chug energy drinks in highschool. The leg tingling, burning sensation (does it seem to crawl and move across your back and arms leaving little red dots with the feeling your skin is on fire?) I found was related to magnesium deficiency and cleared up with supplementing in addition to the gluten free diet. Thing with the magnesium is you need to find the right form for you. If you have constipation then Magnesium Citrate Via Natural Vitality Calm small 1/4tsp (1-2grams) starting and up it 1/4 tsp at a time til full dose over a week and then adjust to tolerance (IE you get loose stools then back down) If you have loose stools already go with Doctors Best Magnesium Gylicinate and dose as they say. Gluten free and supplementing will resolve these.

To your main question do you have celiac.....maybe they have to do a blood test and a endoscope with biopsies to be sure. The disease has hundreds of symptoms and is a bit different with everyone. Keep eating gluten for now as you have to for the testing readup on what kind of blood test to ask for etc here Open Original Shared Link
 

Oh on a side note, us asppies have common issues with gluten and dairy anyway making our problems worse....always have it talked about at summits and seminars on autism you would probably benefit giving up both no matter what after the testing is done.

XaK Newbie
On 3/3/2018 at 9:39 AM, Ennis_TX said:

Growing up I was always bullied fellow asperger guy here, often describe myself as a mild sheldon cooper. Anyway The fat thing...yeah I had that til my 20s after I did some stupid stuff and my celiac changed symptoms and I just started loosing weight. I was always tired and to be any kind of active had to chug energy drinks in highschool. The leg tingling, burning sensation (does it seem to crawl and move across your back and arms leaving little red dots with the feeling your skin is on fire?) I found was related to magnesium deficiency and cleared up with supplementing in addition to the gluten free diet. Thing with the magnesium is you need to find the right form for you. If you have constipation then Magnesium Citrate Via Natural Vitality Calm small 1/4tsp (1-2grams) starting and up it 1/4 tsp at a time til full dose over a week and then adjust to tolerance (IE you get loose stools then back down) If you have loose stools already go with Doctors Best Magnesium Gylicinate and dose as they say. Gluten free and supplementing will resolve these.

To your main question do you have celiac.....maybe they have to do a blood test and a endoscope with biopsies to be sure. The disease has hundreds of symptoms and is a bit different with everyone. Keep eating gluten for now as you have to for the testing readup on what kind of blood test to ask for etc here Open Original Shared Link
 

Oh on a side note, us asppies have common issues with gluten and dairy anyway making our problems worse....always have it talked about at summits and seminars on autism you would probably benefit giving up both no matter what after the testing is done.

Hey thanks for responding sorry for late response work full time and been suffering i do feel like my skin is n fire and tingling all over i do have little red bumps do you have instant messengers like kik snapchat telegram would like to chat. especially as a fellow aspie.

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    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
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      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
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      Would it be rude to ask your age?
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      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
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