Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling with celiac


Stefani87

Recommended Posts

Stefani87 Newbie

Traveling with celiac

 

I would like to relate my experience today and then ask for advice on traveling and bringing food along (being prepared). See last paragraph 

 

Today we traveled to a new place and meet new people. We had a project to do and then everyone wanted to go to lunch. So I didn’t have an opportunity to research this place before hand - I could’ve used Find Me Gluten Free - but I didn’t. I took a risk. (I know better now) anyways the place we went had gluten-free options so I asked the waitress if I got the gyro without the pita would it be gluten-free. She said yeah. She asked if I wanted fries even though fried in same fryer as other gluten items. I said yes because I’ve done it before without any repercussions. I love fries. So the place seemed pretty knowledgeable about gluten-free food. My food was great! But an hour or so later I was vomiting in the men’s stall at a gas station (all the fries, TMI?) - the woman’s was occupied! I have only recently started vomiting when I have a cc gluten exposure. Ugh! 

 

Ok so I know my mistake was getting the fries. Taking a risk. Not double checking the restaurant. Not maybe being more vigilant for my health. I hate being that person at the restaurant who has to make a scene asking all the gluten free questions. Especially in front of new people. So now I know I need to be better prepared. But does that mean not eating out at new places every again? 

 

I need advice in how to travel with celiac disease, how to be better prepared for going to a new restaurant. At this point should I just pack my own lunch every time I go somewhere new? My husband (bless his heart) did pack me veggies to eat but I need more than that or I’ll get hangry. Also I am terrible at being that prepared that I could have brought my own lunch along. Also do I eat my own lunch in the restaurant? I can’t do that right plus it would be weird?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Emergency, I keep Julian Protein Bars, and Miracle Noodle MRE packs with me when I leave, I also take meal replacement shakes. I often take bags of nuts/seeds/cocoa nibs kale chips etc for snacks. I also starting last month started keeping a sealed jar of sunbutter in my under seat storage, You can stick almond butter and sun butter individual pouches and the Julian or what ever protein or kind nut bars in your purse. If you can the old thermos of soup, or a gluten free sandwich works old style lunch box meals. I heard recently of someone who kept gluten free progresso cans in their trunk all the time...and just stuck it on top of the engine to heat it up and pulled it off with a oven mitt and opened and ate...crazy college kids dealing with this disease on a budget eh. I also make steam pouches with a food saver vacuum packer just sticking the veggies, seasonings etc in a pouch and sealing it, freezing it...just grab a pouch and go...gas station microwave lay down some napkins..stab some holes in it and instant steamed meal (bring a plate).

I recently did a stock at a gas station for gluten free options. Rythem kale chips, Epic jerkey and pork rinds, many bars, certain brands of seed had gluten free, I saw wonderful pistachios, hard boiled eggs, and some lays chips.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,367
    • Most Online (within 30 mins)
      7,748

    Pauline14
    Newest Member
    Pauline14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.