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Tomorrow Morning Is My Biopsy, And Starting My New Lifestyle...

JessicaB

By JessicaB
in Coping with Celiac Disease

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JessicaB Explorer
JessicaB
Posted

why am i so scared, worried, and sick to my stomach! Help. i hate needles!

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kevsmom Contributor
kevsmom
Posted

Jessica - you will find a lot of understanding and support here. Good luck!.

Cindy

Canadian Karen Community Regular
Canadian Karen
Posted

Jessica,

I know this is probably too late for you to read, but I just wanted to post to support you and let you know that it really isn't as bad as you think....... the prep work is worse than the actual procedure!!!

Please post and let us know how you are doing afterward.....

Hugs and good luck!

Karen

jenvan Collaborator
jenvan
Posted

Jessica-

Don't worry!! An endscopy is pretty painless--being hungry is the worst part! It is a quick procedure to go thru to end up on a road to better health. Don't worry about going gluten-free either. Take it one step at a time. There are literally hundreds of people here who were in your shoes, overwhelmed, not knowing where to start, and now the gluten-free lifestyle seems 'old hat' most of the time. You will figure it out--it will take some time, but you have some great resources here. Also ck into a local support group in your area...and I highly recommend buying a copy of "Wheat Free, Worry Free" by Danna Korn--it will educate you on many facets of the diet and lifestyle. Good luck and let us know how it goes!

frustratedneicey Apprentice
frustratedneicey
Posted

Jessica, The prep for this procedure is actually worse than the actual procedure. Once I got past the prep and the IV, and was wheeled into the room, I talked to my doctor for a minute, and BAM! I woke up and it was over. I have had worse trips to just go and have my blood drawn. Believe me, it is not that bad. I am pretty new to this forum, but you will find that there is alot of support here, and everyone will help you along the way with your diet and the emotional side of this whole thing. Just know that once you start this new lifestyle, the way you start feeling, will be the biggest driving force to keep you on this diet and way of life. It will be difficult, but some people handle it much better than others, and you just may be one of those people who just takes it with a grain of salt!!! I, myself, on the other hand, am one of those emotional wrecks, but you will find that sometimes the ones feeling the same way are the ones who give you the support you need.

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

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      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

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    • knitty kitty
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      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
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      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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