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Related Disorders

Mahee34

By Mahee34
in Related Issues & Disorders

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Mahee34 Enthusiast
Mahee34
Posted

Does anyone else have the bladder syndrome interstitial cystitis? My doctors all thought that I had endometriosis and I went and had the labroscopy then boom......it wasn't that, and now here i am recovering and now i have to see a speciailist.....and guess what the treatment is, drug therepy AND more DIETARY GUIDELINES..........uugggh. Just wanted to know if anyone else has experienced this and could give me any pointers

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Guest mvaught
Guest mvaught
Posted
Does anyone else have the bladder syndrome interstitial cystitis? My doctors all thought that I had endometriosis and I went and had the labroscopy then boom......it wasn't that, and now here i am recovering and now i have to see a speciailist.....and guess what the treatment is, drug therepy AND more DIETARY GUIDELINES..........uugggh. Just wanted to know if anyone else has experienced this and could give me any pointers

Hi we actually have a thread going on this already:

Open Original Shared Link

I started the topic - funny because I think I say the same thing - diet restrictions, etc. You sound a lot like me..I do have endometriosis and have had 4 surgeries for it. However, that did not attribute to my bladder problems. I was diagnosed with IC over the summer. It is really hard to deal with as you know. As far as diet, definately the stuff on the list bothers me - but each item is different (some urgency, some urgency and frequency some both of those with pain, etc) so I have been playing it by ear - trying to figure it out - see the thread, there is quite a discussion on it already that will be helpful for you. i have found that a the product Prelief is helpful - you take it when you eat or drink (it is over the counter in the tummy med section). I tried the drugs for IC and none of them worked. My doctor did an interstim implant for me - it is a device like a pacemaker that attaches to the nerve and make the IC symptoms less prominant (though if I eat bad things - red wine, tomatoes - they still bother me - so do the days before my period - but not as much as before). This device has really changed my life, but is is not approved for IC - but it is approved for urgency and frequency/inconitinence symptoms - which is a loophole that my doctor used to get it for me (though he is also a reasearcher, so i assume that he is working to get it approved - like I said he used the loophole and insurance covered and all).

I totally know where you are coming from...It is really hard to have IC - especially in addition to other stuff like celiac disease! please look at the thread for a link to the IC network that I put on there. Feel free to message me anytime as well =)

-Michelle

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