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Back From The Flu Or Somthin Else


averyevansmom

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averyevansmom Apprentice

My son and I are just now recovering from a horrible cold. Both with fever and cough. Took him to his follow up at pediatrician for biopsy results which coincided with his cold (fever of 102) and said it was viral, isn't it always? We are just now starting to feel a bit better. I worry more with my kids when they're sick as any parent does. We started the diet Monday and told his pediatrician who said to just let him know how it goes, no argument. Luckily he's very easy going. We told him about the second opinion at Boston Children's on the 27th, so he's well aware. I'm just concerned about all the meds I've pumped into us all week. I was in no condition to check anything. When we did eat, we ate properly as we have nothing with gluten in the house. We went nowhere other than the pediatricians office and to bring my daughter to school and to pick her up, so we were pretty much house bound. I think maybe the medication may have messed us up a bit. I don't know. I hope not. I still have to check his miralax. I think I read it was gluten-free, but I want to be sure. And he also takes generic ferensol daily with half a multi vitamin. I bought him Suave kids shampoo and we use Ivory soap. My daughter uses garnier fructise. She has the snarliest hair. I'm a hairdresser by trade and none of the professional products I've ever used other than one Redken conditioner comes close to the garnier conditioner. I use aquaphor on Bubbas rashes. My daughter and son devoured a box of envirokids panda puffs in about 4 days. Now she's working on the Panda puffs. Luckily she's not a big sweet eater and I think these cereals are just sweat enough. Anyway, anyone know about the effects of the meds. Probably not much since we just started I hope. I have to check all my meds. I'm hoping to cut back on a lot of those after being on this diet for a while. I'm tired of feeling like garbage.

Becky


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Becky6 Enthusiast

Oh I am sorry! I hope feel better fast!

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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