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  • Recent Activity

    1. - Kimmy88 posted a topic in Related Issues & Disorders
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      New Celiac Disease patient & new to this group-Questions

    2. - trents replied to Sarawiththeceliac's topic in Related Issues & Disorders
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      Untreated celiac

    3. - Sarawiththeceliac replied to Sarawiththeceliac's topic in Related Issues & Disorders
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      Untreated celiac

    4. - knitty kitty replied to Waterdance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Diagnosed gluten allergy but not Celiac


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  • Posts

    • Kimmy88
      Hi Everyone, I was just diagnosed with Celiac Disease and I am also new to this group. I am overwhelmed by thinking of all the products you ingest including prescription medications, and even toothpaste. Do people contact the manufacturer ? What toothpaste is gluten-free?  I was able to find a chewing gum that was gluten-free. Any help or direction would be appreciated. 
    • Waterdance
      Wow! Intense. No wonder I'm tempted to cheat.
    • trents
      Can you be specific about what supplements you are taking? The form of a supplement can be critical in how well it is absorbed. Many over the counter vitamin and mineral supplements are optimized for shelf-life rather than absorbability. For instance, take magnesium. On the store shelves you will often see Magnesium oxide or Magnesium citrate. Magnesium glycinate is a much better choice. Same with zinc. Zinc picolinate is a much better choice than zinc oxide. Same with B12, Thiamin, etc. This can be critical when your absorption efficiency is already compromised by celiac disease. You should research best vitamin and mineral formulations for absorbability.  Routinely, we recommend on this forum the following combination of supplements to counteract nutritional deficiencies from long-term untreated celiac disease: B12 sublingual, B-complex, D3 (5-10k IU daily), magnesium glycinate, zinc picolinate. If you are taking an iron supplement, drink something acidic with it like orange or tomato juice or a vitamin C tablet to increase absorption.  As the villous lining of your small bowel heals from the gluten-free diet, your absorption efficiency will improve. In the meantime, the only way to combat poor absorption efficiency is to flood the small small bowel with more concentration of vitamins and minerals.
    • Sarawiththeceliac
      I did a tTG-IgA test to check if they were high I usually do it a lot when I was a kid but the last time I did it was when I was 12 then now at 17 and they were 32 the normal is less than 7 i guess .also I want to know,I do have gluten free supplements but they are not absorbed well due to the inflammation, what do I do should I wait six month after I eat gluten free food or take now even tho I am not sure if they able to be absorbed and I don't see improvements 
    • knitty kitty
      Actually, it's an opioid hit.  Gluten attaches to opioid receptors we have throughout our bodies including our digestive systems.  That opioid hit from gluten attaching to opioid receptors is probably why some people don't have gastrointestinal symptoms.  Some people feel worse after going gluten free because they are no longer consuming exogenous opioids from gluten. We also have opioid receptors in our brains which can account for brain fog.  Remember that antibodies against gluten attack not only the gluten on the receptors, but also our own tissues because structural elements in our cell membranes resemble gluten.  In our digestive systems, our villi, the anemone like projections that absorb nutrients, are damaged.  Same type of thing in the tissue of the brain.  People with gluten ataxia tend to produce tTg 6 IgA antibodies.  Diagnostic blood tests for Celiac test for tTg 2 antibodies from the intestines.  People with Parkinson's and Alzheimer's also produce tTg 6 antibodies although they may not have Celiac Disease.   Gluten is not just an addiction, it's a health hazard to us.
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