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Caffiene?

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I am just curious if anyone else has problems with drinking caffiene? It seems to make me have abdominal pain, cause C and giving me heartburn for two weeks. At least that is what i am blaming it on. It is frustrating to not be able to drink it at all, but I was curious if others have problems with it. I quit for a week and feel SO much better. It is hard for me though to stay off of it.

Monica

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Hi Monica.

I can't say as I join ya there. I would be lost without my daily fix. Although, I can't drink coffee to get my caffeine (that hurts), but Coke is fine......

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I drink decaf. It was hard at first to change but I got used to it. I like Carob hot drinks too. But yes in answer to your question. I can't tolerate coffee anymore for some reason.


Diagnosed in September 2005. Gluten Free since April 2006

Deputy Clerk-Electronic Filing Manager in Civil Department

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I cant have caffeine at all. I was never a big coffee drinker....I just enjoyed Starbucks Caramel Macciato's occassionally and drank several sodas a day. Since I got sick three years ago I cant handle caffeine. It really messes me up in alot of ways but nothing GI related. I get very shaky, dizzy, migraines plus it messes up my skin for some reason. I dont need caffeine and I dont miss sodas but a couple times I ordered my Starbucks and forgot to say "decaf". :(


Rachel

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OH, I love caffeine, that isn't my problem. I just think it gives me IBS problems. Very annoying. I usually have drank diet pepsi, but sometimes will drink coffee for a few weeks and then quit for awhile, etc. The latest though is that it started giving me horrible heartburn, along with the IBS symptoms. SO I quit for a week, but I am such an addict. I started taking Prilosec and that has helped me quite a bit. I am trying to figure it all out though. It seems after being gluttened, i have alot of the symptoms for a few weeks. I am already vegetarian, gluten free, don't drink alcohol and now my one vice of caffeine is being taken away too!! UGH! WHen will it ever end. I think I am going to turn into a rabbit! JK!

I am going to the GI doctor tomorrow, not sure why since I am a big whimp and don't want any testing done. He is going to think I am a nut!

Thanks guys,

Monica

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I can't say that I have a problem with caffeine from any source...if it wasnt for coffee I'd never get through the day. Even when i make instant coffee about 3 times normal strength, it doesnt give me the runs or nothing. (thank god lol)

Yeah i'd die without coffee. I'm a coffee-holic. Enough said :P

~lisa~


...Flames vs. Panthers, and Lifehouse, were best experiences OF MY LIFE!!...

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I am intolerant to caffeine (it has salicylates in it), but I am theoretically allowed to drink decaf. But since I am intolerant to dairy and HATE coffee without cream, I don't bother. I never drank much coffee, because I've never felt good afterwards (and it makes me incredibly sleepy :ph34r: ), so I don't miss it.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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I am just curious if anyone else has problems with drinking caffiene? It seems to make me have abdominal pain, cause C and giving me heartburn for two weeks. At least that is what i am blaming it on. It is frustrating to not be able to drink it at all, but I was curious if others have problems with it. I quit for a week and feel SO much better. It is hard for me though to stay off of it.

Monica

It bothers my stomach. I dont know if that's from Crohn's or just a problem with IBS in general.


Every day is a blessing.

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Guest cassidy

If I drink Caffeine it makes me really shaky and aggitated. I don't know if that is because I'm not used to it or because my body just doesn't like it. I drink a lot of sparkling water. It has the bubbles like soda but not the bad stuff. I also love decaf coffee. I make a pot most mornings and my husband passes it up for instant (yuck!) regular coffee.

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I think the caffeine is causing me IBS symptoms and now possibly heartburn. I have drank plenty of stuff for years with caffeine. It has been my major hangup in life and now I have to give that up too!!? Where is the fun in my life?! I know, I am taking this rather rough. Well, gotta go, I am off to the doctor. We will see what he says, but I hate going to the doctor!

Monica

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I can not have any caffeine--gives me bad abdominal pains also. I haven't had caffeine in over 10 years. I can't even do caffeine free teas, only herbal. No decaf coffee either.


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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Well is the intolerance because of IBS or Celiac? The way we determined that I didn't have IBS is that when I gave up my Diet Pepsi, my symptoms did not get better!

I have no problem with my daily diet pepsi's! I typically have 2 a day! But I also drink 120 oz of water daily too!

Monica

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I drink a ton of water too! I am fine for awhile, but I think maybe more of my problem has to do with getting gluten. That seems to be when I have trouble. It is frustrating. I know I have celiac. My son has it and my blood tests were borderline after being gluten free for two months. I get sick when I eat wheat. Anyway, I am wondering if stress plays a role in my symptoms too. I exercise all the time and I really try and eat very healthy, so it is frustrating. THe only thing "bad" I do is drink some caffeine, which is only two diet pepsi's a day or a cup of coffee. IT is frustrating. I know some people don't have any problems with it. Just curious if I was the only one and it seems most people here seem to be ok.

Monica

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this wouldn't apply to your coffee if it was black, but are you always drinking diet or artificially sweetened beverages. artificial sweetners cause GI symptoms in some folks, i can't have it myself b/c of what it does to me... just another thing to think about.


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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Never could tolerate caffeine. I get shaky, dizzy, headachey, abdominal pains and D. Doesn't matter if it's from coffee, tea, soda...

I believe it's a combination of IBS and just plain old low tolerance that gives me the side effects. Probably, if I forced myself to down coffee every day, the symptoms would not be as bad.

I feel like a teetotaler too - no gluten, no lactose, no soy, no caffeine and no alcohol! What a loser I am!! :P

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GlutenfreeAL, that's how I feel too! And someone else mentioned turning into a rabit......that seems to be me too! So far, I can't have gluten, dairy, soy, nuts, caffeine and most alcohol! After feeling healthy for about 2 weeks straight, I decided to try caffeine again. Just plain black Starbucks coffee, nothing in it. About a half hour after I was drinking it, the stomach aches came on like waves for about an hour. It was horrible. Never again.


Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06

Diagnosed: Gluten Sensitive through enterolab 11/17/05

Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06

I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein

Peanuts (can handle very small amounts)

Any kind of additives or preservatives

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Caffeine is a drug!! The body doesn't want it. If you need a boost get some amino acid supplements with some L-tyrosine. Your body obviously doesn't want it, so why drink it? I haven't had caffeine in a year and and half don't care if I ever drink it again.

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Good for you for being able to kick the habit!@ As for me, I am terrible at quitting. I feel so much better when I am not drinking it for maybe three weeks straight and then for some reason I always fall back into the habit. Usually from a lack of sleep for a night or so and then it is a vicious cycle of being tired and not sleeping well, then more caffeine. Yeah, I don't think the diet soda is very good for me. It is hard for me for some reason. My brother teases me and says I should just quit trying to quit, but I need to for my health. It is definitely affecting my health negativily, so it is time to quit for good. I can't drink decaf coffee for some reason, that really messes up my stomach.

I figure eventually I will have success!

MOnica

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Caffiene and alcohol are two of the harshest things on a sensitive gut. If you're trying to heal a leaky gut these will not do you any good at all. I'm thinking I'll do alot better with caffeine and alcohol once I'm healed. :)


Rachel

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I can't drink caffeine drinks either, as I get heartburn. But, I don't think it's just the caffeine - tannine (sp?) is also a problem. Interestingly, that's in red wine as well as tea, and red wine gives me migraines. I'm obviously sensitive to both caffeine and tannine. I really miss my tea, and drink fruit/ herbal teas instead. But I have to have them really weak otherwise they cause the same symptoms. Don't know what that's about :huh: But I don't want to end up just having to drink plain hot water if I want a hot drink :(


Susie from Coventry, UK

IBS & GERD 2000

Screened for coeliac disease as sister has it - negative blood test

Nov 2005 positive blood tests

January 2006 dx by biopsy

gluten-free and dairy lite since then

I am also neutropenic, anaemic and have hypothyroidism

Feb 08: free protein S deficiency; candida overgrowth; adrenal exhaustion

'My grace is enough; it's all you need. My strength comes into its own in your weakness.' 2 Corinthians 12

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I haven't been able to drink coffee in nearly a year. A few months after going gluten free, I started having stomach pain and nausea and I had to give up all caffeine. I sorely miss it. That was the one cup a day I drank each morning. Now I have to drink herbal tea and it isn't the same. I drink 7up Zero when I want a soda. I don't have any explantation for this (neither does my doc) but since going gluten free, I've had a lot of problems with my stomach. :(


Kathy C.

Ft.Lauderdale, Fl.

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Kathy,

I agree, I had six months of being SO much better gluten free and now I have so many problems with my stomach. It is VERY annoying. I had borderline blood results and so it is frustrating. Sometimes I wonder if I wasn't better off before, but I had horrible bloating before, C and D, bruising, exhaustion, etc., but now I am having heartburn, on and off stomach upsets and problems with C. As hard as I try, I should be in peak performance!! LOL! I know it will gett better and I do think that gluten is involved and stress.

THanks for all the replies. AT least I know I am not the only one having to give up my beloved caffeine.

Monica

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Monica--I'm going through the exact same thing as you are right now--except I get D instead of C. The rest, I could have written myself. I guess I have no other choice but to just stick with it and hopefully things will get consistantly better again. I don't know of anything I'm doing wrong. I'm so careful when it comes to CC matters here at home, and I have not eaten out of the house in months. I, of course, do go out, but I have been bringing something to eat with me.

On the subject of caffeine--I can't tolerate it. Even decaf coffee. I do, however drink decaf tea.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I haven't been able to tolerate it for a few years now. I always get decaf coffee, but have been pretty ok with sodas. now, if i have any amount of caffeine whatsoever, i feel jittery, shaky, and anxious. this seems to have worsened after going gluten-free.


Weak positive bloodwork (IgG only)

"Mild flattening of villi" noted on endoscopy, but negative biopsy

Positive response to gluten-free Diet 1/14/06

Diagnosed gluten intolerant by Enterolab

HLA-DQB1*0201, 0201 (HLA-DQ2, DQ2)- 2 Celiac Genes

Vitamin B-12 deficiency

Have not received Celiac Diagnosis based on negative biopsy

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